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+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/1/2009 9:16 AM (GMT -6)   
I hope that this post and these questions will be of some benefit to others as well. Surely there are others in the same spot as I?
 
skull  My Quest labs clearly show Babesia microti, high enough to indicate 'acute', even tho I'm not exactly 'acute'. (or am I?)  It says they are high enough to be seen thru smears.
 
LLMD acknowledged this, along w/ all the other stuff  and stuff (like hormones) that I did not know were low.  He stated that my lyme would not get better until babs was better, just as you all have said.  He said the Babs had to be addressed.
 
However, he wrote me out a script for lab work from Fry, for babs, along w/ other tests that he said would cost a few hundred dollars.  He also wrote out script meds for the viruses, hormones, and Lyme.  But nothing for the babs.
 
Thanks partly to Lyme (oral and dental disasters costing $2000, & all the cash I've paid him and labcorp) and partly to our times, I am out of money and out of credit.  I no longer have the emergency credit (no more cash!) I had set aside in case of emergency w/ my parents or my dogs.  My car was stolen yesterday (still owe on) and I have no idea what I'll do about that $500 deductible or what will happen.  I do have a job, tho my earnings are low.  I do have health insurance.
 
I'm not being pitiful, just emphasizing the fact I'm at the end of the 'game'. And I know there are others out there too.  If my lab work clearly shows babs, why would he insist on another test w/o treating the babs?  He is totally and completely unreachable by phone.  He would not even return calls to the lab when they called him to ask questions about the rheum panel.
 
I've got the lab work and some starter scripts for Lyme, which was my sole intention.  I'm going to hang on w/ these til I can get into a local PCP who also specializes in Lyme.  Hopefully my babesia labs will help me get in sooner.
 
Meantime, what is the best I can do about the babesia?  Certainly my high dose Amox is not worthless for the lyme in the meantime, is it?
 
And I have some doxy left -- I see that it can be used to treat malaria.  What about babs?
 
Surely there is something I can do in the meantime for these greasy little Rat B's, isn't there?
 
PS: meantime, I'm finding older posts here  on cat's claw, etc. I'll see if I can get a little 'protocol' going here, so any advice is appreciated.


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression.
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19,, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
 

Post Edited (+Lyme) : 8/1/2009 9:53:43 AM (GMT-6)


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 8/1/2009 5:08 PM (GMT -6)   

+Lyme, why not try faxing your doctor and ask him to call in scripts for Babesiosis since you tested positive.  It cannot hurt.

It is terrible your car was stolen!  I hope it is found soon safe and sound.  I am sorry you are dealing with financial hardship.  I think we can all relate to this. 

If you have not done so already, ask the PCP's office to notify you of any cancellations.  This may get you in sooner.

Hang in there.


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/1/2009 9:31 PM (GMT -6)   
Thanks, Ticker. My LLMD has been totally non-responsive since I first went to him. So your idea of faxing him just could prove to be brilliant! I wonder if he takes his faxes any more seriously than he does responding to phone calls??
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/2/2009 7:09 AM (GMT -6)   
Lyme,

Im so sorry that your car was stolen! My gosh, how awful! Are you okay?

Any word on them finding it yet?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/2/2009 10:59 AM (GMT -6)   
Thanks, CG, but no, no word on it.  Fortunately there was nothing of value in it, besides irreplaceable sticks I've gathered from the woods for walking -- they help my back--  and for my dogs' swimming..... But I worry about anything personal that may have been in the glove compt.  I live in a nice town, in a gated apt complex.  It's a hyundai accent -- cheapest car on the market when I bought it. Makes no sense to me at all.  I'm still halfway in denial.  While I have a rental car, I can't take my dogs for our hikes.  mad
 
Really messed me up and made me ill yesterday and Friday, but I'm not gonna let it get to me anymore.  I'll just pray that I get enough from ins to make this bearable -- same boat as the rest of you -- can't handle one more thing.  But I need to feel grateful that things aren't worse, as they are for many.
 
I'm just not feeling as safe here as I always was.  My dad bought me a 357 magnum several years ago, and even after classes and shooting range, I hated it and couldn't stand to keep it in my house. 
 
My latest idea is to get a good paint ball gun and keep it loaded w/ plenty of red paint. Anyone comes near me or my dogs, I let them have it good, and voila, we have our suspect.....
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/2/2009 11:56 AM (GMT -6)   
My daddy was on the Sheriff dept and taught safety classes. He taught me how to shoot a gun. I am happy he did because you just never know what could happen. I have a license of course and carry a 38 automatic in my purse.

I know what you mean about not being able to take anymore. I have been going through some things lately myself. It seems the bad things only hit us at our weakest.

My brother brought both of my daughters to Blue Bayou last weekend. The first night they got to the hotel, someone tried to steal his truck. It was a secured hotel that had security guards walking the property every 10 minutes. They broke into my brothers truck and stole his radio, his darts, his GPS, jumper cables, and other miscellaneous items. They also stole two cars in the hotel next to them. How they managed to do that with security, I haven't a clue. So sad that people stoop down to this level. I especially hate when they steal from hard working folks just barely making it by!
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 8/2/2009 12:13 PM (GMT -6)   
+Lyme, i am so sorry for the lose of your car, and the stress he has caused you. i have always said a locked door only keeps honest folks out. you have your babies with you at home and i am sure no one is fool enough to try going thro them to get to you.

even without the training they will protect you, as you are a part of there pack in there eyes. this is in part how i ended up saving blue. i no longer have to worry about carrying a gun. if someone drives by to slowly is goes on alert, and watches them closely.
he also went thro my friends storm door thinking he was saving me.

i do pray that they are able to find your car for you, and its returned to good shape to you. i am just glad you wasn't at your car when they took it or harmed you in the process. we can not live our lives in fear, if we do then they win. and we can not let them win this battle. your a strong person at heart. and your in my prayers.
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/2/2009 1:25 PM (GMT -6)   
Thank you. Both of you. Your thoughts are appreciated. We will be OK, we really will.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


Stunned123
Regular Member


Date Joined Apr 2009
Total Posts : 114
   Posted 8/2/2009 2:28 PM (GMT -6)   
Sorry to hear about your car and the money situation. Doesn't it suck how much we must fork over for appropriate care? I cannot understand why the Dr. wants additional tests for the Babs, when you are clearly positive. That I don't get. And by his own words, he stated that the Lyme cannot be taken care of if the Babs is there. So why would he prescribe for the Lyme and not take care of the Babs? That also makes no sense. I am glad that you are going to see a different Dr. Hopefully they will communicate more openly with you. In the meantime, I wish you all the best. And I hope they get the @#$%hole who stole your car!

Heather

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/2/2009 3:32 PM (GMT -6)   
Thanks, Stunned. You know how it's hard to remember everything the doc says, even if you're trying to write it down? All I remember is that part of it is that he wants me to do the Fry lab tests for everything, from RM to mycoplasma. Maybe he wanted to see those results first? It could all be my own fault, who knows..

I read somewhere that it is possible for babs to resolve. (dont' remember where) I don't know how a parasite could, but will keep searching.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 

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