Bartonella, Biaxin, Plaquenil, Rifampin

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lotusillusion
New Member


Date Joined Aug 2009
Total Posts : 10
   Posted 8/27/2009 4:37 PM (GMT -6)   
I am new and can't find my way around here good yet.. so if there's a better way for me to address this topic please let me know. I first signed up because of all the posts I was reading about above topic. Then after registering it directed in a different way and now I can't find them.

Anyhow, I was taking Cipro and just didn't like the side effects of increasing achy tendons and muscles, being wiped out, and the fear of tendonitis which I've already had even w/o taking Cipro. So I want to try the Biaxin/Plaquenil.. or Rifampin and either one I would be taking w/ Doxy. I'm wondering what dosing amounts are being used for I seem to be sensitive to meds.

Any and all comments are appreciated. thanks

1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 847
   Posted 8/27/2009 5:14 PM (GMT -6)   
Hello and welcome to the Board.

I do not blame you one bit on the Cipro. My LLMD no longer uses it. He says the side effects far outweight the good.

As far as dosing amounts, that is really something that should be discussed with your LLMD. Everyone is different, and what works for one does not always work with another.

Especially where you state you are sensitive to meds.
Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain


lotusillusion
New Member


Date Joined Aug 2009
Total Posts : 10
   Posted 8/29/2009 12:23 PM (GMT -6)   
Thanks for the reply. Let me just quickly say first off I'm not fortunate enough to have a LLMD in my area that I can go to. So the doctor that is treating me goes strictly by Burrascano's guidelines... that's all she knows. She didn't even prescribe the biaxin or plaquenil... but I had both of them prescribed to me by different doctors so I'm starting this on my own. My background is in nursing so I know enough not to do anything too stupid, and I did send the doctor a fax w/ info from these support posts that people are doing this for Bartonella, but neither I nor her have guidelines for the dosing amounts for this particular dz. I can take it as it was given to me for Lyme, and that's what I'll do, just thought it might be different for Bartonella.. esp. when used in combo like this.

notwellengood
New Member


Date Joined Aug 2009
Total Posts : 8
   Posted 9/1/2009 8:36 AM (GMT -6)   
And the age old question is...where are the good LLDD's I'm tired of messin around

lotusillusion
New Member


Date Joined Aug 2009
Total Posts : 10
   Posted 9/2/2009 2:50 AM (GMT -6)   
I'm on that search as well.. looks dr J in SC is one of the best.. but his prices are one of the worst, not to mention the tricky monthly fees that are added on once you're a patient if on IV's. Those range from 2-5 K per month on top of top fees !!!!!!

What has happened to the simple idea that doctors treat sick people???. We are especially sick and also are one of the hardest hit groups of patients unable to be treated for many various reasons.

I wish we would all write Oprah or someone that has a loud voice to let the public know of our plight, esp. w/ health care reform on a tenuous string. Perhaps we could gather some sympathy votes at least towards insurance reform.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 9/2/2009 2:56 AM (GMT -6)   
i have sent in a letter to Oprah. to date i have not got a reply. so good luck there. maybe if all of use sent in a letter it may help open her eyes too. who knows
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)

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