Photos of my swollen fingers/hand

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CajunGrl
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   Posted 8/29/2009 1:48 PM (GMT -6)   
The quality of the pictures are not too wonderful but you can see the swelling.

VIEW IMAGE
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Turquoise Sky
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   Posted 8/29/2009 7:10 PM (GMT -6)   
The edema in your hands could be from the lymph nodes under your armpits. I saw that you are changing doctors, but missed why. I hope you find healing soon!

nefferdun
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   Posted 8/29/2009 7:58 PM (GMT -6)   
Do you have bartonella as well as lyme? I have swelling around my ankles. Dr. Schaller's book shows people with very bad swelling in various parts of their bodies due to bart. It appears to be edema but it does not dent the way edema does. Does it hurt? The pain I have is almost a burn. It is much better with treatment.

+Lyme
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   Posted 8/29/2009 8:04 PM (GMT -6)   
CajunGrl, what is this swelling from?
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


CajunGrl
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   Posted 8/30/2009 12:31 AM (GMT -6)   
Turquoise,

I do have swollen lymph nodes under my arm. Both arms actually. It was swollen again when I woke up from a nap. I wonder why it's just doing this now?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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CajunGrl
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   Posted 8/30/2009 12:36 AM (GMT -6)   
nefferdun,

That is very interesting. I was clinically diagnosed with Bart but my test came back negative. I have all of the Bart symptoms though, including painful soles of feet, rage, depression, and a few others. I also noticed last year that my ankles would swell up real bad when I was on my feet too long but I thought that was just because I was overweight and running around the hospital for clinicles. I've pushed on it and it does not stay in.

Oh and yes, my fingers do hurt. They hurt before the swelling though. They get real stiff and painful. My hand does not hurt as far as I can tell.

Was there anything in Dr. Schaller's book that said what to do to get the swelling down?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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Post Edited (CajunGrl) : 8/29/2009 11:40:52 PM (GMT-6)


CajunGrl
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   Posted 8/30/2009 12:39 AM (GMT -6)   
Lyme,

I have no idea. I guess it is fluid. I've never had this happen before. It's usually in my ankles, not in one hand.

Now, I did get bit by something on my upper arm, right below my elbow but that area is not swollen. I thought that maybe there was a connection but I just don't know.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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Turquoise Sky
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Date Joined Apr 2009
Total Posts : 250
   Posted 8/30/2009 8:28 AM (GMT -6)   
On certain residents, who it was made sure there were no blood clots, and when the therapist gave us the program, we massage and push the fluid back up the arm and have them flex and extend the fingers, wrist, elbow, and shoulder. Also forward and backward circles of the wrist and shoulder. One set of 10 reps each. If the resident is not able to do the exercises, we do it as passive range of motion, just very gently and slowly. I am not a doctor or therapist, so nervous about telling you to do something without your doctor's okay.

CajunGrl
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   Posted 8/30/2009 8:55 AM (GMT -6)   
Thanks Turquoise. I'd never do anything without asking my doctor. Thanks for taking time to post that.

I just got off the phone with the lady who supplies my supplements. She is also a good friend too. She believes it's fluid build up. She told me to take some Natural Calm Magnesium to get the fluid out. I have some and I will try it and see if it helps.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


nefferdun
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Date Joined Feb 2008
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   Posted 8/30/2009 10:47 AM (GMT -6)   
There are over 30 strains of bart but the labs only test for 3 so it is very common to have a negative test and still have bart. Mine was also negative. You have all the symptoms of bart. Swollen lymph nodes is another one. Schaller's book is worthless unless you are in denial that you have bart as it describes the physical details pretty well. You can see the pictures more clearly by going to his web site where many of them are in color rather than blurry black and white. He does not tell you anything about "the cure or treatment". For that, you must fork out another $500 for a half hour consultation. The treatment most people have paid for, is to take 20-25 HH capsules a day. Zhang now makes HH-2 which is twice as strong so you only have to take 10-12 capsules a day. In his book Schaller says none of the abx drugs work - none!

