is florida that bad for lyme?

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lymebrained
New Member


Date Joined Aug 2009
Total Posts : 9
   Posted 8/25/2009 8:41 PM (GMT -6)   
someone said florida is horrible for lyme...is it because of the weather, i,e humidity, rain? or because of the lack of drs??
 
i am from az and we are beyond limited with drs here but i must say..the drs are pretty understanding..i think because they don't know alot about lyme
 
what is the gteneral atmosphere there? non believing drs? lack of services? etc
 
i have no choice but to move since i got so sick and need to be close to family to care for me...the only saving grace i have in az is the dry weather has gotten me out of a wheelchair..not to say i don't have pain but it is nothing like when i lived in NY and the humidity and cold (cold even more so) gave me so much pain i couldn;t walk most of the time
 
 

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 8/25/2009 8:49 PM (GMT -6)   
Hi lymebrained,

I don't really know what it is about Florida. I can tell you though that there are way more doctors there than Louisiana or Texas. I live in Louisiana and there is only one Lyme doctor here.

The South is pretty humid. I guess it all depends where you live though.

I hope you find a great, understanding doctor there like you dud in Az.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


JELAINEP
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Date Joined Sep 2007
Total Posts : 2017
   Posted 8/26/2009 7:28 AM (GMT -6)   
According to the first Infectious disease dr. I saw, "WE DON'T HAVE TICKS OR LYME DISEASE IN FLORIDA!". What a joke. We get 2000 new residents a day (and 1000 leave) plus the weather is perfect for ticks and we have a large horse community around Ocala.... and we have over populated so much of this state that people (especially in North Fl and the Panhandle) have to put up fences to keep the deer out!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
10/01- Igenex and CDC LD positive
Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT  
 


Martha's Vineyard
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Date Joined Jul 2008
Total Posts : 1119
   Posted 8/26/2009 8:51 AM (GMT -6)   
One hundred and fifty million birds migrate from the North East across the USA.
The ticks are all over the birds who travel with them.
It is every where.
Most of the Dr.s in Florida are bad. We have a horrible health care down here. And most people here go to Boston or NYC for help.
Az. had some of the best MD's for lyme in the country. They see alot of lyme in AZ. Az is coverd with things that crawl and fly and hop. Horses, pigs, rabbits, birds all over the place. I was not happy how many things were running on the ground there.
In AZ they see so much lyme and have so many people from California with it.
All of the people who were getting treatment at enivta for lyme lived there in scottsdale.
Poeple were telling me of their wonderful young horse going lame.....I was like...have him tested for lyme.
Big horse country there.
In Az you have Dr. Fry...and DR. Korn Jr. and Sr.
I had gone all the way to Munich...Wurzburg, and the best guys were in AZ. all along.

lymebrained
New Member


Date Joined Aug 2009
Total Posts : 9
   Posted 8/26/2009 4:12 PM (GMT -6)   
i have to plead the 5th about some of the az drs...i have seen both of them..also know alot of people who went to envita and the dr associated with them and spent thousands and didn't get well but yes...az is good with healthcare but compared to NY where i am from..we suck so i guess it's all perspective.

i am 15 mins from dr f....i am lucky in some regards but in others i have to hold my tongue. I live in scottsdale. I will be going to Dr C in Tampa..a long way but he takes insurance and i have family in NY so i can see some of the NY drs too if any take ins.

Oh..i know to avoid dr N P in sunrise ;)

lymebrained
New Member


Date Joined Aug 2009
Total Posts : 9
   Posted 8/26/2009 4:13 PM (GMT -6)   
but the fact remains that in order to be able to do any protocol completely i need to be closer to family who are in florida and NY..ny not an option due to the cold and cost so florida is it.

lymebrained
New Member


Date Joined Aug 2009
Total Posts : 9
   Posted 8/26/2009 4:44 PM (GMT -6)   
sorry for the multiple responses...i just came on the forum briefly to see if by chance there is a dr in fl who took ins and luckily there is but he is so far...if he needs to see me often it won;t be possible...also..i have been to some of the best llmd's and they could not help me....i get deathly ill from the smallest bit of treatment and i don't have help around when i become totally bedridden and even worse cognitively...even in florida..i will have more family but all of them are super busy and won't be able to take care of me and i cannot afford a non medical aide...at this point...ever since i have been on very high dose steroids...my cognitive issues are worse than ever and seems insurmountable......so really i am going to florida to just enjoy being with my family as much as I can and pretty much live out my days to the best i can..not to sound so morbid but at this point, due to money, lack of resources, and lack of support I really can't see getting well from this....

btw...dr f is excellent in alot of ways but he poo pood my very positive igenex test...he doesn't use igenex and he won't do iv either which is what i feel i need due to my symptoms being mostly neuro. but he also researches alot and cares about his patients. He just doesn't do all the combos and stuff the other llmd's i have seen do. Dr K gave me 6-8 weeks of IV (about 3 years ago)...when I didn't get better..i mentioned the possibility of co infections or maybe another IV med...he said he didn't treat coinfections and told me to go back to my dr in NY.....he also charged me $50 to sign a simple paper that took him 2 seconds so i guess everyone's experience is different.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/26/2009 11:51 PM (GMT -6)   
lymebrained,

I am so glad you are going see Dr. C. I see him on Sept 8th. I have heard great things about him and he has also been treating Lyme and neuro symptoms for a long time. That's the first thing I asked the secretary because I wasn't going to drive 12 hours for nothing.

Did you get your paperwork in yet?

Also, you can find a doctor close to you that is willing to work with Dr. C. so you don't have to drive there that often. My internist is gonna work with him.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

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