lyme disease... cigarettes.... pneumonia... huh?

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tick tattoo chick!
Regular Member


Date Joined Apr 2005
Total Posts : 296
   Posted 8/27/2009 10:54 PM (GMT -6)   
 I havent posted on here in AT LEAST a year and  a half? two years?! and its for good reason! i feel sooo much better! (i really do need to remember to post on here more often to say... yes... even if you are litterally dying from lyme disease, you CAN come out alive! just have a positive attitude and you can go back to normal!) ive been working full time for two years... oh boy i should probably give a little background because i dont even know what my "signature" says... ive had lyme since i was 15, im now 26. symptoms went away with a lot of rest when i was 15, but came back when i was 21 after a traumatic event in my life..
 
i guess you could google lyme disease symptoms and cross off like 3 or 4 and i have or have had the rest at some point in my lyme disease career.. hehe... anyway... i still have random symptoms and still have to take klonpin to control vertigo and anxiety... but overall im pretty healthy. oh. i gained a good amount of weight from lyme... still trying to lose...
 
it took a year and a half and a million diagnosis and doctors after my initial symptoms hwen i was 21 to finally see a certain doc in CT that saved my LIFE! i totally wouldnt be here today if it werent for him! so i have lyme, bart and babs, and he had me on such crazy treatments (bicillin shots and mepron and this and that.. i dont even remember.. but mepron for about 9 monthss did the trick) that i went into it with straight hair and now its spiral curls... very odd... but whatever, id rather have curly hair then the symptoms i used to have!
 
so heres my question - when i first got sick the second time (21 years old) i started to smoke. i used to be an athlete before this, and hated cigarettes.. but i didnt know how to control my anxiety attacks i was having so i started... and that was 5 years ago... i quit smoking now 104 days ago and will never go back.. for obviously sooo many reasons... the price... never wanna quit again... it feels nice to breath... yada yada ... well about 50 days after i quit i had to go to the ER 3 dyas in a row, complaing of chills/too hot... they finally admited me when they got a chest exray with full blown pneumonia... after a day in the hosptial i almost had a code blue and my temp went to 104.9 WITH an ice blanket on and i ended up in the ICU for nine days... the doctors said i made it by the skins of my teeth. so i guess my question is, has anyone quit smoking (after feeling better for a while) and had anything INSANE like this happen!? i mean, i knwo quitting smoking does weird things to healthy normal people... but lyme disease victims... what does it do to us?! i remember when i was still really sick my doctors all told me to not quit right then because it would be too traumatic to my body... so i finally felt the time was right (should have done it earlier..) and almost died from it! im seriously not trying to scare anyone because i dont think it has anything to do with lyme, in fact, my mom asked the hospitalist that saved my life if he thought me getting such a horrible case had anything to do wtih my lyme disease, and he just blankly looked at her shocked... because he said my immune system kicked butt... and he would have never konwn i had it, had she not told him.
 
i could go on and on. any thoughts?
 
if you read this and you are new or just really really struggling... just remember what i said up above... i dont remember to come on here anymore because i forget that i even had anything wrong wtih me and dont need the support anymore... but i think i need to come on here more (and other people that feel better!) just to encourage everyone thats not feelin so hot! ive been there! i promise! i know how bad it is! stay positive! it helps! and one huge thing i def learned... dont take it out on the ones you love the most... as most people tend to do with any problems we have... and just remember, the people sticking by you are AMAZING... i dont know how my friends and family stuck by me when i was so... ehh... ya know? sick! but they did, and i still have them around and im so thankful! and i hope that if you are reading this and you dont feel well right now - that you can come on here one day soon and say something very similar as to what im saying.. .best of luck everbody! im glad you found this forum! its fantastic! turn
                                                                                                                         
 
"never let the fear of striking out keep you from playing the game"
~a cinderella story~
                                                                                                 
 
lyme, babs, bart since 1999, diagnosed in 2005...
and.... "what a loooong strange trip its beeeeen!"
~the greatful dead
 
                                                                                                 
 
i want lyme disease crossed out of my life for good!!!
 
                                                                                                                         
 
 
                                                                                                 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/27/2009 11:27 PM (GMT -6)   
tick tattoo chick,

What an amazing story. Thanks for posting that. We really need hope at this point in our lives.

How debilitated were you when you were sick? I started off able to function for a few years before I even knew I had Lyme, and now I am pretty much either on mycouch or in bed.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 8/28/2009 1:09 AM (GMT -6)   
tick tattoo chick,

its great your doing so much better. and i hope this continues for you.
as for your smoking and stopping issues. i have a neighbor who is basically dying from LD right now. and she smokes also. i smoke too and we have talked about it.

her Dr. told her point blank not to try to stop as her body couldnt handle it. and that it could in turn possible kill her. now this is not something many Drs will tell you.

i am so glad you was able to pull thro this. and pray you stay well :)
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/28/2009 3:17 AM (GMT -6)   
By the way, someone posted something similiar not long ago. They stopped smoking and got sick. Started smoking again and felt better. We all thought that maybe it was something in the cigarette keeping the spirochettes at bay.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 8/28/2009 12:24 PM (GMT -6)   
i believe its something to do with the withdrawal you go thro. and how the body reacts to it. basically it can turn on its self.

my mom who had smoked for over 40 yrs. and was fine more or less. just had some heart trouble with is hereditary.. so she was able to stop without a hitch.

