How many of you have been diagnosed with Fibromyalgia or have the symptoms?

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strongmom
Regular Member


Date Joined Aug 2009
Total Posts : 79
   Posted 9/5/2009 10:39 PM (GMT -6)   
I am curious because my Rheumy diagnosed me with Fibro a couple of days ago.  He said that doesn't  mean it's all I've got,  but that was what he was able to determine with that particular visit.  I've got all the tender spots.
 
He said illnesses like Lyme can cause it.  So I was wondering how many of you have been diagnosed with it or have the primary symptoms of Fibromyalgia.
 
And I'm sorry if you do have it.  Thank you for responding.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 9/5/2009 11:10 PM (GMT -6)   
I was told I had Fibromyalgia based on the tender point exam 10 years ago. Magnesium supplements seemed to put the symptoms into remission, though, so I do not think I actually had Fibro...
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/6/2009 11:48 AM (GMT -6)   
The first year of my infection, I FELT like I had fibro. I did not go to a Dr for it and kind of tried testing the tender points myself, but the kind of pain I had felt like what was described as fibro.

All I can tell you that I know, is that many people w/ Lyme also have fibro. Also, many people claim to have been misdiagnosed w/ fibro, when they really had lyme.

There are folks on this forum who believe that everyone w/ fibro, chronic fatigue, and MS ALL really have Lyme, and I would not agree w/ that.

It seems to me, that since they don't know the cause of fibro, and since it seems that it is so closely related to chronic fatigue syndrome (don't many people have both?), and they all seem to be so closely intertwined, along w/ immune suppression and viruses, that some of these may be root causes of the other.

Sorry, but I have definite lyme brain today, so I don't know how to say all this. But I believe it is entirely possible (not necessarily probable) that lyme can cause the others, OR the others may cause people to be more suceptible to lyme.

I think that I have questioned this before. But sometimes I wonder if it is possible that MORE people than we know get infected w/ Lyme, and their bodies/immune systems fight it.  And that could be the reason why so many do not believe in chronic lyme.  Maybe we are the minority, and not the majority?

WE dont' believe that is possible, but WE and others like us may be the only ones we know of to be infected w/ Lyme. Is it possible that WE cannot fight it off and require the abx to fight it because our immune system has been compromised by something else? For example heavy metal toxicity?

Whatever, I know what I'm thinking about, but can't say it right.  Who knows, anyway?

StrongMom, it sure sounds like you've got a great Dr, in that his mind sounds open to all possibilities. If we had more Drs like this, maybe we would find the answers for these currently 'mysterious' diseases. There does seem to be definitely relationships between all of them.


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 

Post Edited (+Lyme) : 9/6/2009 11:51:24 AM (GMT-6)


strongmom
Regular Member


Date Joined Aug 2009
Total Posts : 79
   Posted 9/6/2009 12:11 PM (GMT -6)   
I forgot to mention I was already diagnosed with Lyme a few weeks ago.  Had the bullseye rash, it was huge,  and IGM 41 only one showed up positive (which I've read is the first to come back positive in Lyme.)  They rheumy is sending me to an infectious disease doc for further testing.

bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 9/6/2009 3:56 PM (GMT -6)   
Hi strongmom!

Welcome to the forum! I'm sorry you have lyme and fibro. but I'm glad you found this forum. It's a great place to come and share thoughts and to learn.

As I understand it, the bullseye rash is confirmation enough for lyme. Plus, you have other symptoms such as the fibro pain. I'm not sure more expensive tests are actually necessary but if they help you get treatment for lyme, then it's worth it. I hope you start treatment right away. The longer you wait, the harder it is to become completely well.

I agree with what +Lyme said, above.

My daughter and I have some of the fibro symptoms but I'm not sure we would actually qualify with all of the tender spots. It was suspected that we had it until we found out we had lyme. Also, we're sure we have chronic fatigue, but we know it is due to viruses as well as lyme etc. I imagine that fibro symptoms can be due to more than one cause also, since different treatments, like nutritional supplements, can help symptoms.

I hope your recovery comes swiftly and completely. Best wishes, bablymers mom

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 9/7/2009 7:03 AM (GMT -6)   
I saw your post and popped over from the fibro forum. Your fellow lymies who have posted above are correct in their explanations. You can develop fibro from lyme and you can also come up with one or the other independently. The major difference between them is that there are definitive treatments for lyme, the causative agent is known and it has measurable lab test results.

