Leaky Brain Syndrome Article - Interesting!

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Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4282
   Posted 9/25/2009 5:49 AM (GMT -6)   
Hi all,
 
Well in the past I really suffered from brain fog, lyme rage episodes, fatigue, etc.   I got better from clearing out the ammonia in my brain and body.   I just happened to stumble on this article from Dr. Jernigan (the protocol I followed that worked for me). 
 
Anyway, here is an interesting article that Dr. J. wrote about ammonia and Leaky Brain Syndrome:
 
 
Denise


It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 

Post Edited (Deejavu) : 9/27/2009 6:16:48 PM (GMT-6)


Razzle
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Date Joined Aug 2007
Total Posts : 4396
   Posted 9/25/2009 6:56 AM (GMT -6)   
Gluten (wheat/rye/barley) is also thought to cause leaky brain. Manifestations may include one or more of the following: ataxia (unsteady gait), seizures, behavioral disturbances, ADD/ADHD, autistic tendencies, depression, anxiety, schizophrenia, and probably other things research hasn't identified yet. And it is my belief that Lyme can trigger gluten sensitivity. Celiac Disease (gluten intolerance) is thought to have a "trigger" involved in addition to genetic predisposition (HLA-DQ2 & HLA-DQ8), and some research suggests an infection may be capable of triggering the disease.

Interesting stuff, thanks for posting.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


+Lyme
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Date Joined Apr 2009
Total Posts : 1304
   Posted 9/25/2009 5:23 PM (GMT -6)   
Razzle, as I recall, you recently stated that you cannot eat most solid food. Can you please tell me, w/ all your issues, what you can eat? I think I can get by w/o bread (the wheat, rye, etc) if need be, but always thought rye bread was good for me.

I am interested in trying the ammonia test in this article, not that I'm sure how to do it, but will get some ammonia (along w/ lemons on my list!) and try.

There is some here that I don't understand. Am I to understand that I should NOT be taking amino acid? I have been taking amino acid supplements for some time, as I do not always eat enough meat or foods w/ the complete amino acids found in meat. I also used to take it to help firm muscles when dieting and exercising. (key words, 'used to'.)
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 9/26/2009 12:48 AM (GMT -6)   
Thanks for the info Denise,

I'll have to look into that. Maybe it can help me too!

Nicky

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 9/26/2009 6:37 PM (GMT -6)   
Hi Lyme+,

Foods I'm eating now (tolerance is iffy for just about everything, so I just choose the least offensive) include (all cooked; can't handle raw food): Rice (& rice products, such as rice cereal, rice flour, etc.), Potatoes (& potato products, such as oven french fries, potato flour, etc.), Zucchini, Carrots, Parsley, Agave nectar, Blueberries, Blackberries, Bunflower Beeds, Pumpkin Seeds, Alpha ENF (amino-acid based meal replacement drink mix), Safflower oil, a few spices. New additions & foods less sure about tolerance include apples, scallions, & tomatoes. I try to buy as much organic as possible, because I know I have trouble with pestacides, preservatives, and do not wish to consume genetically modified foods ("frankenfood").

How much total protein is in your amino acid supplement? Most of the amino acid supplements I see in the health food stores are measured in milligrams, instead of grams. It is the amounts in grams that would be more of an issue...milligram amounts of amino acids are simply too small in my opinion to have much effect.

Everyone's situation is unique, so I think the decision whether or not to cut amino acids/proteins from your diet should be made with careful consideration of your specific situation, and with discussion with your LLMD.

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/27/2009 9:34 AM (GMT -6)   
Thanks, Razzle. All the amino acids in my supp are in mg. I've taken it for yrs -- well before this bout w/ Lyme. Started it because I've dieted so much and while dieting didn't feel I was getting enough amino acids, plus, like I said, it helped to firm muscles back when I worked out. (man, they are flabby now!)

Thank you, as always, for all your info and input!

