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LadywLyme
Regular Member


Date Joined Aug 2009
Total Posts : 55
   Posted 8/17/2009 6:14 PM (GMT -6)   
I am new to this and failed to put in a "subject" when I submitted my first question so I doubt any one will read it. I am LadywLyme. I basically want to know what Herx is all about? When can I expect my first herx? How long does it last? What can I expect so I know it's herx? How often does it happen?

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/17/2009 6:33 PM (GMT -6)   
Hi there LadyWLyme,

Welcome to the forum! We are so glad you found us:) Im so sorry that your first post was missed. To answer your question:

Affectionately called "herx" (as in, "I'm herxing bad today"), the term is sometimes used to described the worsening of some or all symptoms that were present before treatment with the use of any antibiotic, antiparasitic, antifungal or antiviral prescribed for other parasitic (regardless of organism type) infections. Herxing can also result in new symptoms arising, very common in the treatment of Babesia, Bartonalla, Borrelia, and Ehrlichia infections.

http://www.anapsid.org/lyme/herx.html

Not everyone has a herx and there is no time limit on when a herx starts or stops. I, myself, herxed on the third day of antibiotics and the herx lasted for two weeks. You will most likely know that you are herxing because as stated above, your symptoms will get worse. You can also have new symptoms too. Sometimes old symptoms come back. If you experience muscle pain while your not on treatment, then your muscle pain may get alot worse. You may also feel like you're getting the flu, but not everyone experiences this.

Are you currently being treated by a Lyme Literate Medical Doctor?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/17/2009 6:43 PM (GMT -6)   
I deleted your first post since there was no subject and you reposted here:) I copied it for you though since there was a little more information. Here it is below:


Hi All, I've been down now for about 4 months but have been getting ill often over the past 8 years. My blood work confirmed Lyme and 3 co-infections 2 weeks ago. I was also told I have CFS and Fibromyallgia as a result of Lyme. I have been on antibiotics as well as a buffet of many other meds ever since. I have heard that I will know if the Lyme is dying when I am herxing. Can some one explain what I can expect to experience, how long it lasts and how soon I can expect it to take place? Thank you!

LadyWLyme
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


LadywLyme
Regular Member


Date Joined Aug 2009
Total Posts : 55
   Posted 8/17/2009 7:07 PM (GMT -6)   
Thanks for re-posting this. I feel so much better knowing I have this site to come to now. I get depressed easily since I have mainly sat around for months. My condition keeps me in the house with the exception of going to the doc. This site may help with that as I feel like I'm part of the world again by getting to see that there are others going through what I am.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/17/2009 8:00 PM (GMT -6)   
LadyWLyme,

I am in the same boat as you. I move from my couch to my bed. The other day was the first time in months that I finally got out again. It felt really good. But most days, I am stuck in the house unless I have a doctors appointment too. This board keeps me going. It is nice to come to a place that understands you. Everyone here is very nice and extremely knowledgeable.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 8/17/2009 10:19 PM (GMT -6)   
LadywLyme
welcome to the board. i like you have been more or less stuck at home. either in bed or in my recliner. going on 2 yrs for me now. and i just found out i had lyme a few months ago.

i wish you all the best :)
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


Harleyrider
Regular Member


Date Joined Sep 2008
Total Posts : 283
   Posted 8/18/2009 10:34 AM (GMT -6)   
LadywLyme

Welcome to the board. There are many things to learn about Lyme
and some things get very confusing at times.

I see you asked about a herx . . . I was searching on Youtube the
other day and typed in Lyme Herx. I felt so bad for those that have
herxes as bad as they did . . .

Hope you get all the insite and respect from all that can help in the
Lyme Forum.. Good Luck! !
 


LadywLyme
Regular Member


Date Joined Aug 2009
Total Posts : 55
   Posted 8/19/2009 2:01 PM (GMT -6)   
Thanks everyone!

I initially asked the question because I thought I may be herxing. As it turns out, I was! Four days.

The first 2 were the worst. While I am feeling better now than I did then, I have new pains and new "weird stuff" going on.

Is this normal?

I am not crying like a baby as I was doing then, but I am not like I was before either. Am I going crazy???

I felt better this morning than I do now. Today, I just seem to be going down hill little by little. If this is still herxing...it's day 5.

Should I call my doctor?

What's the longest you go herxing and does it change in severity from one day to the next?????

Thanks!

Harleyrider
Regular Member


Date Joined Sep 2008
Total Posts : 283
   Posted 8/19/2009 5:25 PM (GMT -6)   
LadywLyme

So glad to hear you feel better. I'm sure you are not going crazy,
although that is exactly how I feel from time to time.

I myself have felt good enough to do more around the house, and
then when I do I feel crappy the whole next week.

Had to go to the store yesterday and felt ok to go, had a hard time
walking in the store. Its hurt so bad and the pace that I had to walk
at was slower than the older man with the walker . . .

