Is there a link between ADD & Bipolar Symptoms and Lyme Disease?

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scorpio1960
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Date Joined Jan 2009
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   Posted 8/7/2009 4:52 PM (GMT -6)   
I apologize for being so absent from the forum lately.  I really have not been doing well and just don't have much ability or stamina to communicate much on-line or any other way right now.  Hopefully, that will change soon. 
 
I would appreciate your opinions and advice.  I was made aware that a friend from years ago has a son who was diagnosed with ADD at a very young age and in more recent years diagnosed with bi-polar as a teenager.  When his son first started to talk as a baby, he always had trouble speaking and forming and expressing his thoughts.  Of course there's probably more to the story but that's the basics that I can remember.
 
To cut to the chase, do you think he should consider LD as a possibility.  If so, what specific tests should he have done.  I don't want to lead him down the wrong road after all he's been through and am just not up to forming a thought of my own or doing my usual research.  There's a definite lack of finances so immediately going to a llmd is out of the question.
 
Any thoughts or suggestions would be appreciated and please excuse if I don't respond back right away.
 
Thanks and I hope everyone is making progress towards getting better.  
 

Razzle
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Date Joined Aug 2007
Total Posts : 4396
   Posted 8/7/2009 6:10 PM (GMT -6)   
Lyme & Coinfections should be considered.

Also, Gluten/Caseine Intolerance should be considered. EnteroLab.com is the best way to get tested for these conditions (I have no financial connection with this company/website); it is best to test while still eating wheat/milk for better test accuracy.

Nutritional considerations: Vitamin D, Omega-3 fatty acids, B-Complex vitamins, low dose lithium supplements, low sugar, Feingold Diet (no artificial ingredients like colors, flavors, preservatives), etc. may also need to be done, as any or all of these things may contribute to these kinds of conditions.

NutriGenomics also may need to be tested. These are genetic variations that affect the function of the methylation cycle (essential for metabolism & detoxification). Supplements/herbs can compensate and help a person's methylation to function correctly again. Best info is http://www.heartfixer.com/AMRI-Nutrigenomics.htm but the test is not cheap. Lowest cost of the test can be obtained from Dr. Amy Yasko's website, http://www.holisticheal.com/health-tests/nutrigenomic-testing/comprehensive-methylation-panel-with-methylation-pathway-analysis.html (I have no financial connection with either of these websites/companies).

A good Naturopathic Physician should be able to help. They tend to understand the treatment of these conditions better than the usual physicians. Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


CajunGrl
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Date Joined Mar 2009
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   Posted 8/7/2009 6:15 PM (GMT -6)   
Scorpio,

Hey hun. So glad to see you back again:) You're such a good friend. You're sick yourself and trying to help someone else out. You're a sweetheart.

My daughter was diagnosed with ADHD in kindergarden. She also had trouble speaking and expressing herself. We thought about putting her in speech therapy but her doctor said it was from her ADHD. Now, she is 19 and has very bad mood swings. Another doctor said she had a mood disorder. It is very hard for me to be around her when I am sick. She is so up and down. Even when she is on her meds, she is still moody and depressed. It's extremely hard to deal with and I feel for your friend.

I've always wondered if there was something else causing this in my daughter. Im curious too if anyone has any answers.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


scorpio1960
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Date Joined Jan 2009
Total Posts : 914
   Posted 8/7/2009 7:25 PM (GMT -6)   
Razzle, Thanks for all the info. I'll pass it along to him

CG, I'm so sorry your daughter is also dealing with such problems. I cannot imagine how difficult it must be for you. It's hard enough for a healthy person to deal with.

My friend said the ADHD meds never really helped his son too much and now that he is in his teens, he's really out of control. Now the doctors decide he is bioplar. I thought of LD because I remember the neuro-psychologist who did extensive neuro-cognitive testing on me back in 2005 mentioning that he sees so many children being misdiagnosed with ADHD and behavorial problems when in fact they have LD.

not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 8/7/2009 7:37 PM (GMT -6)   
My son was told he had ADHD at age 3. Thats when we started meds. He is 10 now. I tested pos for lyme after he was born. he has been neg for lyme (quest). He was also tested for the gluten intolerance. that too came back neg. is it common for ADHD kids to have bad mood swings or bi polar when they are teens?