Fibro is usually diagnosed when all other similar illnesses are ruled out and available treatments are only palliative, not curative. It cycles and reoccurs without warning but flares appear to be stress related. Fibro seems to be a chronic disorder that, along with other signs of aging, can debilitate mostly women in their 40's and later years. Symptoms can improve with magnesium supplements, regular gentle exercise, the addition of serotonin enhancing medications and especially the attitudes of the patient, family and friends. As one of our group says "Fibro is a life sentence but it's not fatal." Good luck with this and feel free to read all you can in the fibro forum for some relief from symptoms.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 9/7/2009 10:33 AM (GMT -6)   
I have been diagnosed with fibromyalgia, chronic fatigue syndrome, Reynauds, Ehlers Danlos, chronic depression, anxiety disorder AND Lyme disease. All of these extra diagnosis may have helped get my disability approved. I'm pretty sure once I get the Lyme disease cured (if ever, if even possible) that the fibromyalgia, chronic fatigue syndrome, Reynauds, Ehlers Danlos, chronic depression and anxiety disorder will be cured too.

Oh, and the carpal tunnel... and I am currently losing the use of my left thumb and will be in a new brace.
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
10/01- Igenex and CDC LD positive
Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT  
 


gorbybelle
Regular Member


Date Joined May 2009
Total Posts : 147
   Posted 9/7/2009 2:42 PM (GMT -6)   
I was convinced I had 'fibro' - untill I discovered lyme - I then remembered my 'fibro' started about one month after a 'tick-bite'!!

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 9/7/2009 7:23 PM (GMT -6)   
There's a lot of overlap in symptoms, so it wouldn't be unusual at all.

The real question is why does Lyme trigger fibro?
Bit June 08.


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35695
   Posted 9/7/2009 9:35 PM (GMT -6)   
IMHO, & if I remember correctly from what I have read over the 20 plus yrs on these subjects- each one of these chronic conditions attack mainly while our bodies are stressed.
The thing that sucks the most is that we don't always know when or what is going to be 'the straw that breaks the camels' back.

I have tried to figure out when my body is under stress over the last 24 or so years & I seem to never be amazed when it happens. We don't always know or understand just how much stress any one thing may be causing our bodies.

Not to mention the miriad (sp?) of things like heavy metal toxicity or even a fungal infection which may not be showing overt signs.

There are many reasons I should have suspected mold to be an issue in our unfinished home, but we honestly didn't live in it for the 1st 10 yrs - we traveled for hubbys' work.

Now, as we are starting to try to repair those "little" items we had noticed recently - well - we have uncovered a lot more than we ever expected (similar to my experience with LD & getting tx - rolleyes that's just not right!!) We have a much bigger mold issue than we ever thought we had.

So I have spent the last 10 yrs with my body fighting mold & I had no clue how hard it was having to fight. Our immune systems get compromised - that's when these things get their foot in the door.

BTW- our bedroom ceiling is getting torn down & repaired and will have new insulation, starting in a couple of days. Sure glad the weather is not really hot or really cold here!!! shocked

One more thing- I was dxed w/ CFS & told I would never work again in 1987 & dxed w/ Fibro (18 out of 18 trigger points reacting) in 2007.
- Traveler
"Conditions": Lyme Disease (neuro, gastro, bone, brain, muscle, hearing involved), STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).

Post Edited (Traveler) : 9/7/2009 9:38:22 PM (GMT-6)


bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 9/8/2009 2:56 AM (GMT -6)   
Hi Traveler,

Just a quick note-----I hope you were able to buy "NO VOC's" insulation= no off-gassing. One of my dear friends has not been able to live in her home for 10 months, while they tried to figure out what the problem was. Initially it was a mold problem, and lack of ventilation, but the house still made her sick even after repairs were made. All carpet had to come out---hard flooring put in. Still trouble, so now they found out it is the off-gassing of the insulation that is still making her sick!! I hope you were able to buy the no-off-gassing insulation and that you use the proper wall board and no-voc paint too.
(make sure there is NO wall board from China!--it's toxic).

Best wishes to you, bablymers mom

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35695
   Posted 9/8/2009 2:58 PM (GMT -6)   
Hi Bablymersmom!!
Thank you so very much for that info!!! I have no idea what hubby knows about insulation, but I know nothing! (At least nothing that I'll admit to!!-tee hee)

We have as yet to purchase any insulation -so good timing! I always have disliked carpeting & as a result our house has none - all hardwood & ceramic tiles.

Hubby is a Union guy, so we do our best to always avoid things made anywhere but the US/ Canada - kinda a support 'our' workers first thing. BTW - not always easy!! rolleyes

We will have cedar (from our own property) paneling for ceiling & walls - so no need for any paint!!

Thank you again!! You may have just saved us a lot of work & money!!

PS - I hope your friend got everything worked out okay!!!~
Trav
- Traveler
"Conditions": Lyme Disease (neuro, gastro, bone, brain, muscle, hearing involved), STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


kendal122
Veteran Member


Date Joined May 2007
Total Posts : 1088
   Posted 9/9/2009 12:56 PM (GMT -6)   
Traveler, how did you know you had mold in your house? could you see it? and what type was it? Thanks,
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