Top 10 supplement list

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snake1979
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Date Joined Apr 2008
Total Posts : 282
   Posted 9/20/2009 3:31 PM (GMT -6)   
What is everyone's top 10 supplement list?

veromia333
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Date Joined Mar 2009
Total Posts : 674
   Posted 9/20/2009 4:38 PM (GMT -6)   
Very good thread waiting for answers also.


-Vit D
-Serrapeptase
-C
-sodium chloride
-???
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


Dagger
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Date Joined Apr 2008
Total Posts : 1522
   Posted 9/20/2009 5:06 PM (GMT -6)   
D3, magnesium malate, calcium, a multi-vitamin, B-100

That's only 5.

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 9/20/2009 5:50 PM (GMT -6)   
I was taking more supplements but had to back off of some so it wouldn't interfere with bloodwork. This is what I'm taking now:

Vitamin C
Echinacea
Salmon Oil
B-12 Injections
Entero(prn for nausea)
Probiotics
GI Repair Nutrients
Muscle Calm(prn)

Here is a great site that lists supplements you should take and what they actually do:

http://www.askdrsears.com/html/4/t042500.asp#back
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Razzle
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Date Joined Aug 2007
Total Posts : 4396
   Posted 9/20/2009 6:19 PM (GMT -6)   
Nettles - helps joint pain
Burdock - helps gastrointestinal motility, supports health of mucus membranes in the gut
FenuThyme (Fenugreek + Thyme) - antifungal, antimicrobial, thins mucus & helps with sinus congestion
Milk Thistle - helps protect liver from damage, supports detox metabolic pathway
Magnesium - for muscle pain & spasms
Calcium - for muscle cramps, bones
Vitamin B12 (methylcobolamin) - helps energy, nerves, methyl donor to support metabolic detox pathway in liver
Zinc - supports immune system
Vitamin D3 - supports immune system
Probiotics - supports immune system, gastrointestinal health, fights candida/yeast
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 9/20/2009 6:23 PM (GMT -6)   
Oops, after reading Razzles list, I forgot to list Magnesium. I'm also waiting for my blood test to come back for Vitamin D and will probably start Vitamin D-3 too.

Razzle:- Where do you get your Milk Thistle?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Razzle
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Date Joined Aug 2007
Total Posts : 4396
   Posted 9/20/2009 7:25 PM (GMT -6)   
I get milk thistle from a local health food store.  Also, have experimented with IV milk thistle (specially compounded - my Naturopath prescribed it for me) and it does work well that way but also clogs up my PICC line. 


-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/20/2009 7:36 PM (GMT -6)   
Thanks Razzle. I really need to find something. My liver enzymes have been slightly elevated for a while now. I've been tested for everything under the sun and everything was negative. So, they think I have fatty liver. I'm now on Diflucan and pretty nervous about taking it. My LLMD knows about my elevated liver enzymes and put me on 100mg. od Diflucan. Do you think that Milk Thistle will help in my situation?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Razzle
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Date Joined Aug 2007
Total Posts : 4396
   Posted 9/20/2009 9:21 PM (GMT -6)   
I have been diagnosed with fatty liver too (secondary to TPN), and my liver enzyme levels were quite high. When I started the IV milk thistle, the enzyme levels dropped over a few weeks' time. I stopped the milk thistle for a while and the enzyme levels went back up. So I know it was the milk thistle that was helping my liver. I don't know how long it takes for the milk thistle to restore the liver, but it sure did bring down the enzyme levels (all the way down to normal).

I'd recommend working with a Naturopath on healing your liver - they have more experience using milk thistle for this purpose, and may have some additional supplements/herbs that help in this process.

Also, I've read that Ehrlichia/Anaplasma can mess with liver enzymes in addition to Lyme, so you might want to think about a trial of treatment for that coinfection in addition to the milk thistle.

