Oh my gosh I believe I have Bartonella. Help!

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veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 8/4/2009 8:27 AM (GMT -6)   
My feet hurt so bad! Sooooooo bad! It is the worst when I wake up. It is getting worse and worse. Yesterday morning I could barely walk ,in the morning. And I need to wake up and pick up my baby and walk up stares. I mean you guys its like haveing a perminent charlie horse. Is is like the feet are tight annd they wont relax. Along with the pain on the bottom of the soles that just hurts.

What is that?
What causes that in Bart? How does it concentrate in the feet?
I am exploreing this now because it is obviously a problem I need to address.

What is the treatment I should ask for? To you who have dealt with it, is it as hard as lyme to eradicate? What is the ABX to use?

What is any information that you can give me for bart.

-V
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.

Post Edited (veromia333) : 8/4/2009 10:38:42 AM (GMT-6)


Amy C
Regular Member


Date Joined Jan 2009
Total Posts : 45
   Posted 8/4/2009 11:04 AM (GMT -6)   
I have this. I get the muscle tightness. When it 1st started years ago I thought my shoes were too tight!

Also sometimes when I walk it feels like I am walking on bones without cushion. Best description I have heard of yet for it.

I have troubles walking because of this too. Not sure why Bart likes the feet?

I forget which LLMD you see? I think you see my old one? Dr S? Did you get tested for Bart?
One BIG Lyme family!! Possibly congential...
~I tested CDC positive 10/08
~My mom Igenex positive 11/08
~My brother Igenex positive 4/09
~My 2 boys some positive & IND bands, clinical diagnosis 3/09
~My youngest has Aspergers too (a form of autism)


minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 8/4/2009 11:49 AM (GMT -6)   
I tested negative for Bart but know I have it. The test for for only one or 2 strains and there are many strains. It is referred to BLO (Bartonella Like Organism) because of the many strains. I have been treating Bartonella specifically for one year with Rifampin and Minocycline and now Rifampin and Zithromax and my feet still ache.

When I first treated for Lyme and babs 2 1/2 years ago the pains went away for about a year. It came back 1 1/2 years ago-I don't know why. I have read that Bartonella can be extremely resistant and can take a long time to eradicate.

Blessings
Diagnosed 2003 Lyme, Babesia, Bartonella, Micoplasma,Hashimotos Thyroiditis. Have had since early nineties.

Outstare The Darkness--------The Light Will Come!


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 8/4/2009 5:42 PM (GMT -6)   
Amy i do see Dr. S. also i sent you an email about it but you didnt respond. I wanted to hear from u. look for the email.

So it is as hard to treat for this as lyme.
This is bull.
I am getting very upset right now. What am i going to do?
Oh my god.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


jc27
Regular Member


Date Joined Sep 2007
Total Posts : 176
   Posted 8/4/2009 6:08 PM (GMT -6)   
I started going to a woman that does TBM (Total Body Modification) and she also has a rife machine that I've been using as part of my treatment. It seems to be helping. I usually Herx the day after using the rife. My Bart rash on the side of my leg has been getting smaller since I started treatment. The herxes are miserable but I believe that I am making progress.
Good luck.

Amy C
Regular Member


Date Joined Jan 2009
Total Posts : 45
   Posted 8/4/2009 6:53 PM (GMT -6)   
I didn't get an email? did you use this one? amymclare@yahoo.com

Try to resend it if you can.
One BIG Lyme family!! Possibly congential...
~I tested CDC positive 10/08
~My mom Igenex positive 11/08
~My brother Igenex positive 4/09
~My 2 boys some positive & IND bands, clinical diagnosis 3/09
~My youngest has Aspergers too (a form of autism)


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 8/4/2009 7:55 PM (GMT -6)   
my foot just started hurting yesterday, it is my left foot, its like a knot under my foot. i had to use a wrap today so i could work. i'm on rifampin and zithro to. my LLMD today said it was probably a herx and to stop for a couple of days if i wanted.. i'm not going to stop yet.. if it transfers to the other foot, then i will.. This happened to me in the afternoon..

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 8/4/2009 9:56 PM (GMT -6)   
I am in such bad shape right now and these past few days.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 8/4/2009 10:15 PM (GMT -6)   
V i can give you any answers , but i can give you a hug. so you know your not alone.

¤°´¯BIG.¤*¨*¤(¯`´¯)¤*¨*¤.Hugs¯`°¤.
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 8/5/2009 9:52 AM (GMT -6)   
Sorry, it does sound like bart! My llmd told me the labs only test for 2 strains but there are over 30 so you have to treat by symptoms. And feet that hurt in the morning is classic. My shins used to hurt but not my feet.
I have lumps along my shin bones. Levaquin got the bart under control very quickly but also gave me tendonitis so I had to quit. Now I take 16 HH capsules a day and am doing very well. Another symptom of bart is anxiety so don't let this get to you. On the bright side, you will feel much better once you address it. I felt like a new person in just a few weeks. Before that nothing mattered. I was like a zombie.

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 8/5/2009 9:53 AM (GMT -6)   
thank you RD!!!!!! I will give you oone right back you need it also. i havnt been on very much latly how are you what is your situation right now?
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 8/5/2009 10:26 AM (GMT -6)   
thank you everyone and neferdun

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/5/2009 10:28 AM (GMT -6)   
I was diagnosed with Bart too. My feet always hurt. I feellike I'm walking on glass sometimes. When I elevate them, they seem to hurt worse and I can't get them comfortable.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 8/5/2009 12:17 PM (GMT -6)   
my left foot is better today, i looked at the sole of it, and i have a nice red line that is tender some.. I really think the rifampin and zithro are killing it..

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 8/5/2009 3:15 PM (GMT -6)   
V, I am still in the same boat not 1 Dr i am able to go to will treat me as of yet. the test for lyme the nuero ran came back negitive. i just found this out a few hrs ago. so there whent my last chance for treatment.

i dont like to be such a downer, but right now i feel as tho lyme will kill me without any treatment.

i hope your treatment is working for you and you and the baby will have better days ahead.
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)

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