There are so many people on this forum that have bartonella symptoms but tested negative and are not getting treatment. Yours are classic and a lot worse than what I exhibited. You will feel so much better to knock it down with something. It takes a long time for the swelling to go away completely but you should have reduced pain a lot sooner. My ankles are still slightly swollen but until I started the new capsules (I think I am herxing) the pain was gone. Some of the other symptoms I have that you may want to check for, are hard lumps along my shin bone and painful nodules here and there under my skin. Also look for, spider veins, pea size dark brown spots and tiny blood blisters as well as what appears to be purple or red stretch marks. Migraine or headache is common, shin or foot pain, hot flashes, feeling the urge to urinate or feeling you have an infection when you don't, muscle spasms or twitches, and eye sensitivity and dryness.

It really affects you emotionally, not just extreme irritation, anxiety and depression but the feeling of just not being connected to the world or yourself which expresses itself as lack of motivation, apathy to life in general - and the urge to just sit things out in a dark closet ( my analogy).

I have read lyme disease always lowers your body temperature but with bartonella your temperature will go up and down. It is usually higher in the morning. When I have a hot flash my temperature is higher than normal. There is a 2 degree difference for me. Looking for the skin changes (like the swelling and swollen lymph nodes) and then taking your temperature several times a day might help you determine it is bartonella and not just lyme - most people are co- infected.

Gretchen1
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Date Joined Jan 2007
Total Posts : 3125
   Posted 8/30/2009 11:36 AM (GMT -6)   
yeeesh!  Nice pics!  Good luck girl.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


+Lyme
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Date Joined Apr 2009
Total Posts : 1295
   Posted 8/30/2009 12:02 PM (GMT -6)   
CajunGrl, I have no idea if your swelling is a serious as this, but I did just a precursory search on lymphodema last nite because my father has this. He had it in his legs, and mostly ankles and feet for over 10 yrs before asking the Dr about it.

One piece stated it could begin as a result of an injury or illness. Although it is most likely your Bart, maybe you'd want to look at this.

I have minor swelling in my ankles and feet at the end of the day, but surely it is related to TBI. And do you know that while waiting tables for almost 20 yrs, my feet NEVER hurt. But now they hurt most of the time.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


Traveler
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Date Joined May 2007
Total Posts : 13292
   Posted 8/30/2009 1:23 PM (GMT -6)   
Hey CG!!
Gosh!!! Your fingers are not only swollen like mine (most days), but are twisting like mine as well!!!!

My gp & I figured it was Lyme Arthritis, but who knows, as we are both just guessing.

I know for me, when my fingers & wrists & hands are beyond living with - I used just "aspercreme" I softly rub them for as long as each hand will allow.

Heat seems to ease them the most. Another thing & what actually helps the most - is doing dishes - as long as I am able to actually hold on to each dish!!!

This incorporates both the heat applidation & movement. Unfortunately, it's not very often that I can actually hold on to any dishes

to any certainty. My muscle spasms have gotten to the point that I can't trust myself at all with handling them. =(

I have also read something a few months ago about BLI (?) - Bartonella Like Infection. Kind of like STARI - a "like" infection, but no way to confirm it with any tests that are available yet.

Good luck with any tx!!
- Traveler
"Conditions": Lyme Disease (neuro, gastro, bone, brain, muscle, hearing involved), STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


CajunGrl
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Date Joined Mar 2009
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   Posted 8/31/2009 4:51 AM (GMT -6)   
nefferdun,

Wow, that is me to the tee. I have most of those symptoms. I don't know about the lumps on my shin bone but I do feel something that is bumpy when I run my fingers up along it. It doesn't hurt or bother me though. I have these bumps under my skin that my ex internist said were fatty nodules. They hurt though. I had one that stuck out where you could actually see it. It is finally going down after about two years. It's still sensitive in that area though.

I have the purple/red stretch marks, foot pain, hot flashes, Migraines, feeling the urge to urinate! I've had bladder infections off and on for years and I get them every 2-3 months BUT, when I don't have an infection, I still feeling like I do and I've been running to the toilet almost going on myself recently. I have a pressure down there too after I urinate.


I also have muscle spasms and twitches, eye sensitivity and dryness(my doctor thought I had sjogrens). And of course, the swollen lymph nodes.

I am definitely very emotional, especially while on treatment. I have rage outbursts and depression. I was just telling someone yesterday that I have no motivation. I was supposed to book a hotel for our stay in Florida and I just have no energy/motivation to even deal with it right now. And YES about wanting to be in a dark place. That's me!

