Herx or reaction to ABX?

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jasrich
Regular Member


Date Joined Dec 2008
Total Posts : 29
   Posted 7/29/2009 1:24 PM (GMT -6)   
Hi all, I asked this question on another thread that I started but it deserves it's own I think so I'm bumping it up.  I'm treating with Dr. J in SC. I've completed two cycles of ABX, taken a week off and now I'm in week two of my third cycle with a change in the regimen because Dr. J didn't think that we were hitting it hard enough with the first combo.  The first was:
 
Minocin 100mg BID + Zithromax 500mg QD + Omnicef 300mg BID on MWF for three weeks, add Flagyl 500mg BID on Th and F of the third week, and take a week off.
 
Now I'm on Minocin 100mg BID + Rifobutin 150mg BID + Omnicef 600mg BID on MWF for three weeks, add Flagyl 500mg BID on W, Th and F of the third week, and take a week off.
 
During the first few days of the first week I had some pretty hard-core diarrhea that has since resolved. I also had a nice little burst of energy for the first few days before it faded and became my normal fatigue.  Most noticeably, my joints and muscles are really aching. All of my usual achy places are aching even worse than usual and, as I read on a Bartonella thread, my back aches like I pulled muscles even though I haven't.  I called and left a message for Dr. J to ask whether this was probably a herx reaction and his nurse called back to say yes but I didn't expect anything different.  My safety labs also came back with my WBC a little low and AST and Monocytes a little high, but Dr. J wasn't concerned.
 
I'm very skeptical about my DX, the treatment, and, frankly, Dr. J.  My wife and I are wondering - do ABX cause significant muscle and joint pain in the absence of infection? I.e., would all of these ABX be causing my knees, hips and back to hurt whether I was infected or not or does this only happen if one is infected?
 
Thanks.
 
jasrich
11/26/08 Igenex positive
Current Rxs 12/17/08: ABX - Omnicef 300mg BID, Minocin 100mg BID, Zithromax 500mg QD all taken MWF; Levoxyl 112mcg, SRT3 5mcg BID, Tapazole 5mg QD, Seroquel 12.5mg, Zyrtec OTC QD, Ibruprofen PRN (daily), Acidopholus/Bifidus, digestive enzymes, vits B-50, B5 500mg, B-12 1cc 2x/week, Lithium 5mg, fish oil 1500mg/day


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 7/29/2009 3:38 PM (GMT -6)   
I am also having the same pains - arms, legs, knees, ankles, pulled muscle feeling in abdomen and back. I am in my fourth month of antibiotic. From what I understand, this is what to expect and is usually a good sign that the antiobiotic is working. My question is how do we get the toxins out?? Best of luck to you.

jojeanle
Regular Member


Date Joined Dec 2006
Total Posts : 79
   Posted 7/29/2009 7:04 PM (GMT -6)   
I am 4 weeks in to levaquin 750/and mino 200 daily and i am also having pains and worseining of symptoms... they are not incapacitating, and not sever enough for me to think that levaquin is doing damage so I believe its a herx.. muscles joints, twitches, everything has increased... pain in the bottom of my foot is actually worse...
 
I look at it this way...  I have been on antibiotics a few times before l got lyme disease and never had any issues except it took care of my infection.... I believe that if Ididnt have a tbi, then I wouldnt be getting worse.... just my 2 cents

jasrich
Regular Member


Date Joined Dec 2008
Total Posts : 29
   Posted 7/30/2009 7:56 AM (GMT -6)   
jojeanle said...
 
I look at it this way...  I have been on antibiotics a few times before l got lyme disease and never had any issues except it took care of my infection.... I believe that if Ididnt have a tbi, then I wouldnt be getting worse.... just my 2 cents
Yeah, that's how I'm inclined to look at it too. With every other doctor (and I mean lots of other docs including ID docs that I have seen) telling me that what my doc is doing is crazy and that I should stop the ABX right away, and then feeling so lousy while taking them and with no end in sight, it's very hard to keep on doing it.  I also don't really see people talking about how much better they are doing after taking ABX and/or that they are cured.  This whole thing is one giant leap of faith.
11/26/08 Igenex positive
Current Rxs 12/17/08: ABX - Omnicef 300mg BID, Minocin 100mg BID, Zithromax 500mg QD all taken MWF; Levoxyl 112mcg, SRT3 5mcg BID, Tapazole 5mg QD, Seroquel 12.5mg, Zyrtec OTC QD, Ibruprofen PRN (daily), Acidopholus/Bifidus, digestive enzymes, vits B-50, B5 500mg, B-12 1cc 2x/week, Lithium 5mg, fish oil 1500mg/day

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