only seem to be getting worse

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newtothiss
New Member


Date Joined Aug 2009
Total Posts : 9
   Posted 8/17/2009 3:43 PM (GMT -6)   
I've posted a few threads before about my tick bite a month ago. I had no rash but a fever, loss of appetite and painful lymph nodes a week after. This stopped after a week or two, and I'm still on 200mg doxy twice a day, but some weird stuff is happening. My lymph nodes still kind of sting occasionally, I'm getting bizarre pains that come and go, both in joints and muscles. Some days my hip hurts, some day my knees, or the muscles in my thigh or arm will ache. Also fleeting sharp pains in the little joints in my fingers and pains in my feet, not to mention toothache that comes and goes. Now and again one of my eyes hurts too. It could be my imagination, but I think my left leg (where I got bitten) has less feeling than the right.
I'm still taking my doxy every day but it seems to be getting worse.

Luckily I managed to get an appointment with a lyme literate doctor but that's a few weeks away. Does anyone have any idea whats going on with me?

Post Edited (newtothiss) : 8/17/2009 3:50:02 PM (GMT-6)


1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 8/17/2009 4:32 PM (GMT -6)   
Many times you get worse symptoms or even new ones before you get better. It really stinks!

Were you checked/tested for co-infections as well?


Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain


newtothiss
New Member


Date Joined Aug 2009
Total Posts : 9
   Posted 8/17/2009 4:39 PM (GMT -6)   
haven't been tested yet, getting blood tests in a few weeks - doctor says it can take that long for certain things to show up.

i'm just surprised that these symptoms have came on so soon, especially since I thought I was treating whatever I caught from the tick appropriately. I guess I probably could have coinfection(s) that the doxy isn't treating.

other than that maybe its some kind of auto-immune response. actually i have no idea, i just want to get back to my normal life, this sucks :(

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 8/17/2009 5:53 PM (GMT -6)   
I would suggest getting on a ton of supp and vitamins and only drinking water. You need to boost up your immune system while this bacteria is in there.
Also since Lyme is resistant to abx..I would run out and get some collidal silver at a health food store..asap..Lyme does not know this bacteria killer and it does not hide nor protect itself from it once you take it.
Get a bunch of vit c and zinc and I mean alot into your system to help your body fight for itself.
I too did the doxy for 2 mos and did not get better. But that is because the lyme bacteria is smart and protects itself by wrapping itself up in a protective shell when it hears it is in the body.
I bought Ultra colloidal solver by source natural at a vit store.
we take it everyday with a dropper, and my 6 year old. Becuase we get bitten all the time by mosquitos. So...to avoid constant re infection..this is our trick.
Also you can tap on me and I can tell you how I finally got rid of my lyme. At the help with a clinic in az.

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 8/17/2009 6:14 PM (GMT -6)   
Martha's Vineyard,

Why would you say that Lyme is resistant to antibiotics? I understand that some people take natural routes to get better but saying Lyme is resistant to antibiotics is just not true. Everyone heals different ways. Your way may have worked for you and that is awesome but others may not get better. The clinic you went to is a little expensive. I wish it was more affordable. Either way, in my opnion, I do think antibiotics work.

I agree that Vitamin C should be started but one should start off at 1000mg or less and work their way up to 3000mg. It can cause severe diarrhea.

I have heard that colloidal silver was good to take, but have not tried it yet.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 8/17/2009 6:56:47 PM (GMT-6)


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 8/17/2009 7:54 PM (GMT -6)   
Martha's Vineyard,

I was thinking that maybe you meant that antibiotics "can become resistant" over time? But there are so many other antibiotics that one can take and this doesn't always happen.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Stunned123
Regular Member


Date Joined Apr 2009
Total Posts : 114
   Posted Yesterday 7:38 AM (GMT -6)   
Hi Newtothis,
Sorry you are feeling lousy. You have a lot of folks here that can relate. I would just keep taking the Doxy until your LLMD appointment. After they run labs, they might switch up your antibiotics. Just try and push fluids and rest when you can. As far as Collidal Silver, the verdict is still out on that one. You have to be extremely careful with what you take.

Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted Yesterday 9:39 AM (GMT -6)   
Hi newtothis,

Have you been detoxing? Before I found an LLMD, I started off on the natural route. Although I was more comfortable with antibiotics, I got a lot of good advice from the naturopath. My LLMD recommended staying on all of the supplements she put me on, because Lyme people often are short of certain vitamins etc.

