Omg!! Is anyone watching 20/20 right now???

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CajunGrl
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   Posted 8/7/2009 8:18 PM (GMT -6)   
It's about a young girl whose health went downhill fast. They showed a picture of her and she had bells palsey!! They are calling it a "mystery disease" and can't figure out what's wrong with her. Her joints have tightened up and she walks with a walker. It's playing now!!! Looks like Lyme Disease!!
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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not again
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Date Joined Jun 2008
Total Posts : 264
   Posted 8/7/2009 8:19 PM (GMT -6)   
I have that on right now. I thought the same

CajunGrl
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Date Joined Mar 2009
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   Posted 8/7/2009 8:31 PM (GMT -6)   
Now they are saying she may have Stiff Person Syndrone. Poor thing.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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Dowa
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Date Joined Sep 2008
Total Posts : 1120
   Posted 8/7/2009 8:33 PM (GMT -6)   
Very sad, I watched it also. She used to be a dancer and very beautiful. Wonder if shes ever been tested.  D

not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 8/7/2009 8:37 PM (GMT -6)   
I have never heard of stiff person syndrome

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 8/7/2009 8:37 PM (GMT -6)   
I know:( She went downhill so fast. I'm so glad she has someone sticking by her.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 8/7/2009 8:39 PM (GMT -6)   
Not again,

Me either. It remind me of that girl that had Lyme Disease on Mystery Diagnosis(I think). She had stiff joints too. She couldn't straighten her arm out.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 8/7/2009 8:43 PM (GMT -6)   
I wonder if that is even a real problem. Or if they just made it up

veromia333
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Date Joined Mar 2009
Total Posts : 674
   Posted 8/7/2009 10:55 PM (GMT -6)   
i watch mystery diagnosis all th time still havnt seen that one . Sounds made up to me also.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


Razzle
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Date Joined Aug 2007
Total Posts : 4396
   Posted 8/8/2009 1:05 AM (GMT -6)   
Stiff Persons Disease is a known but rare autoimmune condition.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


bablymers
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Date Joined Oct 2006
Total Posts : 1458
   Posted 8/8/2009 1:42 AM (GMT -6)   
Razzle, I must say it once again----You're awesome! I'm still waiting for your first publication of "Interesting Tidbits and Random, Encyclopedic Knowledge" :) remember, I will be one of your first customers!
Best wishes, bablymers mom

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/8/2009 10:25 AM (GMT -6)   
So I guess it was attacking her joints. That's so sad and I bet painful.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/8/2009 10:26 AM (GMT -6)   
I wonder why she had the drooping on one side?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 8/8/2009 1:23 PM (GMT -6)   
usually drooping on 1 side is indicative of a stroke, or can be bells palsy. it does bring one to question if its lyme disease.
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 8/12/2009 3:04 PM (GMT -6)   
It's funny that they would consider such a rare autoimmune disorder, but they probably didn't even consider LD, or if they did test her and it came back negative they just said No it can't be LD.  So sad, I wish we could follow up on her case.
KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol stopped Zhang's after 6 months symptoms returned.  Started Buhner's protocol May 2009


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/12/2009 3:12 PM (GMT -6)   
I know. I felt so terribly bad for her. I hope they find something to help her soon so she can finally get married.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

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