Wow, I didn't realize how much of a freak I was. It is kinda scary typing all of that out!
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 8/31/2009 4:54 AM (GMT -6)   
Gretchen: Thanks girl!


Lyme: Thanks for the info. I read up on it and don't have any of the other symptoms but will definitely keep an eye out for it.


Traveler: Well that makes me bumbed! I just got finished telling my husband that I hoped it wasn't Lyme Arthritis! Thanks for the info though.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 8/31/2009 3:57:33 AM (GMT-6)


nefferdun
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Date Joined Feb 2008
Total Posts : 900
   Posted 8/31/2009 5:19 PM (GMT -6)   
CajunGrl, if you were sitting in the LLMD's office that I saw, he would tell you there is no question that you have bartonella and he would be writing you out a prescription right now!! You can also have a 15 minute free consultation with Dr. Zhang (when you buy his book for $20) and he will confirm that you have bartonella. Things are only going to get worse if you don't do something. The HH-2 capsules are $38 for bottle of 45. You begin by taking 3 a day and then work up. If you were taking the full amount that Schaller recommends it would cost you $200 a month. Levaquin is $300 a month. Don't start with a high dose though. It will be too much. Before I knew I had bartonella I ordered some HH capsules and took 3 a day. I got insomnia and felt like I had a bladder infection which I thought was a side effect. Zhang tried to tell me it was a herx reaction but I wouldn't listen. I was taking the other herbs for lyme but after 5 months I started to really deteriorate so I quit everything and it was shortly after that that I went to see the LLMD who diagnosed me. I am so glad I found out that I have bartonella. When I bought Schaller's book and saw pictures of the skin abnormalities, there was no doubt at all.
Hope you are on the way to recovery -

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 8/31/2009 5:22 PM (GMT -6)   
PS the lumps on my shin bone do not hurt either. Maybe you should buy Schaller's book so you can see the pictures to confirm your diagnosis. You can buy cheaper copies of it on amazon.com. Mine was $50, a rip off I thought, but if it makes a believer out of you so that you get treatment, then it is cheap.
So I am going to have to change my opinion about his book. It is good for anyone that is not diagnosed.

notwellengood
New Member


Date Joined Aug 2009
Total Posts : 8
   Posted 8/31/2009 7:07 PM (GMT -6)   
Yikes! I'm going in for hand surgery on both hands for severe carpal tunnel. I had a raging lyme test 4 months ago and was put on 100 mg oral doxy twice a day, my test amonth later for lyme and other tick born (Western Blot) came back negative. My hands were excrutiating at night and useless during the day even after the doxy. My knees got worse when the doxy stopped. Mds said I was cured! I was crippled. I've been to 4 MDs, a neurologist, a rhumatologist that was supposed to be Lyme Literate and now a hand surgeon. It just so happens I got an upper respiratory infection. I don't recommend this but I took SulfaTrimethoprim 800 mg 2X per day for the upper resp. I can now run and jump and am gaining strength and sensation that I haven't had in 5 months!!! OK Docs out there, why is this happening and so sudden after only 4 days of therapy!!!

notwellengood
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Date Joined Aug 2009
Total Posts : 8
   Posted 9/1/2009 12:10 AM (GMT -6)   
Is it painful? it looks like it hurts

CajunGrl
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Date Joined Mar 2009
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   Posted 9/1/2009 6:55 AM (GMT -6)   
notwell,

It was a little bit more painful but it was already stiff and painful before it got swollen.

Good luck with your hand surgery. I hope your hand feels better after surgery.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


notwellengood
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Date Joined Aug 2009
Total Posts : 8
   Posted 9/1/2009 8:30 AM (GMT -6)   
Thanks feel better, God Bless

Harleyrider
Regular Member


Date Joined Sep 2008
Total Posts : 283
   Posted 9/1/2009 12:05 PM (GMT -6)   
I have all these symptoms and the doctors and tests came back negative...

I have questioned the pee sized brown spots on my legs and arms but
no one seems to tell me what they are...

Maybe this is a symptom on Bart that they say I dont have. Hmmm.

Learn something new everyday on this site...

Thanks Everyone!
 

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