Doctor not an LLMD

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alone&scared
Regular Member


Date Joined Sep 2009
Total Posts : 177
   Posted 9/14/2009 8:07 PM (GMT -6)   
Ok, so I have read all over the place on this forum that this is a very important thing. Well, I went to the specialist that I was referred to just to get some additional information today. He is not an LLMD, but he is the physician that all other physicians refer their patients to for Lyme in my area.
So, should I wait, have the appointment and testing and if everything goes well just stick with him? Or should I get an LLMD right away? I'm confused :)
Thanks so much!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/14/2009 8:28 PM (GMT -6)   
If he's Lyme Literate, then I would just stick with him. He seems to know about Lyme if other physicians are referring Lyme patients to him.

You can always switch later if you're not happy. Make sure he follows ILADS guidelines, not IDSA or you won't be treated right.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 9/14/2009 10:02:40 PM (GMT-6)


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4284
   Posted 9/14/2009 9:10 PM (GMT -6)   
Actually in my case, it was an Infectious Disease Doctor (ID) that send my blood to IgeneX, not doctor's that claimed to be lyme literate.   I had never heard of IgeneX until I met this doctor and he was very knowledgable about chronic lyme.
 
But then I took it upon myself to do my own research and I have been better for years now!
 
So it all depends on how much the doctor knows (or doesn't know)!
 
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/14/2009 10:05 PM (GMT -6)   
Denise,

You were lucky. Most people have bad experiences with ID's and doctors that don't follow ILADS guidelines. They don't get prescribed antibiotics for long enough. That's what I meant when I suggested this.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


alone&scared
Regular Member


Date Joined Sep 2009
Total Posts : 177
   Posted 9/15/2009 10:57 AM (GMT -6)   
Thank you so much! I will stick with him then unless he does something wrong:)

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 9/15/2009 2:39 PM (GMT -6)   
Be your own medical advocate.  Do you own extensive research.  Stick with the infectious disease dr. until you feel you have hit a brick wall with treatment or you are not happy.  That is what I am doing.  Went to LLMD, arrogant and nasty and wasn't in my plan so moved onto infectious disease dr. recommended by lyme assoc.  So far so good, treating and listening.  However, I am prepared to move on to another dr. if he doesn't continue to treat and/or listen.  Good luck.
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