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 9/20/2009 9:41 PM (GMT -6)   
Thank you so much Razzle.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


alone&scared
Regular Member


Date Joined Sep 2009
Total Posts : 177
   Posted 9/20/2009 10:44 PM (GMT -6)   
Question: Does Lyme disease lower levels of these vitamins that you are taking? I am curious because my bloodwork 4 months ago showed very low Vitamin D, so now I take rx supplements. And, my bloodwork about 2 months ago showed low magnesium, so now i have to take that too. My B vitamins they say are fine, but I am just not sure if I believe that.
Anyway, just wondering if Lyme causes these deficiences, or if you are all taking them to just make you feel better. Thanks!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/21/2009 12:57 AM (GMT -6)   
Lyme can definitely cause low Vitamin D as well as B-12. I'm not sure about magnesium. I'm sure Razzle knows alot more than me.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Deejavu
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Date Joined Aug 2005
Total Posts : 4282
   Posted 9/21/2009 4:11 AM (GMT -6)   
I happen to love Green Vibrance (I buy it at the Vitamin Shoppe).  It tastes like drinking grass (I'm used to it) but I think it may come in a pill form now.
 
Below is a link to all the ingredients (it contains probiotics also):
 
 
Denise

It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 


Razzle
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Date Joined Aug 2007
Total Posts : 4396
   Posted 9/21/2009 5:24 AM (GMT -6)   
Yes, Lyme can cause low levels of magnesium. Some believe magnesium is used by Lyme to build biofilms, but my opinion is that if one's blood level of magnesium is low, then it is better to take the supplement than to risk the damage that can be caused by a deficiency of magnesium (magnesium is involved in the proper function of many enzymes in the body, as well as proper function of the heart and other muscles -- including skeletal muscles and the muscles that make up the digestive system and the blood vessels.).

Lyme can also lead to malabsorption of other nutrients. Also, since Lyme is a constant battle, the body needs more nutrition support than a healthy individual. Stress always increases the need for B-vitamins in general. Lyme-related (and/or coinfection related) suppression of the immune system also makes it important to take Vitamin C, Zinc, Vitamin A, Vitamin D, and other immune system supporting supplements. Therefore, it is probably a good idea to take a daily multi-vitamin/mineral supplement in addition to the individual Vitamin D & other supplements just to make sure nothing is missing or lacking.

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 9/21/2009 8:36 AM (GMT -6)   
My LD told me I can not take Milk Thistel because I am currently taking Malarone. So for liver protection I take Nac600? Has anyone else been told this?

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 9/21/2009 5:21 PM (GMT -6)   
Magnesium citrate -
Hyaluronic acid - collagen for dry eyes
Vitamin B 100
Fish oil
Quercitin with vitamin C
Co Enzyme Q10
Herb Jiaogulan - increases circulation
Rapid Response joint supplement - pain relief - have herxed on it

HH-2
grapefruit seed extract
TOA free cat's claw

ljantler
New Member


Date Joined May 2009
Total Posts : 16
   Posted 9/24/2009 8:08 AM (GMT -6)   
CajunGrl said...
Thanks Razzle. I really need to find something. My liver enzymes have been slightly elevated for a while now. I've been tested for everything under the sun and everything was negative. So, they think I have fatty liver. I'm now on Diflucan and pretty nervous about taking it. My LLMD knows about my elevated liver enzymes and put me on 100mg. od Diflucan. Do you think that Milk Thistle will help in my situation?

CajunGirl,
     I have read that 25% of lyme patients have elevated AST and or ALt  enzymes- I did. I also take milk thistle and was treated for over a year w/ abx for LD and now my liver enzymes are "in range"
Just an FYI, ljantler

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/24/2009 8:15 PM (GMT -6)   
ljantler,

Thank you for the info. That makes me feel alot better.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 9/25/2009 12:28 AM (GMT -6)   
Hi CajunGrl,

A quick note to let you know that I learned from a pharmacist friend that eating foods with corn syrup in them can lead to fatty liver and liver trouble!! The pharmacist's teenage son was sick and diagnosed with fatty liver and the doctors told them they thought it was due to the child's diet of "too much corn syrup". So, the teenager quit eating all foods containing the corn syrup and he is improving. It might be worth your time to analyze if you are eating any corn syrup (it's in MANY foods) and adjust your diet. Hope this helps!

