I first appeared on this board a few weeks ago. I been researching Thyroid disease, MS and Lyme. I was pretty sure I had one of these. I went to my family physician and he tested me for Lyme and immediately started me on antibiotics- doxycycline 2 times per day 100 mg for 22 days and sent me for MRIs. My WB came back "negative". The WB test was done by Labcorp and I had two positives IgG P41 and IgM P23. My family physician referred me to a neuro and even my family physician was very hesitant about MS, but wanted to leave no stone unturned. The nuero I went to see was young (mid-30s) and seemed confident and matter-of-fact. I liked her right off. She looked at my MRIs, saw lesions on my brain and spine and said, "You have MS." She took me over to the film viewer and pointed out the lesions and said they were small. She decided that I should have an MRI of my lower back done and a lumbar puncture. That is scheduled for tomorrow. I was so sad after my appt, but accepted it as my illness and decided I would deal with it. I posted on the MS board, but I was then thinking I have a Thyroid disorder. I ruled out Lyme because she said, No, you definitely don't have Lyme. The more research I did, the more I began to think about all of the things I've experienced over my life. I mentioned to the neuro that I had Bell's Palsy in 1993 (20 years old) and she said, Yes, this is characteristic of MS. I asked her about the awful sun sensativity and she said that maybe I had another auto-immune disorder. Not lyme. So, here are all my symptoms and dates for the "big events"
Allergic to cold and pressure (Dx in 1983)
Bell's Palsy in 1993
EXTREMELY sensitive to the sun (not heat) started in April 200
Ankle swells daily and sore (past several months)
Numbness on left side from shoulder to foot (August 2009 to present)
MRI shows 5 lesions- 4 on brain and 1 on spine (August 2009)
Lyme test negative (August 2009)
Stiff neck (August 2009, gone after a few days of antibiotics)
Burning or stabbing sensations all throughout body- in toes recently
Loss of sex drive
Today, I went to Dr. J in Maryland and he told me that I had Lyme and that IgM 23 was specific for Lyme. He believes I have co-infections (not sure if I'm describing this correctly). He's sending me for a series of test and is piggy-backing off my lumbar puncture tomorrow and asked that I get them to take an extra vial to take to his lab. So, that's where I am. Dr. J is convinced I have Lyme and other infections and now I feel like I can finally get to the bottom of this. Don't give up! I ALMOST did. I almost cancelled my appt. by my husband insisted that I get a second opinion. My neurologist seemed to focus on the MRI and didn't really consider all of my other symptoms. Dr. J looked at the entire picture and that is the kind of doctor we all need. Also, I obtained copies of ALL my lab results over the past several months and take them with me to each doctor. So, Dr. J and the neuro had the same tests in front of them and gave me two completely diagnosis. It can happen! I am still in disbelief...
Post Edited (mokeyho) : 9/3/2009 7:00:53 PM (GMT-6)