I'll share a victory and what I believe is a step in the right direction for my treatment.
After everything I read on this site so far, plus carefully reading the ILADS report (and my own instincts and common sense) I became convinced that I should be on a higher dose of Doxy asap.
I provided my NLLMD with a copy of the the ILADS report and made it clear that I wanted my rx upped, and asked her if she would consider it. I am seriously fortunate that my NLLMD was willing to look into it and I got a message from her assistant that a new rx was called in for me! Wow!
I can't tell you how happy and grateful I felt. I only knew to ask for this because of the info availabe at this site, plus the encouragement of everyone to advocate for myself.
Granted, she gave me part of what I asked for - but with what I left from the current rx it's enough to take 400 mg/day for 21 more days. (60 days would have been great, but at least I feel like this has bought me some time to get in to see a LLMD while I'm at a ILADS reccomended doasge.)
I'm dropping sugar and most carbs from my diet. I'm taking my probiotics. And I have this community to thank. I just want everybody to know, in whatever stage they are in - and I have a friend who's been very sick for a long time so I know that people experience much much much more challenging sx than mine - how supported I feel and how is helping me to be powerful. My sx scare me sometimes, but I feel loads better just from this first victory.
Post Edited (lifedancer) : 9/3/2009 1:57:17 PM (GMT-6)