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 8/7/2009 7:39 PM (GMT -6)   
My daughter is out of control now too. She's very compulsive and doesn't think about consequenses or danger. It's very scary. I hope to God that my kids don't have this awful disease. I don't know what I would do.

I hope your friend finds answers soon. Do they have insurance? Maybe they can test for Lyme with the regular labs? They are not as accurate but maybe it will give them a start.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 8/7/2009 7:49 PM (GMT -6)   
CG, is your daughter still on ADHD meds? has she ever been tested for lyme

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 8/7/2009 8:07 PM (GMT -6)   
Yes, she is still on meds and it does help with her concentration. No, she hasn't been tested for Lyme yet. I think that as soon as I start feeling a little better, I will have both of my girls tested. My youngest sleeps alot and I'm really concerned about that.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


jennie48
Regular Member


Date Joined Sep 2008
Total Posts : 293
   Posted 8/7/2009 8:48 PM (GMT -6)   
hello i also have adhd and lyme i found out i had adhd when i was 19. i also had a speach problem when i was younger and took speach and had learning disabilities. i also as a teenhad mood swings and very up and dwn and still am but now that im older i can control it. tell ur friend that you have to edgucate the child and councaling can help. meds are only good to concentrate. im off ritalin but take celexa for my anxiety and it helps a bit w adhd.and adhd brain can be overwelming at time and this can cause out burst if they dont know how to control it and just take a step back and slow dwn. this can cause being abxious. it took me a long time to control my adhd i just did alot of reserch...hope this helped
"I will not let Lyme controll my life i will controll my own life"
lyme since June 08
meds-zithromax 500mg one a day/ 1  month // Plaquenil 200mg twice a day/ 1 month
starting 10/3 doxy100mg // omnicef 300mg
 
ADHD/anxiety/depression// celexa 20mg


jennie48
Regular Member


Date Joined Sep 2008
Total Posts : 293
   Posted 8/7/2009 8:51 PM (GMT -6)   
oh also i have noticed that the lyme makes my adha worse and more noticible for sum reason that i have notice so getting them checked for lyme is a good idear
"I will not let Lyme controll my life i will controll my own life"
lyme since June 08
meds-zithromax 500mg one a day/ 1  month // Plaquenil 200mg twice a day/ 1 month
starting 10/3 doxy100mg // omnicef 300mg
 
ADHD/anxiety/depression// celexa 20mg


not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 8/7/2009 8:59 PM (GMT -6)   
My son also had outburst he cant controll. we switched him from straterra to concerta. He has been on concerta almost a year and found that it has helped with concentration and his behavior.

veromia333
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Date Joined Mar 2009
Total Posts : 674
   Posted 8/7/2009 11:00 PM (GMT -6)   
They should moniter body temp through out the day, see if it is below 98.6 freequently this is a sign of lyme, mine is always low like 96. then igenex western blot
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


bablymers
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Date Joined Oct 2006
Total Posts : 1458
   Posted 8/8/2009 1:20 AM (GMT -6)   
http://www.publichealthalert.org/Articles/bransfield/microbes
%20and%20mental%20illness.htm


This is an article that mentions psychiatric manifestations of infections, including lyme.

Post Edited By Moderator (CajunGrl) : 8/8/2009 10:34:56 AM (GMT-6)


bablymers
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Date Joined Oct 2006
Total Posts : 1458
   Posted 8/8/2009 1:26 AM (GMT -6)   
This page has some links to articles about neuropsychiatric lyme issues
http://www.lymesite.com/neuropsychiatric_lyme.htm

Post Edited By Moderator (CajunGrl) : 8/8/2009 10:36:29 AM (GMT-6)


scorpio1960
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Date Joined Jan 2009
Total Posts : 914
   Posted 8/8/2009 7:57 AM (GMT -6)   
Thanks you all so much for the great information. I'm going to forward everything directly to him. Thank you, thank you, thank you!!!

