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nefferdun
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Date Joined Feb 2008
Total Posts : 900
   Posted 8/29/2009 9:48 AM (GMT -6)   
I am not sure you can herx with bartonella.  I can't find any books that explain it the way lyme is explained.  And the books about lyme say it is the ONLY bacteria that you herx from other than sphylis (lyme dead brain can't spell).
Anyway I have been taking the HH capsules since March and doing pretty well - not getting worse but not really well either.  I have some hot flashes at night, twitches once a month - not bad at all considering where I was.
I ran out for 5 days and then got the new HH-2 capsules which are twice as strong.  I took the same number of capsules, not knowing how much more potent they were and had very bad diarrhea, pain in my shins, insomnia, headache, and general not feeling so well.  First day I learned my mistake and corrected it but now a week later I am still having insomnia, hot flashes and my shins feel like they are burning.  I also have anxiety - keep worrying about that poor girl kidnapped for 18 years - wake up over and over in the night with her in my mind or stupid songs going around and around.   What is happening??  I am tired!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/29/2009 10:00 AM (GMT -6)   
nefferdun,

I'm no doctor, but it does sound like a herx. When I herx, I do the exact same thing you do. I worry about everything. Things stay on my mind and I cannot seem to get it out. I do just like you too and wake up with things on my mind. I hate that you're going through that. I don't wish it on anyone but it's nice knowing that someone else besides me goes through this.

Btw, you can herx from any bacteria die off. I'm not sure why that site you read said that. I herx from yeast die off.

I hope it all gets better for you soon. Do you have anything that might help you relax at night?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 8/29/2009 6:51 PM (GMT -6)   
Thanks Cajungirl, I hope I sleep better tonight. I did not know if the bart die off could cause a worsening of symptoms like lyme does. Come to think of it, when I took levaquin, I was so emotional, I cried over the news. But I did not feel worse physically, like hot flashes and shins that hurt. Perhaps I just don't remember it.

I take corydallis to help me fall back to sleep. It works very well but last night I had to take it twice.

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/29/2009 7:02 PM (GMT -6)   
Gosh, Nefferdun, I am so sorry to read your post. I am very sorry for your misery! I don't even know if I have Bart, and may never know, but have been reading on here about the emotional stuff, which I do suffer from.

I'm sure that CG knows her stuff and her herx. But even if you are not experiencing a true herx, it seems to me that you might suffer many symptoms just from the treatment and changes in your body.

I, for one, am so sick and tired of the emotional aspects of these diseases. Just when I think my body seems a little better, I fall down a deep dark hole that I can't crawl out of!

Still, you know, Neffer, I'm not so sure it's a bad thing to cry over the news, bad as it gets .... I think it's worse to not care enough to....
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/29/2009 11:45 PM (GMT -6)   
Hey you two. I was wondering if you feel a little better after a good cry? I've noticed that I do feel better most of the time.

nefferdun: Are you feeling any better?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 8/30/2009 4:10 AM (GMT -6)   
Hi nefferdun,

I think we can experience a worsening of symptoms any time we are toxic, or overloaded with toxins, from any source.

Best wishes, bablymers mom

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/30/2009 10:22 AM (GMT -6)   

Neff,  surely it is your illness causing the insomnia and worrying thoughts? You have my sympathies on the insomnia -- that alone can be life wrecking!  Let us know hw you are doing, OK?

CajunGrl, normally I would feel good after a 'good cry'. But not lately.  It just comes on and it's awful.  The bad 'S' word starts invading my mind -- I know it's a disease, because I have no real thoughts or desires of it, it's just the word.  Seems to float around in my head, against my will.

 
Then I hate myself and I hate the whole world. I experience an intense desire to escape.  It's really intense.  I already know that I am not ready and do not want to leave this world, but I want to just leave and go away somewhere. Away from everyone and everything (except my dogs....) I feel so mentally ill, I have a very strong desire to check myself into a hospital or some kind of rehab, but I can't.
 
I don't know for sure, because I was having problems prior, too, but it seems that since I started Amox, my mind and body start going down that dark road almost every day, around the same time, in the late afternoon.  Whereas, it used to be more sporadic, and had not been daily for a long time.
 
Sometimes, it does not go away til the next morning. But sometimes, when I can hold out, after I take my xanax and get all ready for bed, I feel some better. 
 
Does anyone else experience this desire to escape?  Do you believe it is a part of the disease or part of the treatment?
 
ps: I have just looked up Amox side effects. Included are volatile mood swings, and unusual thoughts and behavior.


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 8/30/2009 5:42 PM (GMT -6)   
I am doing pretty good today although i had trouble sleeping. This is probably just short lived - a herx, which is always a good thing, right? Before I started treatment for bartonella I was very down but didn't really know it as it happened so gradually. I did not want to do anything, so I guess you could say I was checked out. The things I always enjoyed no longer interested me and the people I cared about didn't really matter. The LLMD said a lot of people describe it as being out of their bodies - not attached to self or life. I was beyond crying or feeling anything. I was in a pretend state - smiled because I was supposed to etc. When I started levaquin I became very emotional. Within hours of the first dose I was hysterical about the pilot who landed his plane of the river - That was a wonderful story but I went overboard. The good thing is that I actually felt something. Within weeks I was planning my life again and excited about doing things. Unfortunately I could not continue taking levaquin because it gave me bad tendonitis. But the herbs are working pretty good. Anyway I tell this story because the disease can really change your personality by distorting your emotions or just leaving you without any. I hope you each can find something to help you along. If you are just treating for lyme, maybe you should also try treating for bartonella to see what happens. Never give up hope and never give up advocating for yourself because it might be your only hope.
Thanks for you kind thoughts.
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