i get a shock everytime i see my GP - new coinfection! what to do what to do....

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hopefulgrl
New Member


Date Joined May 2009
Total Posts : 10
   Posted 8/8/2009 12:28 PM (GMT -6)   
Hi All,
 
This is driving me insane.  I'm from Canada if I haven't told anyone yet.  In my province we had one very excellent physician that dedicated his life to treating patients with lyme.  Unfortunatley, the college of physicians decided to give him a very hard time with the way he approaches treatment and forced him into early retirement.  Now our province has no one that is willing, at least at this point, to treat anyone.  Now here is my problem.
 
I'm being treated by just a regular GP.  She took me on as a patient a year ago as a favor to a family member.  Although she has been understanding about my situation.  I don't think she is ready to completely sign up to treat a lyme patient since she doesn't know much about.  SHe consults occasionaly with an LLMD about me.  THat is when i call and pass her the phone.  Usually she writes me a perscription and i'm off.
 
Well i had coninfection testing done in february when i started this whole horrifying journey.  And i was told everything was fine.  It wasn't until a week ago i had asked for me results from the CDC so i could have a hard copy did i find out i had been infected at one point with rocky mountain fever and bartonella!  I have never treated these illnesses nor does she understand anything about them.  All she can do is perscribe without knowing what protocol to use. 
 
I'm at the point where i'm about to get up and move for a year and probably waste all my savings to get help.  I don't know what to do.  I have been on antibiotics now for 5 months.  While the first three months i felt like i was getting a bit better....now i feel like i'm just stagnant (is that how you spell it?)  I'm driving everyone around me insane trying to figure this all out on my own. 
 
Does or has anyone had these co-infections and have you treated them successfully.  I'm just windering if not treating them has hindered this entire process to date.  My neurological symptoms such as the eyes, brain fog, confusion and my ears ringing profusely has just not lifted. I need to see a doctor that can walk me through this and understands medically what i'm going through.  If anyone has any suggestions of doctors, or even experiences with these coinfections and how they made you feel i would love to hear from you.
 
Talk soon

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 8/8/2009 1:44 PM (GMT -6)   
hopefulgrl, welcome to the board. i am so sorry your going thro all this. i believe you can get treatment from most any Dr for RMSTF(rocky Mt. spotted tick fever) it has been around as long as i can remember. about 35 y/o i almost lost 2 of my friends to it. they both were in the hospital for a long time.

plz if your PC doesn't know or understand the seriousness of this disease. see someone else asap. it can kill you. i am not saying this to scare you. only trying to help you so you do not get worse.
do a google search on RMSTF and see what it says for treatment. i believe its IV abx for so many days. then you can address the other infections.
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 8/8/2009 2:48 PM (GMT -6)   
http://www.canlyme.com/        http://www.ilads.org/

Hi hopefulgrl,

Welcome to the forum. I am sorry you are having to deal with all this. Maybe the Canadian Lyme Disease foundation can give you some ideas. Maybe contact ILADS too.   You could also email our member Ticker, too, because she may have the name of a doctor to try.

Best wishes, bablymers mom

Post Edited (bablymers) : 8/8/2009 2:51:24 PM (GMT-6)


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 8/8/2009 6:31 PM (GMT -6)   
Hi hopefulgrl,

I am in Canada (in Alberta), and I know the doctor you are speaking about. As far as I can tell, your options in Western Canada as far as lyme-literate doctors, is to see an ND (naturopathic doctor) in Alberta, or go to the states.

Washington (especially Seattle area) has a lot of LLMD's.

If your GP is open to it, I know people who have gone to see LLMD's in the states, to get a treatment plan to bring back to their doctor. So you could always do that, if you don't/can't afford to pay to see an LLMD long-term.

Not treating co-infections can slow down the treatment process.

If you like, I can give you info either on the ND, or on Washington LLMD's.

P.S. You should be able to email me through this board. If not, let me know

Post Edited (Nicky D) : 8/8/2009 6:34:20 PM (GMT-6)

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