Good News and Gratitude

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lifedancer
New Member


Date Joined Aug 2009
Total Posts : 13
   Posted 9/3/2009 1:53 PM (GMT -6)   
I'll share a victory and what I believe is a step in the right direction for my treatment.
 
After everything I read on this site so far, plus carefully reading the ILADS report (and my own instincts and common sense) I became convinced that I should be on a higher dose of Doxy asap.
 
I provided my NLLMD with a copy of the the ILADS report and made it clear that I wanted my rx upped, and asked her if she would consider it. I am seriously fortunate that my NLLMD was willing to look into it and I got a message from her assistant that a new rx was called in for me! Wow!
 
I can't tell you how happy and grateful I felt. I only knew to ask for this because of the info availabe at this site, plus the encouragement of everyone to advocate for myself.
 
Granted, she gave me part of what I asked for - but with what I left from the current rx it's enough to take 400 mg/day for 21 more days. (60 days would have been great, but at least I feel like this has bought me some time to get in to see a LLMD while I'm at a ILADS reccomended doasge.)
 
I'm dropping sugar and most carbs from my diet. I'm taking my probiotics. And I have this community to thank. I just want everybody to know, in whatever stage they are in - and I have a friend who's been very sick for a long time so I know that people experience much much much more challenging sx than mine - how supported I feel and how is helping me to be powerful. My sx scare me sometimes, but I feel loads better just from this first victory.

Post Edited (lifedancer) : 9/3/2009 1:57:17 PM (GMT-6)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/3/2009 2:02 PM (GMT -6)   
lifedancer,

That is awesome!!!! I am so very proud of you. You were determined to control the outcome of your life and you took charge. Congrats to you for doing that and getting the medication you truly needed.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35705
   Posted 9/3/2009 2:59 PM (GMT -6)   
turn turn

CONGRATS, CONGRATS, CONGRATS!!!!

Good going Lifedancer!!!!

You took control & became your own health advocate!!!!! yeah
- Traveler
"Conditions": Lyme Disease (neuro, gastro, bone, brain, muscle, hearing involved), STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


mokeyho
Regular Member


Date Joined Aug 2009
Total Posts : 102
   Posted 9/3/2009 3:13 PM (GMT -6)   
That's awesome! Sometimes you just have to take matters into your own hands :)

You mention dropping sugar and carbs. Does this have something to do with Lyme? Is Lyme more affected by carbs/sugar?

lifedancer
New Member


Date Joined Aug 2009
Total Posts : 13
   Posted 9/3/2009 3:33 PM (GMT -6)   
Mokeyho - The impression I have is that some people think Lyme bacteria growth slows down or dies off more quickly in an environment that has less easy "food" for it - like simple sugars and refined carbs. I want to send a message to Lyme that my body is not its personal buffet!

I have not found a working link to The Lyme Diet yet but I will post it when I do. I've just sort of figured this out from some postings on this site about a page back that say 'Diet for Lyme" - if other people know more please post! Especially a free online explanation/guide to the Goodbye Lyme Diet would be much appreciated by myself and others.

Post Edited (lifedancer) : 9/3/2009 3:40:38 PM (GMT-6)


bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 9/6/2009 9:29 PM (GMT -6)   
yipppeee!!! Congratulations lifedancer!!
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