Question about getting better on meds

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lookingaround
Regular Member


Date Joined Aug 2009
Total Posts : 20
   Posted 8/31/2009 12:11 PM (GMT -6)   
Hi all,

I think I posted this long ago but can't find it or any of the answers...

I'm on a 28-day regimen of Doxy, and I'm on day 11. I feel MUCH better since being on the meds, but I'm wondering:

For those that are successfully treated, how long until you feel 100% better? I think someone posted before that it takes about three weeks after finishing meds. I just want to be sure I'm on the right track (I feel about 75% better now).

Thanks!

PS--And yes, I know that I might not get better but I'm asking this question assuming I will!

ttlittlestar
Regular Member


Date Joined Jul 2007
Total Posts : 296
   Posted 8/31/2009 2:46 PM (GMT -6)   
There is no easy answer to your question. I started on Doxy a couple of days after my bite. But was not on in long enough as it turns out (was on it for 3 weeks) and the Lyme came back a couple of months later way worse than it was when I first got bit. At a guess, 28 days will not be enough time. I was told you really need 6 weeks minimum. I am just really feeling like myself again after over 2 years. Realistically, if the treatment is successful, it still takes a few months to feel better. The cells damaged by Lyme are still damaged when the Lyme is dead. They need to regenerate, which takes time. Really consider an infrared sauna to help detox. They are less than $200 new and will help your body fight this.

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 8/31/2009 3:39 PM (GMT -6)   
it has taken me about 3 months to get 100%

lifedancer
New Member


Date Joined Aug 2009
Total Posts : 13
   Posted 8/31/2009 4:01 PM (GMT -6)   
I'm afraid I can't help much but offer to share the wait with you. I started on Doxy 100 mg 2x daily 6 weeks after exposure. I am on day 13 of 28 days and I am feeling mixed results - less headaches, maybe slightly less fatigue, but more muscle aches, more joint pain, more stiffness in my hands.

I will tell you this: I am actively trying to convince my NLLMD for a higher/longer dosage. If I am unsucessfull with her I am going to email and fax a letter to the Infectious Disease MD she is sending me to and make my case with him, plus look for a LLMD. I'm curious: are you seeing a lyme literate MD? do you know when your exposure was? (I apogize if you have posted this elsewhere, I am a newbie trying to get up to speed with everything).

I hope you continue to feel better every day and that your recovery is swift and complete! I am trying to expect that I will improve while at the same time increase the odds in my favor : )

Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 8/31/2009 6:28 PM (GMT -6)   
I've been on Biaxin for three weeks, and I feel worse than every. Coincidentally, I felt a whole ton better right around day 11-12. But-I've had Lyme disease for two years. If you are on a 28 day course of doxy, I am guessing you caught it pretty early, so hopefully your results will be better.

Lymeymom
Regular Member


Date Joined Aug 2009
Total Posts : 33
   Posted 8/31/2009 7:25 PM (GMT -6)   
I got bitten 8/2008 - 8/4/9 reg physician put me on 30 days doxy pending referral to infectious disease doc 9/2/9. I don't feel better at all - some symptoms worse.
I also believe I need to be on higher dosage and am seeking LLMD.

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 8/31/2009 7:35 PM (GMT -6)   
James, are you saying that you are now 100%???? If so, WOW! And Great job!
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/1/2009 5:11 AM (GMT -6)   
Hi everyone,

I know some of you have seen this so I'm posting to the members that haven't. This is the dosing guideline from the ILADS site.

Dosage

Increasingly, clinicians recommend that certain drugs used for Lyme disease be given at higher daily doses: for example, 3,000–6,000 mg of amoxicillin, 300–400 mg doxycycline, and 500–600 mg of azithromycin. Some clinicians prescribe antibiotics using blood levels to guide higher doses. Close monitoring of complete blood counts and chemistries are also required with this approach.


Here is the link. It has a bunch of good information:

http://www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

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