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Really Lyme
Regular Member


Date Joined Jan 2007
Total Posts : 219
   Posted 7/31/2009 7:27 PM (GMT -6)   
It was a good appointment. We talked about alot of Nuero stuff. He is more concerned that I tested positive for chlamydia pneumoniae (its not the STD one) 2 years ago and my last LLMD never treated it or talked about it. He thinks that could be causing my MS. He wants me to start Minocycline right away we will pulse Flagyl a week out of a month and  Zythromicin 2 times week. It's called the Stratton/Vanderbilt Protocol.
 
He did retest me for all those things and if the Lyme comes back positive again  we will probably do Rocephin again. He thinks for MS like symptoms Minocyline is what I need.
 
He was most concerned that he told me three years ago to always take Minocycline and I did not listen. So were starting over I hope it works.
Finding Peace In This Crazy World !
 
Beth
 
FIRST POSITIVE LYME TEST IN NOVEMBER OF 2004
DX- WITH MS  APRIL OF 2005
DX- WITH LYME JULY OF 2006
FINALLY TREATED FOR LYME JANUARY 2007


not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 7/31/2009 7:36 PM (GMT -6)   
Glad you had a good doctor visit. Is minocycline better for treating Lyme than Tetracycline?

Really Lyme
Regular Member


Date Joined Jan 2007
Total Posts : 219
   Posted 7/31/2009 7:44 PM (GMT -6)   
I am not sure. I think having a combo of Antibiotics or IVs is ideal. But I am not that great at treating my own Lyme I have tried for years without a LLMD and definitly love having one.
 
Where do you live?
Finding Peace In This Crazy World !
 
Beth
 
FIRST POSITIVE LYME TEST IN NOVEMBER OF 2004
DX- WITH MS  APRIL OF 2005
DX- WITH LYME JULY OF 2006
FINALLY TREATED FOR LYME JANUARY 2007


not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 7/31/2009 7:49 PM (GMT -6)   
I live in Pa. It would be nice to be able to do it without a LLMD. I kind of feel like I do anyway. Where do you live?

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/31/2009 8:47 PM (GMT -6)   
I'm sorry, ReallyLyme, I have a couple of questions for you and you have probably spoken about these on the board, but I'm bad matching up names to their symptoms and their posts. (WEll, except for 1 person, who we all know.....)

Anyway, I'm not exactly sure that I understand what you are saying and what you mean, about having MS. Do you believe that Lyme caused your MS? Or are you saying you have the symtoms of MS? What do you believe you have, down in your gut?

Have you considered a CD57? What I have been reading about so far is that diseases like MS, Lupus are NOT associated w/ CD57. So it seems to me that the CD57 is not only just a tool to determine how sick (or how well) and compromised a person is. It seems to me that it could well be used to help diagnose Lyme, and rule out those diseases. And I suppose unless, you believe that Lyme has actually caused you to have MS itself.

ARe these questions making sense? I'm having trouble putting these thoughts together today. My car was stolen last nite and I've thus been in Lyme Fogatory Hell.
 


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/31/2009 9:30 PM (GMT -6)   
I've heard that Minocycline is good for MS because it prevents t cells from crossing the blood brain barrier...the only thing that concerns me about it is that I wonder if it prevents them from entering the CSF.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"Breathe. Let Go. And remind yourself that this very moment is the only one you know you have for sure."
 

Really Lyme
Regular Member


Date Joined Jan 2007
Total Posts : 219
   Posted 8/1/2009 5:17 AM (GMT -6)   
I'll get back to you all when I get home. Got to go try to find Airport.
 
Take Care
Finding Peace In This Crazy World !
 
Beth
 
FIRST POSITIVE LYME TEST IN NOVEMBER OF 2004
DX- WITH MS  APRIL OF 2005
DX- WITH LYME JULY OF 2006
FINALLY TREATED FOR LYME JANUARY 2007

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