5 yrs later she had lung cancer and is gone. her body had turned on her. as it couldnt handle the withdrawal. even her Drs thought this was the case.

so i believe is your a smoker and wish to stop. make sure your body is as strong as you can make it b4 hand. to give it the best chance to over come it. JMHO
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


imakatt2
Veteran Member


Date Joined Dec 2006
Total Posts : 580
   Posted 8/29/2009 12:19 PM (GMT -6)   
Hey B! OMG!!! What the h-e-double-hockey-sticks???!!!
Jeesh--you used to make me laugh and cry simultaneously, lol. Am soooooo sorry to read what you've gone through. I'm so glad you made it through!

I haven't been here for over 2 years. Your email has propelled me to check in on this forum that used to be my life line once upon a time. It was an everyday event. I had the most horrific and sci-fi LD symptoms...and now, for the most part, they are on the back burner.

So good to hear from you, B. You made me want to come back to my old stomping ground. Checked out a lot of these posts last night. Made me cry. Made me re-live the despair. But I also remember all the laughs and all the love. Could never have made it without this place!

I just want you and everyone here to know that you're all heroes to me!

Stay well and be strong!

Hugs to all here fighting this battle of all battles.
Hope to see you all on "the other side" soon,

Annie





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[color=#0000ff> http://youtube.com/watch?v=gUNIZVpNH-0


bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 8/30/2009 5:39 AM (GMT -6)   
Hi tick tattoo chick! Great to hear good news from one of the "oldies" here. Hope you stay well, forever!
Best wishes, bablymers mom

tick tattoo chick!
Regular Member


Date Joined Apr 2005
Total Posts : 296
   Posted 8/31/2009 11:08 PM (GMT -6)   
hello! thanks for writing back!
 
uhh okay... still have a HORRIBLE memory so lets see if i can answer things here...
 
i will always pop on this site any time i think to, just becuase it really really helped me through... at the time i didnt know anyone with lyme disease.. i ended upgoing to a support group weekend thing and that was cool meeting other people with it.. but this forum was GREAT! i didnt have to leave my house for motivation! then i went out and got this INSANE tattoo... (hense the name on here..) its a cartoony deer tick getting exploded by "pill missles"... with blood shooting out of it and its leg flying off, while its chewing my skin and its about to explode with a comic book looking explosion going on in the background... and honestly, that tattoo really helped !it was great to look at every day and think to myself "yea... im totally going to beat this.." and i did! (for the most part.. i am so lucky that ALMOST all of its gone!) knock on wood! but i staye dpositive and im feeling well now... i was pretty debilitated.. i had (/have) bad vertigo... soooo agoraphobia has played a large role in my life the past few years... im still pretty bad with open spaces... but i talk myself out of it and im usually fine... (these days) before i usedt o have to have my mom or friends hold my arm to walk me around places... i gave up my jeep wrangler (the LOVE of my life!) because it was too open for me... and i couldnt drive anyways (i did but i shouldnt have..) joint pain.. chest pain... okay all the pain, i lived with and didnt let it get to me.. numbness and weird tingles always freakd me me out, still get tingles in my face and hands sometimes (usually when hung over... my own fault) ... and ALWAYS TIRED... well, thats still me. i guess thats what coffee was invented for. i had serious "vampire syndrome" what my doc calls it... up all night.. sleeping all day... i still COULD suffer from that if i had the choice... haha! but now i work full time and really cant make it through the night anymore sooo i go to bed and wake up int eh morning.. i guess its partially due to wicked bad light sensitivity, which i also still have... but seriously, these things are so minor compared to what i used to go through and how i used to feel... i felt helpless and worthless and like i wasnt going to ever see a normal life again... and i HATEd those times... and thank goodness for supportive friends and family and this forum... i know not everyone has support that they need... and people around them to listen to htem and understand whats going on... i didnt have that 100%... my mom got it. shes a nurse. most people didnt get why i would act strange... and say weird things... or stumble around in day light because i had no balance... but ya know, at the end of the day it was worth every ounce of effort i put into educating them... because now they see the real me again... and i have actually helped several people in my town get diagnosed and treated because they couldnt figure out what was wrong with them... so just keep your heads up! you can totally do it!
 
wow.. tangent... anyways... i wouldnt suggest quitting smoking when you are so sick... its a HUGE shock to your system..  and i mean,  i used to have little things happen to me physically or mentally and relapse... i cant imagine quitting while soooo sick! obviously with consulting a doctor and getting a script, try chantix though if you absolutley have to quit during treatment and feeling like crap... it helped me! i only did it for 3 weeks too! (you are supposed to do it for 6 months orsomething... dont be like mean im just cheap hahaha!) and i was smoking a pack to a pack and a half a day! so if i can quit, so can you! if i can beat lyme disease, so can you!
 
ladies, so nice to hear from you! i hope all is well with both of you too!!! ill have to get on and read through the forum and see how you are all doing! i hate to say it, i just dont really have the time, and i think thats a good thing?! (plus im wicked tired from work... but its good tireD!) so ill get to that ASAP!! in the mean time, get better! lyme disease is poop.  yeah
                                                                                                                         
 
"never let the fear of striking out keep you from playing the game"
~a cinderella story~
                                                                                                 
 
lyme, babs, bart since 1999, diagnosed in 2005...
and.... "what a loooong strange trip its beeeeen!"
~the greatful dead
 
                                                                                                 
 
i want lyme disease crossed out of my life for good!!!
 
                                                                                                                         
 
 
                                                                                                 

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