Need LLMD in Milwaukee WIS. Please help!

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painsnbody
Regular Member


Date Joined Aug 2009
Total Posts : 30
   Posted 8/27/2009 9:52 AM (GMT -6)   
I noticed a few of you are from the Wisconsin. I emailed some of those people in hopes to find a good LLMD. I have not heard from anyone so I thought I would post for the help. I'm currently in the Milwaukee area. Any info would be great thank you!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/28/2009 1:00 AM (GMT -6)   
Hi painsinbody,

Welcome to the forum! I'm so sorry you didn't get any responses. Here is some info you may find helpful:

You can email one of our long time members, Ticker at:
ko_@bellsouth.net to find an LLMD in your area. If you'd like more suggestions, you can email: stephanie@turnthecorner.orgYou can also go to: www.turnthecorner.org/bod.htm and ask for further sugestions.

ILADS is also a great site to find information:
http://www.ilads.org/


For even more info, please read the topic at the top of the first page of this forum tittled "The Basics, Newbies check this out". It will help you get started learning about lyme.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


painsnbody
Regular Member


Date Joined Aug 2009
Total Posts : 30
   Posted 8/28/2009 9:01 AM (GMT -6)   
Thank you for your help! If there is others that care to share info that would be great!

tickedoff
Regular Member


Date Joined Jun 2009
Total Posts : 56
   Posted 8/28/2009 7:15 PM (GMT -6)   
Hi painsnbody,

CajunGrl gave you good info...i read a good book called Beating Lyme by Leslie Fein...i'm sure turn the corner foundation will provide you with names of good LLMD in your area...please let us know how you are doing...this is a wonderful forum you will learn a lot here and i'm sure ticker will be in touch with you...she is a blessing to us all...

Weary1
Regular Member


Date Joined Oct 2006
Total Posts : 127
   Posted 9/12/2009 7:39 PM (GMT -6)   
Hi,

You can email me at laurenegler@comcast.net for info also. Just saw your post.

We're showing the movie Under Our Skin at the Pewaukee High School this Saturday if you'd like to come. info at www.wisconsinlyme.com
www.chicagolyme.com
 
"Greater things are yet to come and greater things are still to be done in this city" - Chris Tomlin
 


AChildofGod
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/20/2009 10:33 AM (GMT -6)   
I have not found one in Milwaukee either.    Where were you when you got bit?  I was in New Berlin.   Curious.    I have found one in Fox Valley though.  Google Fox Valley Wellness and you'll get the doctor's name and number.  It's a nice drive up to Appleton on hwy 45. 
 
I have a neg lyme test...but this doctor has been treating me anyways.  I stopped treatment all together at the end of June - my idea, not the docs.  I ran out of money and needed to find someone on my insurance plan. Up popped up my symptoms again.  2 infectious disease doctors tell me if I have a negative test I do not have lyme.  One of them, when I asked why the antibiotic seemed to help then, thought it a plecebo effect or an anti-inflammatory effect.   I'm not sure who to believe...the lyme lit doctor who sells me a whole lot of supplements and costs me a lot and has done odd tests and odd treatments... or the infectious disease doctors who are in my insurance plan.    All my blood tests, no matter what they are for are coming back great.   I do not have an auto=immune disease, I do not have diabetes, I do not have...   My general practitionar is now looking at me like this is all in my head.    But, why then do my joints hurt and stabbing pains  in them and my bladder spasms...  It's like I have gout, but I don't!   Clarithromycn helped.    The infectious disease doctor said that isn't even known to help lyme.     I'm just baffled.   I went to an endocronologist last week.  I'm waiting test results back from him.   This doctor up north had put me on Armour Thyroid, but according to the Endrocronologist, due to the lowest level of Synthroid I was on, that was the worst thing I could have done.   hmmm....   Anyhow, I am very confused by all this.

stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 9/20/2009 2:20 PM (GMT -6)   
I use to see an LLMD in Miwaukee. Email me at Stutterbug1@yahoo.com and I will give you the info.  amey

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/20/2009 6:11 PM (GMT -6)   
AChildOfGod,

Wow, you have been through alot. I would think that if you felt better on antibiotics that they were working. Do you remember what bands were positive on your test? LLMD's look at the bands that are positive and take your symptoms into consideration too. If you have a Lyme specific band, it is believed that you do have Lyme bacteria in your body even if your test is negative. I would tend to believe your LLMD over any ID. Most ID's are NOT Lyme Literate.

