Is this a lyme symptom?

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not again
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Date Joined Jun 2008
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   Posted 8/14/2009 4:27 PM (GMT -6)   
Hey all, I have a friend that has Lupus. We have alot of the same symptoms. (alot)!! however her hands and feet turn a purple blue color not all the time but it happenes alot. Its more her toes and fingers. does anyone else get this? Iam just wondering if  it could be  lyme that she may have. She tested Neg with a normal lab. but lives in a high tick area( her dog even has lyme.)  Thanks

CajunGrl
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   Posted 8/14/2009 4:31 PM (GMT -6)   
Not again,

Does she have a copy of her test results? If so, maybe you can post them here.

Do you know what lab she used?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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not again
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Date Joined Jun 2008
Total Posts : 264
   Posted 8/14/2009 4:35 PM (GMT -6)   
Iam not sure what lab she used. Or if she has a copy. I dont want to ask her because she feels it is not lyme, and I dont want to push it. I have been on the lupus sit trying to learn more, so I can help her no matter what she has. I know she is taking an anti malareia drug (plaqunel) think i spelled that wromg

CajunGrl
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   Posted 8/14/2009 5:47 PM (GMT -6)   
I see what you're saying. I don't know much about lupus either. Is it normal to take an anti-malarial drug when you have that?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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not again
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Date Joined Jun 2008
Total Posts : 264
   Posted 8/14/2009 5:50 PM (GMT -6)   
The people that replied to me on the lupus site said alot of them are on the same med. They said it is used alot to keep lupus at bay. But they dont know why or how it helps.

CajunGrl
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   Posted 8/14/2009 5:59 PM (GMT -6)   
Very interesting. I may have to read up on that.

I'm hoping someone else has heard of the hands turning the purple/blue color. I've never heard of that with Lyme but we all know that anything is possible.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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Stunned123
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   Posted 8/14/2009 7:12 PM (GMT -6)   
It sounds like Raynauds syndrome. It can be due to certain medicines or an underlying disease. Maybe contributed to her Lupus.

not again
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Date Joined Jun 2008
Total Posts : 264
   Posted 8/14/2009 7:20 PM (GMT -6)   
someone on the lupus site said it could be that, Guess I was just courious if it could happen with lyme also. Its just wierd to have had so many of the same symptoms as her.

Post Edited (not again) : 8/15/2009 11:46:44 AM (GMT-6)


springsjean
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   Posted 8/15/2009 6:01 PM (GMT -6)   
After I took steroids for my thyroid and my lyme really went crazy which led to a diagnosis after 3+ years, my hands starting turning blue in the shower every morning.  Something to do with change in temperative, Raynaud's syndrome.  So you can definitely get it with lyme.  I have been tested for lupus and do not have it. 

CajunGrl
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   Posted 8/15/2009 6:19 PM (GMT -6)   
It's weird how the two are so similiar.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 8/15/2009 6:27 PM (GMT -6)   
My hands use to do this a couple of years ago, but i was not eating anything at the time so I was told it was from that. I wonder.

mcjane
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Date Joined Jun 2009
Total Posts : 285
   Posted 8/15/2009 9:33 PM (GMT -6)   
I guess that's why Lyme is called the great imitator seems to have a bit of every disease known in it.

So why is it taken so lightly by so many doctors !!!

twingirl
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Date Joined Feb 2007
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   Posted 8/16/2009 8:57 AM (GMT -6)   
It's called Raynaud's syndrome and is common with people with autoimmune illnesses such as lupus, sclerderma and others. It is also common with lyme. It happens to me on occasion.

not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 8/16/2009 9:28 AM (GMT -6)   
Thanks for the reply everyone.

Martha's Vineyard
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   Posted 8/17/2009 6:06 PM (GMT -6)   
If her dog is ever near her then she could get lyme from one of his flees.
Many are pur off as having lupus too.
A normal lab....will not pick up on lyme. And most test come back negative. Falsely so.

not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 8/18/2009 7:59 PM (GMT -6)   
Hmm. I did not know that if your dog had lyme you could get it from their flees. Thankyou for that bit of info.

CajunGrl
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Date Joined Mar 2009
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   Posted 8/18/2009 9:49 PM (GMT -6)   
Not again,

It is not a proven fact yet that someone can get Lyme from a flea but it is a possibility. I think that may be how I was infected. I'm still not sure though.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted Yesterday 5:15 PM (GMT -6)   
Yes I no it is not proven, but it is interesting. Its like you are not safe any where!!

readysketty
New Member


Date Joined Aug 2009
Total Posts : 4
   Posted Yesterday 6:32 PM (GMT -6)   
Over the past 3 or 4 years I have gotten bad joint pain. Wrists, ankles, fingers, toes, etc. Sometimes swelling, sometimes not. The pain some times controls my life. I am 28 and feel much older. I've been tested for rheumatoid arthritis & lupus 2 years ago & again this year. Both times tests are negative. This whole thing is making me crazy. This is my main problem. But, I also have had fatigue issuses for over 10 years now. They tested me for sleep apnea, everything was fine. I get sick easily. I have Asthma issues & headaches. I remember getting bit by a tick when I was about 11 or so. 17 years ago? Would that make any sense? Should I push for a Lyme disease test? Do my symptoms seem right?
If any one can offer any help it would be apreciated. -- Thank you!

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted Yesterday 7:00 PM (GMT -6)   
readysketty,

Hi there:) Welcome to the forum!

I'd love to help you out but I don't want to take away from the original poster here. Why don't you start your own thread so you can get more responses.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


readysketty
New Member


Date Joined Aug 2009
Total Posts : 4
   Posted Yesterday 7:03 PM (GMT -6)   
ok, thank you

alliebridge
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Date Joined Mar 2006
Total Posts : 67
   Posted Today 3:06 PM (GMT -6)   
My PCP diagnosed me with Raynaud's the same year as my Lyme diagnosis and I do believe (at least in my case) it's caused by Lyme.

Lyme tests are only 30% accurate. They shouldn't even be used as they're clearly unreliable. So if your friend is "negative" it truly means nothing, sadly.

not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted Today 5:55 PM (GMT -6)   
Yes I know It means nothing. But she thinks that it is true. She was tested more than once. I tried to explain it to her, but some people just dont understand. It is sad, but I dont want to push it. Why cant people take us seriously!! it makes me mad!! My family thinks she is so sick( cause of Lupus) Then when it comes to me they say its only Lyme. Sorry to vent. it was a bad day.

gorbybelle
Regular Member


Date Joined May 2009
Total Posts : 147
   Posted 8/21/2009 2:38 AM (GMT -6)   

A friend of mine has had her 'hands & feet ' turning blue'purple - this has been happening for years - she has been told it is 'poor circulation' - never diagnosed with anything

I haven't heard of this with lyme - but obviously if it is new and is happening along with other symptoms - it could well be lyme.

 


Kiss My Lyme
Regular Member


Date Joined Aug 2009
Total Posts : 23
   Posted 8/27/2009 7:33 AM (GMT -6)   
     hey not again    a year ago for two years i had scary dark purple puffy toes. i watched to see if they would turn green to have them chopped off. they faded over months back to normal. one of dozens of symptoms come and gone.bye bye
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