Treat Lyme Without Insurance?

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gvn11
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/2/2009 6:07 PM (GMT -6)   
I'm 27 years old and was diagnosed with Lyme a few years ago. I didn't think much of it even though I had symptoms. Currently my symptoms are dizziness, forgetfulness, numbness in extremities (hands, feet, eyes, ears, nose, jaw, etc.), dry skin, tiredness, tingling throughout muscles, headaches with lights, and I also stutter which has gotten more and more severe over the years. I can tell the stuttering is related to my throat being tight and tense, which is how my other muscles are as well.

Before I decided there is a good chance my Lyme is causing all of this, I had an MRI, multiple doctors visits, an EEG, eye exams (for the headaches with lights), and many other tests to try to find the cause. I always ended up at square one with no leads, except for my symptoms that were gradually getting worse.

I currently do not have insurance. I would like to begin treatment and don't mind ordering what I need from "outside pharmacies." Is this not an advisable thing to do, or is this a standard approach non-insured Lyme sufferers take to getting treatment?

Also, if I successfully treat my Lyme, should the tingling, numbness, memory problems, etc. go away, or has the damage been done? I haven't known what being clear headed and comfortable feels like since I was probably 10 years old, and I don't remember most of my childhood, so basically I don't know what it feels like to be normal. I'm excited to begin some type of treatment to see if things improve.

Thank you for any advice you can give me.

DazedDaisy
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/4/2009 8:11 PM (GMT -6)   
Hey Gyn11,
you are so lucky to get a diagnosis at 27! I am 45 and misdiagnosed for more than 25 years! Lupus, no MS, no fibromyalgia, no CFS, no there is nothing wrong with you kind of senario...
Take a deep breath, this is going to take a while. I have been on ABX for almost a year including Inter muscular or IM and about to get a PICC line for IV Rocephin. I have no insurance and like me you now have a pre-existing condition and are not likely to find a carrier willing to insure you. I am going on State funded assistance. They declared me "disabled" which hurts my pride but is sadly true, for now, not forever. I REFUSE to lose to a bug!!

Walmart has been my biggest ally and online drug programs for discounts have been a lifesaver too. ( discount drug card . com) Within one month of IM rocephin I started to be me again. I could hear it in my voice. I stutter too, but for me its more like searching for words on the rolodex in my mind, can't find it...and for what it is worth diet is EVERYTHING!! Spirocetes live on sugar!! they make you crave it and its crazy making. Low carb, no sugar, no flour, no grain, and very little fruit helps me feel my best. Also getting the bug poop or neurotoxins out is cruical. I alternate Cholestyrimine and white clay. when I miss a few days I can totally tell. I misspell my name and feel super achey and foggy.

Thank you for the comment about not remembering...I have lost lots of memories too and for what it is worth...we will never be normal. We are survivors of a crazy making polically incorrect disease that is way outside the box of alopathic medicine. We are special people. My goal is to be able to speak, type and think clearly, move without pain and lose the locusts that hum in my ears all day.
Hope this is helpful!

gvn11
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/4/2009 8:37 PM (GMT -6)   
Wow, thank you so much Daisy!!! Your comment about craving sugar really got to me. I've craved and ate lots of candy and sugary foods since I can remember. I used to eat 2 bags a day. Sometimes my body feels like it's shutting down and I need sugar or carbs in order to think again.

So starting off on IM rocephin is the best thing to do? Do you know what amount I should start off with? I really have no idea where to start.

Again, THANK YOU!
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