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springsjean
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Date Joined Mar 2009
Total Posts : 2154
   Posted 8/9/2009 7:49 PM (GMT -6)   
Anyone else have bad headaches?  I have had this band of pressure around my head for three years and it literally left with antibiotics.  I was so thrilled  Now four months in antibiotics, they have returned.  UGH.  I am so so depressed.  Wondering if it could be the co-infection (HGE or HME whichever it is I have) causing the headache.  I haven't  treated co-infection yet.  I surely hope so. 

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 8/9/2009 8:14 PM (GMT -6)   
Hi springsjean.  I am sorry you are having such horrible headaches.  Babesiosis can cause severe ones.  Do you have it?  I believe Ehrlichiosis can cause headaches also.
 

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/9/2009 10:08 PM (GMT -6)   
Springsjean,

I have been having headaches again myself. I used to have bad ones years ago but they subsided for whatever reason. Ever since I started treatment, they have come back full force and are hard to get rid of completely. I have been dealing with one now for 3 days. It kinda feels like sinuses but I'm not sure because it's in the base of the back of my head too where it is always stiff. I just know that they hurt really bad and I'm about fed up. I keep rubbing muscle cream to relax that area in the back and it does help but only for a short while. Advil upsets my stomach and has me gagging now everytime I eat. Ugh! I just fixed my stomach problems. I wish there was something else to do to ease the pain. If you figure it out, let me know, lol.

I'm so sorry you have to deal with this too because it's horrible.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 8/10/2009 6:10 AM (GMT -6)   
Thanks. I tested negative for babs but positive for erlichiosis. Supposed to start doxy soon and hope that will help. So weird that I can be feeling good for few days and after a couple active days, I hit a brick wall and start with pounding headaches etc. Feeling like a hangover without the drinking. Am on amoxicillin for three+ months. Wonder if it stops working at a certain point?

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 8/10/2009 9:36 AM (GMT -6)   
 
Hello,
 
Yes, I have bad headeaches, I actually have been getting one every days for a while, but the scary part is some are just regular "bad" headeaches, and the ones few and in between are doozies, meaning I can't control them, I take percocet for them and it does nothing. I've had 3 so far this year (my last one just this past thursday) I have to go to the ER where they give me diuludin (sorry on the sp) and a few other migrane meds. It takes the headeache down to about a 4 or 3 when it was a 8.5-9. I'm actually feeling a lot better energy wise and being able to do more things so I feel the rocephin IV is really working on alot of other issues that I was having. My main concerns now are
Headeaches
Stiff Neck (which usually goes with above)
and eye twitching and and slight numbness in my bottom eye lid
I still also away most days with the numbness in my one side.
 
My doctor tested me again for Lyme and co-infections last week. I go see him today so hopefully I can finally see on paper where this is working. But I do fear at the same time that I have a co-infection causing these nasty headeaches.
 
Please make sure your doctor is checking you for co-infections which cause bad headeaches!
 
 
 
 
 
Monica
 
Lyme, Fibromyalgia, Anxiety, IBS, Reflux, Insomnia,Sleep Apnea
Current Meds: IV rocephin; Percocet for break thru pain
Taking it one day at a time.... 


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 8/10/2009 9:45 AM (GMT -6)   
I had these -- they are called tension headaches. I asked Dr. Google and they said that diet and vigorous exercise can help. Guess what? Dr. Google was right. The headaches are gone.

I get a weird pressure sensation now. But no pain. Exercise helps that too.

Problem is exercise exacerbates my plantar fasciitis. So I trade one symptom for another.

Give exercise a try. Even moderate. It takes about two weeks to get the full effect. It also helps with sleep. And sleep also helps with this headache.
Bit June 08.


Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 8/10/2009 9:55 AM (GMT -6)   
HTFAC
 
What type of diet are you following? And excercise as far as a routine or can just walking help?
 
 
Monica
 
Lyme, Fibromyalgia, Anxiety, IBS, Reflux, Insomnia,Sleep Apnea
Current Meds: IV rocephin; Percocet for break thru pain
Taking it one day at a time.... 


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 8/10/2009 10:10 AM (GMT -6)   
Walking is best...try to step it up for a half a mile and then work up to a mile at a decent pace.

Weight watchers is my diet of choice. Very healthy. Eat organic though if your wallet allows and shoot for a good balance of Omega 3 to Omega 6 EFAs. Eat fish twice a week and cook with canola and olive oils. Eat only pasture fed meats an pasture fed dairy products to increase your ratio.

I do other forms of exercise, but walking is by far the safest (injury proof!)

I get SO sore from the elliptical and swimming classes that it's just not worth it sometimes (even though I enjoy the varied exercises).

Exercise relieves tension in the neck where I believe this all stems from.

I may try dancing next!
Bit June 08.


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 8/10/2009 10:14 AM (GMT -6)   
My routine at the gym is walking a mile during lunch. 20 minutes on tread mill and then 20 minutes on bike.

I follow this with 20 minutes in hot tub and 15 minutes in the sauna.

On Saturdays, I do an hour in the pool -- laps with fins on (kills my feet though).

And I throw in an hour of yoga.

But nothing beats walking! Give it a try. Start SMALL. Before you know it you'll be up to several miles (three to five is optimum) five days a week.
Bit June 08.


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 8/10/2009 3:51 PM (GMT -6)   
It sounds like you are feeling pretty good. I couldn't do all that if I tried. If I did, I would pay for it for weeks. Simply overdoing it, staying up late, going to BBQ, etc. and I have to rest for days. and of course, the headaches come back.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/10/2009 3:56 PM (GMT -6)   
springsjean,

I'm right where you are too. I can barely walk from my couch to my bed most days. I definitely know how you feel and the headaches don't help.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 8/10/2009 5:58 PM (GMT -6)   
Maybe start slow?
Bit June 08.


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 8/11/2009 5:48 AM (GMT -6)   
Thanks and I'm not meaning to be a wise guy but I've been "starting slow" for almost four years now.  Was always an avid exerciser and walker and couldn't figure out why I couldn't do it anymore.  Now that I have a diagnosis, I have tried to get back into it very slowly but simply cannot handle it, at least not yet.  I'll get there though, I'm sure of it!!!

tickedoff
Regular Member


Date Joined Jun 2009
Total Posts : 56
   Posted 8/11/2009 9:40 AM (GMT -6)   
Hi All,

My husband gets bad headaches as well...he was prescribed taxal by neurologist... he said this med puts a lid on a boiling pot and works in 15-20 minutes of taking it...although, he hasn't taken it in a while...he usually gets results by placing an ice pack on his head...he says the headaches feel like electrical shocks followed by a vice grip...so sorry u are all suffering with this...i know how draining they can be...on top of all the other symptoms!

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 8/11/2009 5:05 PM (GMT -6)   
k. sorry if i offended anyone by sharing what has worked for me. everyone has to start somewhere was what i meant. if you do opt to exercise please start slowly. my friend who had lost both kidneys and was on a ventilator recently finally received a donated kidney. she started very slowly by just walking around the backyard. i don't know if she'll work up beyond that but i admire anyone like her! she inspired me.

the meds sound promising though.

maybe check with a neuro ... i have an appt w/ one soon and i may ask about it.

again, my apologies for offending anyone here for that sharing what has worked for me. although, it is not w/o side effects for me too. . . see my other post. Again, i'm not a doctor so check with your LLMD before you start anything.
Bit June 08.


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 8/12/2009 1:04 PM (GMT -6)   
You did not offend me. Just hope I can get to where you are at. Starting slow is a great recommendation, just for some of us, we are just not even there yet. Thanks.
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