I take Cod liver oil (it's just generally good for you, even without Lyme), an immune/endocrine system support (if you visit a good health food store, or a naturopath, they can help you find one).

As for detoxing- drink lots of water. There is also something known as "dry brushing". Take a brush, or dry wash cloth, and rub it in small circles on your skin. Start at your extremities, and work your way in to your heart. Go slowly- you can tell when you've got the right speed, because you'll feel it. It gets your circulation going, and helps get toxins moving out of your system. It really helps if you have swollen lymph nodes. Along the same lines, it was also suggested that at the end of my shower, I turn the water as hot as I can stand for 30 seconds, and then cold/cool for 10. It makes blood vessles expand and contract quickly.

Finally- drinking lemon water can help as well.

Whichever route you choose (natural or antibiotics), it's important to remember that your body needs support, in addition to the antimicrobials that can kill Lyme.

Many LLMD's have their own supplements they recommend.

Best of luck

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted Yesterday 6:33 PM (GMT -6)   
NewToThis,

You have gotten great information here. I agree that you should be very careful with what you take even if it is a natural supplement. Some supplements do interact with prescription medication and others can affect the liver if you have liver problems. Always do research before taking anything or come here and ask. There are many knowledgeable members here.

I agree with Nicky too about detoxing. It is extremely important to get those toxins out. They can cause all kinds of symptoms. If you have a picc line, you should ask your doctor first what you can do.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


newtothiss
New Member


Date Joined Aug 2009
Total Posts : 9
   Posted Yesterday 7:45 PM (GMT -6)   
Thank you everyone! I'm going to put myself on a detox and get some vitamin C.

Its only been a month but knowing there are people who can help on here is a great comfort. Even if I get better soon, this experience has opened my eyes to the fact that the health system in this country (and in yours too) is far from infallible and that something needs to be done about this. Anyone can get bitten by a tick and its totally bizarre that incidentally falling victim to one of these diseases basically renders you an outsider in terms of getting the medical help you need.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted Today 1:10 AM (GMT -6)   
i agree, we are made to feel as tho we committed a crime by getting lyme, when if fact it is most Dr who are committing the crime of not treating us.

to me its like why go to med school and not learn. by this they in turn do us great harm.even leading some to die from lyme disease. skull
this is not only a crime to them and there families, but to the oath they took to start with. nono
i think if they have no clue, then go back to school. JMHO yeah
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)

Post Edited (RottenDog) : 8/19/2009 1:13:56 AM (GMT-6)


sophie 66
Regular Member


Date Joined Aug 2009
Total Posts : 31
   Posted 8/21/2009 6:59 AM (GMT -6)   
I am having the same problem. I am on Ceftin 500 mg twice a day and I still have symptoms, some days are great, some not so hot! I think it just takes patience, something I don't have. Maybe after this.............

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 8/21/2009 7:17 AM (GMT -6)   
It is very common to get worse before you get better. It is called a herxheimer reaction and we talk about having those all the time. When the abx kills off the bacteria, it releases a lot of toxins which can overload your system causing inflammation and pain. It is actually a good thing and means that the abx is doing it's job. You can take quercetin, a supplement you get at the health food store and it will help with inflammation. I buy the kind that is combined with vitamin C and a mineral (forgot which one). You need to supplement magnesium and B vitamins as these are depleted by lyme and your symptoms worsen when you do not have it. Many of the symptoms of low B12 are similar to lyme.
I believe you need to knock the infections way back before you attempt healing with herbs. Taking enough herbs to actually heal you is very expensive. I am spending $500 a month on them. I took 9 months of abx and then started having too many side effects.
You were so lucky to have a doctor correctly diagnose lyme, know how to treat it (you are taking the correct strength of doxy) and to get you started right away. You should stay on doxy for 3-4 months or until you are symptom free for two months. The lyme bacteria reproduction cycle is about 28 days and you can expect a herx reaction that often.
Then there are the co-infections. . . . and many of these diseases do not test! There are over 30 strains of bartonella but the labs only test for 3. So you need to read up on symptoms to be aware of what is what. Babesia usually has drenching sweats with fever while bartonella has hot flashes with elevated morning temperature. With lyme your temperature is always subnormal - shouldn't say always, I guess, as it is such a strange disease.
Good luck
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