Retesting after treatment?

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tpup
New Member


Date Joined Jul 2009
Total Posts : 16
   Posted 8/19/2009 4:45 PM (GMT -6)   
I am almost done with my antibiotics. I feel much better - energy is back and I don't feel "sick" anymore. My doc said "there is no reason" to re-test - that they consider me "treated" successfully after the antibiotics, unless I am still feeling ill or symptomatic. They said retesting immediately after treatment wouldn't show anything?? That I would need to wait 3 mos. to see if proteins or antibody levels are up again. Does this make sense??
 
BTW, my 7-year old son's lyme test came back completely negative thank goodness. :)

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/19/2009 7:58 PM (GMT -6)   
tpup,

It makes alot of sense. No use you waste money now. I agree that antibodies do have to build back up to show on a test.

I'm so glad you are feeling better. That is awesome! And I'm glad your son tested negative.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 8/19/2009 8:33 PM (GMT -6)   
tpup - I agree that it wouldn't be useful to be re-tested so soon.... especially if you're feeling better. When I was finally diagnosed and treated, I took doxycycline for approx. 8 weeks, was about 50% better and returned to work (the other 50% was pure willpower). I relapsed after 7-8 months and was re-tested and it came back positive.... and I've been receiving ongoing various treatments since then.

But, congratulations on your return to good health. I would take it slow and easy and be good to your body. It is my hope that your recovery is complete and everlasting. All the best!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
10/01- Igenex and CDC LD positive
Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT  
 


alliebridge
Regular Member


Date Joined Mar 2006
Total Posts : 67
   Posted 8/20/2009 3:10 PM (GMT -6)   
The reason they don't retest is that Lyme tests are unreliable.

Its accuracy is 30% compared with that of another infectious disease, HIV/AIDS with an accuracy of 99.5%! It's insane! We need a better test. A negative Lyme test should not be reassuring for anyone.

pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 8/20/2009 6:05 PM (GMT -6)   
If your CD 57 count was low it should be 150 or greater before stopping antibiotics.

not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 8/20/2009 7:09 PM (GMT -6)   
Iam glad that you are feeling better and that your son tested Negative!!!

tpup
New Member


Date Joined Jul 2009
Total Posts : 16
   Posted 8/20/2009 7:14 PM (GMT -6)   
What is a CD 57 count? I don't see it on my test.......but it was done by a regular doc. I did test positive for Lyme (several bands tested positive). Thx!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/20/2009 7:46 PM (GMT -6)   
tpup,

This site explains what a CD57 test is:

http://www.healthcentersofamerica.com/information.cfm?id=144
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


mcjane
Regular Member


Date Joined Jun 2009
Total Posts : 285
   Posted 8/21/2009 9:17 AM (GMT -6)   
Hi Cajun.....for some reson your link wouldn't open for me but did find some info on Google.
This is just part of what I read and very interesting. I also never heard of a CD57 blood test. Wondering if it's covered by insurance.

............................................................................

"It is important to remember that the CD57 result is just a number;
far more important is the patient’s clinical status. An old professor
of mine used to say, “treat the patient, not the lab test!” There is
still much we do not know about the CD57 marker and what other
factors may lower or raise it. However, overall, the CD57+ NK count
is a useful tool in diagnosing and treating chronic Lyme disease in
most patients. As a measure of immune status, it provides an indirect
measure of bacterial load and severity of illness. Furthermore, in a
patient who has a negative or indeterminate Lyme test but is highly
suspect for the disease, the clinician may utilize the CD57+ NK count
as one more piece in the complex puzzle of a Lyme disease diagnosis.

If you would like your health care provider to order the
CD57 NK test for you, your blood sample needs to be drawn into an
EDTA tube (lavender top) on Monday through Thursday and sent
immediately to either LabCorp in Burlington, NC, or Clinical
Pathology Laboratories (CPL) in Austin, TX. LabCorp and CPL are the
only two labs that perform this test properly. Quest does NOT.

The LabCorp test code is #505026 and is named HNK1 (CD57) Panel. The CPL
test code is #4886, CD57 for Lyme disease. The test is time-sensitive
and must be performed within 12 hours of collection, so blood should
not be drawn on a Friday or results may be inaccurate."
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