Abx while in Limboland..

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+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/7/2009 10:49 AM (GMT -6)   
I will try to be more succinct than usual (......)  If, by any chance, my LLMD is on this forum and knows who I am, I am sorry about some of the stuff I must say.
 
I have a clinical diagnosis of lyme, known tick bite, (no rash), +39 IgG band,  CD57 strongly backing lyme diagnosis.  Also positive test for babesia and positive for every virus tested for, plus the usual messes: thyroid, adrenal fatigue, etc.
 
I cannot return to the LLMD who did these tests and gave me the diagnosis. That story is way too long for today, but if it's needed for anyone to understand why I won't go back, I'll get into it.
 
Meantime, I am still on a LLMD 2's waiting list.  Could be a few more months, I am still pushing for sooner. 
 
I left LLMD 1"s office w/o script for babesia, not sure why (I had a stack of scripts)  I called AND emailed LLMD 1 requesting some treatment for babs. Call was never acknowledged or returned,
 
Called LLMD 1 to request a refill on the Amox, promising to make an appt.  Nurse left a message, giving me an appt date and sorry she did not hear the rest of my message.  I called and left another message, specifically about the Amox, requesting refill and giving pharm number.  No replies, no refill.
 
I really wanted the Amox refill, but looks like I'm not gonna get it and am cancelling this LLMD's appt. I can't afford this kind of care.
 
Not sure , but seems I'm experiencing some improvement AFTER a horrible few days last week.  I have about 2  1/2 more days worth of Amox.
 
I have maybe close to 60 100 mg capsules of Doxy, leftover from preventative treatment for a new bite before starting Amox.
 
Questions:
 
Should I just go on and start up w/ the Doxy when Amox is gone?
Should I wait a day or 2 between?
Should I just try staying off of anything until I can get into LLMD 2?
What is this about Doxy causing depression? 
I went thru a mess before treatment and then again shortly after starting Amox, which worsened until a few days ago. I think I feel some relief from that now, maybe too soon to say.  I have slight improvement of fatigue as well.
 
I don't believe I can handle any more meds that cause depression, unless you believe the depression is caused by the disease and/or the herx and not really the doxy. (depression is a possible side effect of Amox also)


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 

Post Edited (+Lyme) : 9/7/2009 10:52:09 AM (GMT-6)


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/7/2009 2:39 PM (GMT -6)   
I am sorry to bump this, but really need the advice on abx. You can skip the whole post and just look my questions near the bottom , oK? thanks to anybody who can advise....
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 9/7/2009 10:15 PM (GMT -6)   
Hi +,
I am really, really sorry to hear about the 'fix' you are in. As if it's not bad enough that we are constantly fighting with our own bodies...

I really don't know what I would tell you about the abx. It's a tough situation. I'm not sure if anyone will want to broach that particular subject, here on an open forum.

If you wanted to email me, maybe you would find your own answers just by talking with someone. I often end up answering my own questions, once I start talking it over with someone.

I'm a very firm believer that having chronic health conditions that totally rearrange your life for you, almost predisposes some of us to depression. I know I do battle with it daily right now.

I remember having really bad depression the 1st time I went on Mino - my 1st tx for Masters. It was pretty rough getting through it. That is what convinced me that it is best for each of us to have a 'Lymie - buddy'. Someone you have made a connection to, & has had or currently has LD & any of the many other infections.

They may be the only one who really does know what it's like to live through herxes, depression, migraines -whatever this insidious disease has decided to do to us. That's the only thing that got me through my 1st herx anyway.

So very sorry I don't have any suggestions for you about the abx that I feel is appropriate to post, maybe someone else with more knowledge (Or at least a better working brain!!) will post soon.

Trav
- Traveler
"Conditions": Lyme Disease (neuro, gastro, bone, brain, muscle, hearing involved), STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


RainBaby
Regular Member


Date Joined Feb 2009
Total Posts : 41
   Posted 9/8/2009 3:09 PM (GMT -6)   
Not sure about what to do in your situation. sounds really frustrating about the doctor not giving a refill.

My experience: when I was waiting for an LLMD and didn't have abx available, I used the Buhner herbal protocol, and I actually felt really good on it. Then I switched back to abx when I started with the new LLMD since I don't think the herbs were enough to cure me.

I don't know whether doxy causes depression. I actually enjoyed taking it, because it reduces inflammation and I think it actually improved my mood.

Hope things work well out for you!
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