Best wishes, bablymers mom

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/25/2009 12:33 AM (GMT -6)   
Hey babylymers,

Thanks! You are always so full of information and I appreciate that. I've started eating lots more protein and already feel better. I'm determined to do it right this time. I will look up the foods with corn syrup in them and eliminate them if I am eating it.

Thanks again! I am really determined to get better so I am willing to do whatever it takes to get healthy.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


spaztick
Veteran Member


Date Joined Oct 2006
Total Posts : 851
   Posted 9/27/2009 5:09 PM (GMT -6)   
  • Probiotics
    Omega 3-6-9
    Calcium
    Magnesium
    B-12 injections once every 2 wks
    Vitamin B
    Vitamin C


to add: Multivitamin

Check out Dr. Burrascano's (1998) recommendations:

"NUTRITIONAL SUPPLEMENTS

Studies on patients with chronic Lyme Disease and in those with the Chronic Fatigue Syndrome have demonstrated that some of the late symptoms are related to cellular damage and deficiencies in certain essential nutrients. Double blinded, placebo controlled studies, and in one case direct assay of biopsy specimens have proven the value of the supplements listed.

ESSENTIAL FATTY ACIDS:
Studies show that when EFAs are taken regularly, statistically significant improvements in fatigue, aches, weakness, vertigo, dizziness, memory, concentration and depression are likely. There are two broad classes: GLA and EPA, derived respectively from plant and fish oils. The plant sources are many, so choose one from the list below.

Plant Oils: evening primrose oil, black currant seed oil, borage oil (probably the best choice)
Fish oil: "MAX EPA" (or any similar preparation containing 1,000 mg of EPA)

RECOMMENDATION: four plant oil capsules and two to four EPA capsules daily, taken with the largest meal of the day. Benefit begins within several days, but further improvement continues to occur over time. Continue for three to four months.

CO-Q 10 (ubiquinone):
This is a vitamin B- like compound essential to every living cell. Deficiencies have been related to poor function of the heart, limitations of stamina, and poor resistance to infections. Tissue biopsy studies have resulted in the recommendation that a patient with chronic Lyme should take between 200 and 300 mg daily, in two or three equal doses. Improvements in stamina and general well being do not begin for several weeks. The body will manufacture its own Co-Q 10 when the original infection is controlled, but only if stimulated by aggressive exercise. Therefore, use this supplement until the patient is feeling well and is exercising regularly, usually three to four months.

VITAMIN B
Studies in the 1950s demonstrated the need for supplemental vitamin B in infections with other Borrelia. This enhances clearing of neurological symptoms. I recommend one 50 mg B-complex capsule daily long term.

MAGNESIUM
Magnesium supplementation very helpful for the tremors, twitches, cramps, muscle soreness, arrhythmias and weakness. It may also help in energy level and cognition. Unexplained hyperreflexia is an indicator of Mg deficiency. The best source is magnesium chloride ("Slo-Mag", one or two qid) or magnesium oxide (Mag-Ox, 400 mg one or two daily). DO NOT rely on "cal-mag", calcium plus magnesium combination tablets, as they are not well absorbed. In many cases, I.M. or I.V. magnesium is necessary. Continue long term.

MULTI-VITAMIN
I recommend the LifePak family of supplements- choose LifePak for males under 40, LifePak Women for hormonally active women, and LifePak Prime for post menopausal women and men over 40. These are unique supplements- Pharmaceutical grade and USP certified, and the only products clinically proven to raise antioxidant levels in the blood and lipids.

All of these products are available without a prescription."

Source:
http://library.lymenet.org/domino/file.nsf/bbf2f15334c1f28585256613000317cc/cb159a8ffaa8261d852567c700120026?openDocument#ADJUNCTIVE%20THERAPY
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