I can herx for weeks at a time even, as a matter of fact I am herxing now.

Had to have my 18yr old daughter take me to run errands today because
I am having a hard time with my balance, being dizzy, have this yellow/grey
haze over my vision, its raining here so when the weather changes that plays
a big part in body pain.

Can't think worth a crap, lost my sunglasses and they were ontop my head.

Hope You get to feeling better and if you have anymore questions feel free to
just give me a holler.

Good Luck
 


LadywLyme
Regular Member


Date Joined Aug 2009
Total Posts : 55
   Posted 8/19/2009 7:45 PM (GMT -6)   
Thanks Harleyrider,

I know the herxing is a drag but I guess it's also good since it's a sign of getting better!

I don't know. I thought I was over it, but today has been just terrible. I just sat and cried for the longest time!

So, please tell me, when you herx for weeks, do the days effect you the same or do you have days where you are OK in the AM and get worse, or one day is a little better than another?

Today...lots of new pains and old pains worse but, yesterday felt like I did a week ago before the herx.

I'm sure you've figured out by now this is my first go around since starting antibiotics.

Sure appreciate your input.

Hope you feel well very soon!

Thank God for grown children to help us out!

Your daughter is also your angel!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/19/2009 7:53 PM (GMT -6)   
LadyWLyme,

I always seem to feel much better in the morning but it doesn't last long. I usually feel bad all day but nights and early mornings are the worse for me. With this disease, you can feel good one minute and feel horrible the next.

I don't know if I have said this already but my very first herx was for two weeks straight. It was not fun.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


LadywLyme
Regular Member


Date Joined Aug 2009
Total Posts : 55
   Posted 8/19/2009 8:33 PM (GMT -6)   
Thanks CajunGrl,

I find that to be the case as well. The last 4-5 days have just been about 10X worse and a lot of new things going on. I guess I must still be herxing.

Your replies are always appreciated.

Wishing you well!

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 8/19/2009 8:51 PM (GMT -6)   
My experience with a Jarisch-Herxheimer (Herx) reaction came approximately 4-5 years ago. It's a long story, but I had a Rhuematologist mis-diagnose me with RA and had been put on 21 different medications and was EXTREMELY ill. A new RA doctor took me off all meds. for 6 months and then put me on oral Doxycycline and Rifampin. I knew within hours that "something" was changing in my body... and within 24 hours guessed that it was a "herx" - something I had read about but never experienced. I went straight downhill for approx. 10 days and then couldn't take it anymore. The next morning I woke up with NO PAIN, NO JOINT CREAKING, A CLEAR MIND.....ETC.! I was convinced "it" was over. This lasted about 5-6 days and then I slowly went down hill again and have been fighting Lyme ever since.

It is my understanding that this extreme decline (Herx) is a result of the bacteria dying off so quickly (which releases toxins) that the body's normal ways of ridding itself of the toxins becomes overwhelmed. During my 10 day decline I had diareah, vomiting, crying, constant sinus, sweating so severe that I would have to change pajamas 2 or more times a night and lay down towels over my bed sheets. I could barely eat, the pain was overwhelming, and was extremely fatigued, but couldn't get any real sleep. The only thing that kept me going was the knowledge that this might be a Herx and I would therfore end up feeling better when it was over... and I did for a while. After experiencing this Herx, any shred of doubt that I had Lyme was gone. It was like nothing I had ever felt before or since. It can be overwhelming, so if it does happen to you and becomes severe, please let your doctor know what is happening.

Hope this helps.
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
10/01- Igenex and CDC LD positive
Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT  
 


LadywLyme
Regular Member


Date Joined Aug 2009
Total Posts : 55
   Posted 8/19/2009 10:40 PM (GMT -6)   
JELAINEP,

What an amazing story. I pray you are better now!!!???

Thanks for sharing with me!

Best wishes to you!

Harleyrider
Regular Member


Date Joined Sep 2008
Total Posts : 283
   Posted 8/20/2009 9:29 AM (GMT -6)   
LadywLyme

Not sure if you experience this but when I have my period
my herx's are extreme . . . I do absolutely nothing for a week
it's so bad. Headaches, stiff neck, body pain everywhere,
extreme dizziness, uphoria, dissociation, can barely talk, or walk.

Cooking dinner is definitely out of the question, and having a
conversation, well forget that! Dosen't matter if I write things
down that I know I will forget, I would not be able organize them
correctly to accomplish anyting.

Sometimes I will get this random pain like I was hit by a hammer
with needles. So strange I know, put me into tears many times.

Yeah I can feel fine one minute and feel like I need to sit or lay down
the next. Body can feel heavy like I can't even hold up my own head.

Hope these crummy herx's end for you soon!

Yes my kids and husband see what I have become (A blob on the couch..lol)
And help with whatever I need.

Talk to ya soon, take care of yourself!
 

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