You don't have to buy those supplements from your LLMD. I'm sure you can find them cheaper on the Internet. What exactly did he have you taking?

Also, why did your endo think that being on Armour was the worst thing you could have done?

If I were you, I'd find an LLMD that takes insurance. The members here can help you with that. You can also email our long time member, Ticker at:
ko_@bellsouth.net
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 9/20/2009 6:16:40 PM (GMT-6)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/20/2009 6:15 PM (GMT -6)   
AChildOfGod,

I forgot to add that Clarithromycin is used for Lyme Disease. It's brand name is Biaxin. If you google "Biaxin and Lyme Disease", you will see that it definitely is used for Lyme Disease.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


AChildofGod
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/20/2009 7:49 PM (GMT -6)   
I got two opinions from two different Infectious Disease Docs. They both said that there are strands of protien in each of us and sometimes they can share the same strands of protein as those in lyme. The IGENEX IGG Result is 31 IND (Indetermintate), 39 IND, and 41 Positive.
The IGENEX IGM 31 Positive, 41 IND. Both CDC and IGenex say it is Negative. The Infectious Disease Docs said the Biaxin has anti=inflammatory reactions. I'm waiting on a friend who is a pharmacist to get back to me and let me know about the Biaxin and anti-inflammatory reactions. The Lyme or whatever it is that is the problem is causing problems with my joints (pains like someone has a voodoo doll of me and randomly is piercing me with a needle) and muscle fatique along with bladder issues. However, I have had carpel tunnel, frozen shoulder, inflammation of the eyelids, ringing in the ears, neck creaking sounds that I never had before, jaw pain, stiff joints in fingers, and a whole lot of fatique. Sounds like lyme to me. I did have a tick bite. I didn't have a ring, but a red blotch after I yanked the tick off my shoulder. The Infectious Disease Doc said Biaxin isn't used for lyme treatment. I don't get why the Infectious Disease Docs don't go with the same plan the LLMDs do. I just don't get this.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/20/2009 8:15 PM (GMT -6)   
AChildOfGod,

Band 31 is an outer surface protein specific for BB bacteria. Here is a breakdown on what each band signifies.

Ticker's words of wisdom about how to read your Western Blot results:

The IgM tests for a more recent infection and the IgG a longer standing one. Below is the breakdown of the Western Blot bands:

9 cross-reactive for Borrellia
12 specific for Bb
18 unknown
20 cross-reactive for Borrellia
21 unknown
22 specific for Bb, probably really the 23/25 band
23-25 outer surface protein C (OspC), specific for Bb
28 unknown
30 unknown; probably an outer surface protein; common in European and
one California strain
31 outer surface protein A (OspA), specific for Bb
34 outer surface protein B (OspB); specific for Bb
35 specific for Bb
37 specific for Bb
38 cross-reactive for Bb
39 is a major protein of Bb flagellin; specific for Bb
41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia
45 cross-reactive for all Borellia (sometimes people with Lyme who have this band positive also have the co-infection Ehrlichiosis)
50 cross-reactive for all Borrellia
55 cross-reactive for all Borrellia
57 cross-reactive for all Borrellia
58 unknown but may be a heat-shock Bb protein
60 cross reactive for all Borrellia
66 cross-reactive for all Borrelia, common in all bacteria
83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane
93 unknown, probably the same protein in band 83, just migrates differently in some patients

Band 41 is often the first to show. Bands 30, 31, 34, and 39 are all Lyme specific bands.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/20/2009 8:53 PM (GMT -6)   
Knowledge is power! You need to research everything you can about Lyme Disease. This is YOUR health, not theirs. Here is another great site to read:

http://www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html


For even more info, please read the topic at the top of the first page of this forum tittled, "The Basics, Newbies check this out". It will help you get started learning about lyme.

If you need anymore help, please let me know.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


AChildofGod
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/20/2009 9:13 PM (GMT -6)   
Wow...and the Infectious Disease Doctors don't know/understand this?! All I know is when I was on the antibiotics, I was better. When I got off, the symtpoms returned. Thanks for your information.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/20/2009 9:46 PM (GMT -6)   
If you see another ID, make sure they are Lyme Literate. Most follow the IDSA guidelines too and the IDSA is now being investigated. Read that ILADS site I posted. You will learn alot. That's why you need a Lyme Literate doctor. They look at the whole picture.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

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