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momofdom
New Member


Date Joined Sep 2009
Total Posts : 1
   Posted 9/1/2009 7:36 PM (GMT -6)   
Hi-


My son is 23 years years old and has been dealing with this Lyme thing since he was bitten by a tick when he was 19. His story is like so many others: he tested negative repeatedly but his cognitive symptoms increased rapidly, causing him to sink into depression and necessitating a break from college which was very important to him. He was treated at first with a course of oral doxicycline and after another year of suffering and begging doctors to do something, one relented and gave him a 5 week course of intravenous Rocephin. Insurance would not approve any longer than that and the treating doc was reluctant to push the envelope by treating him further.. After a break of a year or so from visiting doctors, I took him to Long Island to see Dr. C. at Stoneybrook University, a specialist in MS and neurologic Lyme. She immediately noticed his depression and said that it needed to be treated before we could go any further. We complied and my son was placed on an anti-depressant 2 years ago which he continues to take today. He is by no means back to 100% and still struggles every day with brain fog, fatigue, tinnitus and lack of concentration. The drug helps with this, but it is apparent it is just an antidote for his symptoms and not a cure. He has weaned himself a couple of times only to fall back into the symptomology of sleeplessness, irritation and depression. He has more or less accepted this state he is in for now as he is tired of making the rounds to different doctors. I find it interesting that the argument made about long term antibiotics and the effects this may have is not matched by the possible effects of long term anti-depressant use. I believe there something more to this whole debate that is yet to be fully unveiled. (If you haven't yet, see the movie "Under OUr Skin") My son is currently Student Teaching and will graduate from Penn State in December. He was always an extremely healthy, emotionally sound person as are my other 2 grown children. There is no history of depression or mental illness on either side of his family. Despite the skepticism of many doctors, the fact remains that in July of 2006 my son embarked on a week long hiking trip in perfect health in both mind and body, and when he returned, after being bitten by a tick in the deep woods of Northern PA, his mental and physical health began a slow and frustrating decline for which we still have no solution. We move on but it still brings tears to my eyes when I think about how my son has spent his college years and what the future holds for him Thanks for listening----

Post Edited By Moderator (CajunGrl) : 9/2/2009 1:11:07 PM (GMT-6)


ttlittlestar
Regular Member


Date Joined Jul 2007
Total Posts : 296
   Posted 9/1/2009 8:42 PM (GMT -6)   
Welcome to the forum! Have you tried Dr Zhang's protocol? It has made such a difference in my life.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 9/2/2009 1:33 AM (GMT -6)   
momofdom

welcome to the board, have you tried to take your son to a LLMD? if not maybe you should look into it. and also check for co infections as they can be just as bad if not addressed.

there are other members here who will post a lot better info then i can give you. but i wish you and your son the best :)
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 9/6/2009 10:26 PM (GMT -6)   
Dear momofdom,

I am sorry for your family's suffering. I hope your are able to see a lyme literate medical doctor or naturopath that can help you with continued treatment for your son. There are also natural treatment protocols by different doctors, such as Zhang, Jernigan, Cowden, Buhner etc. You may find it useful to read the topic at the top of the first page of this forum entitled, "The Basics, Newbies check this out". It will have informaiton to help you learn about this disease and it's associated diseases. There are also lots of websites with info about lyme.

Welcome to this forum. There is a lot of information to be gained here and the members are very willing to share what they know. Please feel free to ask any questions you may have. You can read through "back pages" of this forum also. Your son may want to join also!

Best wishes to you and your family, bablymers mom

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/7/2009 8:52 AM (GMT -6)   
Mom, I am glad you came here, but very sorry for the reason. Unfortunately, this sad story is too familiar. There are so many answers we need to find, and we've got to get our Drs to help us find them!
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 9/7/2009 10:23 AM (GMT -6)   
Welcome and thank you for sharing your story. All of our "stories" are so similar, the medical community will EVENTUALLY HAVE TO DEAL WITH US! When I first got sick, I was told it was "all in my head". I was placed on almost every anti-depressant and anti-psychotic medication available.... until I insisted that it was NOT IN MY HEAD... and then about a week later FINALLY received a positive LD test result... doctors started calling me right and left... I felt like their "hot potato" until I landed in my first Infectious Disease doctors office and was verbally ripped to shreds and told over and over again by a yelling female ID doctor that "WE DON'T HAVE TICKS IN FLORIDA. WE DON'T HAVE LYME DISEASE IN FLORIDA. WHAT, DO YOU THINK IV ANTIBIOTICS ARE FUN??? TAKE ALL YOUR LITTLE NOTES AND CALENDARS AND GO UP NORTH WHERE THEY WILL TREAT ANYONE AND EVERYONE WHO 'THINKS' THEY HAVE LYME DISEASE - BECAUSE YOU DON'T!!!"

I was no longer on the top of anyone doctor's list.. In fact I wondered many times if I was on a secret "black list" kept between local doctors. It took me 4 more months to find a doctor to trat me and he prescribed 200 mg of Doxycycline for 4-6 weeks. I COULDN'T BELIEVE IT. ALL THIS HE11 FOR A BOTTLE OF DOXY????? And that was how my LD journey began, now it's been 9+ years... I've had one true herx and thought I was "cured" until I started to slide back down... and here I am.
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
10/01- Igenex and CDC LD positive
Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT  
 

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