No more Pain Meds for me!

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stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 9/7/2009 10:17 AM (GMT -6)   
I finally finished the pain meds I was taking for my shoulder surgery and I am sad! They also helped with the terrible pain in my legs. I guess I am back to reality now. I am considering seeing a pain clinic when I get back to Georgia. How many of you are prescribed pain meds for your pain? and what?

georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 9/7/2009 10:45 AM (GMT -6)   
Hey There! How are you? I haven't talked to you in a long time. 
Are you still seeeing Dr. B.? I am doing much better, still seeing Dr. D. here in macon. The things that have helped my pain are venus fly trap and the cowden protocol. Also I use an infarred sauna that I bought on ebay. It's great for pain and detoxing.
 

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 9/7/2009 10:56 AM (GMT -6)   
I just spent a long "lost" 3 weeks in Oxycodone he11. I did everything the pain management doctor said... I tried the Lyrica which worked very well for my "skin pain"/fibromyalgia... until I became extrememly depressed...almost suicidal (although I know I don't have the 'cajones' to ever go through with it) and it also helped trigger 2 drinking episodes (which weren't pretty - but my God alcohol does relieve the pain even for a lttle while)... so I had to discontinue it. My depression lifted within just a few days

Then, I was prescribed 5mg of oxycodone to be taken 1 or 2 at a time every 4 to 6 hours. I ended up taking 50mg a day. Then she wrote out a 30 day supply, but gave me 15mg pills.... so I bought a pill chopper - which doesn't cut ANYTHING INTO THIRDS!!!! That oxycodone reached out and had a hold on my body and mind almost immediately. I have NEVER felt so dependent on any drug (including alcohol) than I did on this stuff. And then my ankles and feet swelled and I broke out in rashes on my lower arms and hands and calves and back and rear-end... my doctor said I was taking "too much" that I wasn't having an "allergic reaction" - BS! I flushed the pills (I now know that your NOT supposed to flush medications). I spent 4 days straight in bed going through withdrawals... I slept and sweated and got the chills and then slept and sweated and got the chills. On day 3 I have never had such severe bone pain ever - because oxycodone DOESN'T HEAL THE PAIN OR DECREASE THE PAIN...IT ONLY INCREASES YOUR NATURAL DOPAMINE SO THAT YOU FEEL ELATION MORE THAN THE PAIN - so that when this rx leaves your body, you hit a real bummer and your left with even less dopamine than you started out with.... pure he11 on earth. I am now exactly 8 days removed from taking oxycodone. I feel like myself, I sleep normally and want a cup of coffee when I wake up.

Be very careful with any drugs prescribed and keep tabs on yourself.... I could have really gone down hill with this oxycodone... and to think I only took it for appoximately 2 and 1/2 weeks! and spent 4-5 days in withdrawals! Oxycodone is made from a synthetic heroine.... and it behaves like heroin. Now I know why so many people are addicted to this. I can't imagine taking a "normal" dose of 150mg a day of oxycode for moderate to sever pain ever day, forever! I would never have been able to stop!

Anyway, that's where I've been for the past few weeks... aren't you glad I didn't hover over this site when I was in "elation mode"?
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
10/01- Igenex and CDC LD positive
Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT  
 


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/7/2009 2:03 PM (GMT -6)   
Jelaine, you probably SHOULD have checked in here when you were in such dire need of help!

I have always loved the feelings from these narcotics and I know I have been addicted before, altho not as seriously as you described. By addicted, I mean that my tolerance built up very quickly and I really wanted more when they were gone -- altho not ever a true 'craving'. When I could get my hands on it, I found that after 1 day I wanted double dose and within a week, I could take a quadruple dose (whatever the normal script is for one) and would not feel anything, but was too scared to take any more.

Of the people I have heard of that have died from overdoses of narcotics, I really believe most were accidental. I believe their tolerance became higher than a lethal dose.

Jelaine, I'm really sorry for this horrible episode, but glad that you realize you can't handle this drug before it was too late. I seriously salute you for going thru what you had to go thru. I don't think I coulda done it, and lots of people can't.

But I do not have the answer for those who need meds for their pain. Every drug does have a purpose, but many people have to be VERY careful.
 
Georgia Girl's advice sounds good and worth trying before getting hooked on narcs.


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 9/7/2009 2:27 PM (GMT -6)   
I truly understand and believe that many LD patients need these types of pain medications and can handle them, etc. It just totally took me by surprize. I have NEVER had that kind of reaction to ANY medication in my life. Truly scary. I'm still using cortisone cream on the scabs from all the rashes. So, I know I can't take any type of drug that reacts or is pharmacologically close to oxycodone.

Anyway, glad to be back here on earth... still have LD and my pain level is high, but I'll be OK with it until I find another solution. Thanks for writing me.
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
10/01- Igenex and CDC LD positive
Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT  
 


stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 9/7/2009 3:06 PM (GMT -6)   
Hi GEORGIAGIRL! I am no longer seeing Dr. b. She kept sending me to that osteopath and I had structural prblems that needed surgery. I am healing from the surgery and my shoulder/arm feels so much better. I will get the other shoulder done soon. ---Dr. B. did help me in some respect, but I will be looking for another doctor when I can afford it. I always said that I would be able to deal with the other symptoms if I could get me arms/shoulders feeling better. I am on my way to that, so I feel pretty optimistic. I am going to try some of the natural pain killers you are taking. I am really starting to believe that no one really gets cured from this, unless treated right away. I feel like it will just be a maintenance of the pain and symptoms that I/we do have. What ever!!!! Who knows.---You sound like lyou are doing pretty good with your program. I hope you are feeling better. I will call you when I get back to Georgia. I am visiting my mom in Indiana. talk to you soon. love, amey

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 9/8/2009 1:30 AM (GMT -6)   
stutterbug - I'll be in Indy from the 14th to the 18th - what a concidink!


Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
10/01- Igenex and CDC LD positive
Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT  
 


momtomonsters
Regular Member


Date Joined Aug 2009
Total Posts : 89
   Posted 9/8/2009 7:03 AM (GMT -6)   
I am wondering what kind of shoulder injury did you have? Was it related to lyme? I now have a pretty severely torn rotator cuff and see the orthopedic surgeon tomorrow. My gp and I are trying to figure out if the lyme weakend the tendon or if the prolonged use of antibiotics cased the weakening.

Kathleen

stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 9/8/2009 8:28 AM (GMT -6)   
I think it is a combination of LD and a structual problem. My Acrom bones hangs a little low and the inflammation, cause by LD, impinges the rotator cuff. I believe that LD/inflammation was involved in my problem because the symptoms would come and go. Meaning, the inflammation would come and go. This went on for about 17 years. My rotator cuff was damaged, but not torn. They shaved my Acrom to allow more room. I feel better. I hope it all goes well for you. love, amey
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