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Onmyway
Regular Member


Date Joined Jan 2008
Total Posts : 316
   Posted 9/24/2009 11:42 AM (GMT -6)   
Hey,
 
I am sorry I have missed your calls. I have sent you several emails but I don't think you are getting them.???
 
I am sorry to hear you are still struggling. I am still treating as well with NY Dr for Babs and bart! I am on Cipro b/c I could not handle Rifamping, pain level went through the roof and I am on Mepron for Babesia.
 
Still have a lot of arthritic issues. Facial swelling, numbness in face as well as pain in face shoulder, neck, back, feet etc......
 
As far as your question I don't know what advice to give you. I do not really go to him anymore. I just go in if I need blood work to check liver enzymes. I think he is really getting out of treating Lyme. I escpecially don't think that he is doing IV's anymore. I sent you the name of another Dr. here in Alpharetta that does so you may want to check that out.
 
I really am torn and don't know what to tell you. I just think that if you are still having that many issues you need to see an LLMD! You hsould have done that from the beginning. I am about 80% better still have small issues that some days care majoe. as I read where Stutterbug said I think we will always be sick. I think she is right. It is just up to us to get our bodies to the point that we can live in our own skin and deal with what ever it throws our way!
 
I do have to say that last round of Tygacil for 5 months helped me out a lot. NY Dr. said Lyme is gone. Totally! So we now know that the co-infections are the issues. I think they really always have. I could not really address Babs b/c insurance would not cover Mepron. It does now so I am excited I am able to be on it for 3-6 months!  I am hoping that once I complete this round I will be even better.
 
I would really think hard about seeing an LLMD in possibly FL. If you post on here looking for LLMD in Fl someone will giv eyou the info. I don't know his name.
 
I am sorry I am so vague I just don't have faith in our previous Dr. That is just me. His heart is not in it.
 
I will try to give you a call. Really busy with work today so  probably not going to call today but I will try to ring you tomorrow. I hope you got my email last night. I responded to your email that you sent me so hopefully you got it!
 
Please take care of yourself!!!
 
Hugs,
Diane
Onmyway
 
Diagnosed with Lyme 11/06
Treated until 10/07. Saw another wonderful LLMD in NY and was diagnosed with Bartonella and Babesia as well as Lyme!!!!!!!
Went entire year not knowing I had two coinfections!!!!!! Always test for coninfections!!!!!!!
Onmyway to recovery!!!!! :)
5-29 Blood sugar drop to 33 for 3 days?????? Very Bizarre
Currently waiting for Tonsillectomy! LLMD and ENT believe they are clogged and backed up with Bacteria and fighting against immune system! Oh Boy!
6-25 had Tonsillectomy- Worse pain ever!!!!!


georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 9/25/2009 7:49 AM (GMT -6)   
hey, Thanks for getting back with me. I have not gotten any e-mails from you, i'm not sure why. Can you call me with the doctors name in FL.? I'm so happy that your feeling better. I hope your 100% soon. Take care.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/25/2009 7:55 AM (GMT -6)   
Georgiagirl,

I am now seeing a doctor in Fl. If you want more info you can email me.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 9/25/2009 7:59 PM (GMT -6)   
CajunGrl, I will e-mail you. Thanks
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