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/8/2009 8:41 AM (GMT -6)   
Scorpio,
 
There does appear to be a link in some children.  Since the causes of these illnesses are not really known, I believe it is clear that lyme can cause these, but this does not necessarily mean it is the cause in all cases.
 
I am so sorry to hear all of this! Please let us know what we can do for YOU besides hope and pray. I do not remember what kind of treatment you are on?
 
As for your friend's child, you have my thought and prayers as well.  There must be a way, somehow, to at least be able to rule Lyme out?  Since you are so ill, maybe you could start by just asking your friend to at least make a complete and total list of symptoms, including physical,  in addition to all the neuro issues?
 
Veromia, on the body temp: Is this a symptom of Lyme itself?  Or is it frequently a symptom of a thyroid problem that is caused by Lyme?
 
And, Scorpio, it would probably be a good idea for your friend's child to take his temp several times per day for a few weeks.  At least that might indicate something, or maybe he will learn that it is normal and that symptom can be set aside.


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 

Post Edited (+Lyme) : 8/8/2009 8:44:17 AM (GMT-6)


bablymers
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Date Joined Oct 2006
Total Posts : 1458
   Posted 8/9/2009 3:15 AM (GMT -6)   
Hi again,

I just remembered that there have been articles linking heavy metals-----like Mercury and Lead----to those symptoms. Don't know where the links are at the moment, sorry. You'll find plenty if you search online. The metals can come from things like vaccinations, tooth fillings, paint, costume jewelry, toys, even in utero? The docs can do lab tests to see if this is a problem and then they can treat with detox methods. Some chiropractors/naturopaths can also test for this. It may be something to consider. Razzles ideas were good ones, too.

Best wishes, bablymers mom

mom2em
Regular Member


Date Joined Sep 2006
Total Posts : 74
   Posted 8/9/2009 7:23 PM (GMT -6)   
Yes, Emily had behavior issues from a very early age. At age 4 a doctor wanted to give meds for ADHD--we held off did got a behaviorist in preschool / preK. Lots of test. Phospitalization in 6th grade and meds for mood stabilization. about that time severe physical symptoms began to surface; headaches, neckaches, fevers, UTIs, ear infections, chest pain, panic attacks--the list goes on. Went to lots of doctors and specialist; it was a neurologist asked if she had been tested for lyme when she was in 8th grade. That started me on a path of research and then testing for tick bone diseases. In 9th grade we found that Emily had Bart and Lyme.

Went through 6 months of abx and supplements. Home schooling during the worst of it and slowly got her back into school for her senior year of high school. The psy-meds have been greatly reduced and her mental and physical health are 90% better. She is still on a low dose mood stabilizer which helps with managing her headaches. The neurologist she sees for migraines said he sees a lot of patients who have recovered from lyme with migraines. They are fairly well managed now.

Emily will be going to College this year. She still is on supplements; Omega-3s, high does of vit. B's and B-2. Now that she is healthy she is a happy and mature young lady. I think all the pain and suffering made her stronger and in some ways more mature.

We spent lots of money on testing and treatment. For someone without a lot of resources and mood issues presenting I'm not sure of the options but trying get the testing done to determine if it is a cause would be helpful. You need to know what your're treating. mega does of Omega-3 that is high in EPA helps with some mood stabilization, this was one of the first treatments we tried with a psychiatrist.

-Robin

scorpio1960
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Date Joined Jan 2009
Total Posts : 914
   Posted 8/9/2009 10:20 PM (GMT -6)   
All of your responses are very much appreciated. Thanks again.

Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 8/10/2009 8:51 AM (GMT -6)   
Hi Scorpios,

I agree with +Lyme- Lyme can cause ADD and Bi-polar symptoms, but it is also possible it is not Lyme. Since Lyme testing is so expensive and so unreliable, I would work on ruling out everything else first.

I know that the Lyme-literate naturopath I see also specialises in treating ADD and Autism in children. So going to see a natruopath would be a good idea. I think you should be able to find one who specialises (or has done research) into ADD.

This is one of the times when the poor testing for Lyme is so frustrating. It would be so nice for your friends to get some concrete answers, and maybe find a solution.

I wish them luck- and I hope they find answers!
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