Gosh, you've got a rough time of it, don't you? How long have you had Lyme? How long have you been in treatment? Do you feel you are improving or will?
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4282
   Posted 9/27/2009 6:21 PM (GMT -6)   
Razzle,
 
I first want to say (actually I have been wanting to tell you this for the longest time) that I think you are one brilliant person!    Then I wanted to let you know that I really feel for you as I know you are going through rough times..  
 
I wish I could help you but it seems like you know more than I do!!  You know your body and mind the best and it seems like you are very in touch with yourself, that's a fantastic thing!  I wish I had the money to send you to see Dr. Jernigan, I know he could help you...   Darn, I wish I could send everyone on this forum there, my treat but I'm broke!
 
That's all, Desperate Housewives is going to start at 9:00 (first episode of the new season!)..
 
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 


alone&scared
Regular Member


Date Joined Sep 2009
Total Posts : 177
   Posted 9/27/2009 6:47 PM (GMT -6)   
Thanks so much for the post. I am going to try this test too:) But, I'm gonna have to have someone help me, so it may take a little while. I will most likely completely forget by the time I am done typing this post.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 9/27/2009 7:49 PM (GMT -6)   
+Lyme,

How long have you had Lyme?

Best guess is that I got infected in 1977 or 78 - I never had a bullseye rash, so don't know for sure. I started having symptoms the following year.


How long have you been in treatment?

I'm not actually in treatment for Lyme. My gut shut itself down a week after I started taking Japanese Knotweed for Lyme in 2008, and nobody was willing to treat me because they claimed I was "too sick" to treat. So I've been focusing on getting my gut functioning again instead of treating the Lyme. The only reason I'm on abx is because I have a feeding tube and the site where the tube is keeps getting infected unless I stay on IV abx. I've also been on TPN since the end of June 2008 - TPN is nutrition given through a PICC line in my arm - because of being unable to swallow anything or tolerate sufficient nutrition through the feeding tube in my stomach. However, recently, due to the antibiotics I believe, I have begun to tolerate swallowing solid foods and tube-feeding small amounts of liquids. I still cannot swallow liquids without choking.


Do you feel you are improving or will?

I don't know. My symptoms have waxed and waned over the years, so I don't know if I'm getting better or just in one of the times of less severe symptoms right now. I know that it is possible to get well again, just don't know yet how or when.

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 9/27/2009 7:58 PM (GMT -6)   
Deejavu,

I'd love to talk with Dr. Jernigen about my case, but don't have the financial ability right now, either. He seems to have a better handle on the complexity of Lyme than some others. I do have his book, but feel I would need to work one on one with him to be able to follow his protocol because of the uniqueness of my issues.

I appreciate your contributions too. I think everyone here contributes to the collective knowledge of this forum - that's part of what makes this such a great place to come.

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4282
   Posted 9/28/2009 7:17 AM (GMT -6)   
Hi Razzle,
 
Hurrying this up as I am leaving in 2 minutes to take my older brother to his doctor.. 
 
Anyway, I don't think talking to Dr. Jernigan would do any good, he would have to see you with all your issues..  And that does cost money.. Hey, I wanted to go to his clinic but couldn't afford it..   It's a shame he doesn't have another clinic where a person can just get tested for allergies like you have, or whatever..     I wonder if he knows of another doctor that wouldn't be so expensive where a person could get tested for many of the tests he lists on his site..  Oh well, just racking my brain here..
 
There must be a reason why you have so many allergies..  
 
Which book do you have, his old one or his new one? 
 
And yes, I think it's great how so many contribute to this forum..  
 
You take care of  yourself okay?
Denise  (running, no walking to my car)
It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 9/28/2009 5:31 PM (GMT -6)   
My Naturopath has done many different tests on me. It all points to chronic infection and immune deficiency, with some complicating factors (genetic & nutritional). The theory right now is that the immune deficiency promotes the creation of allergies. We also believe the immune deficiency came first and enabled chronic infection (Lyme, etc.). The chronic infection also contributes to allergy creation, since infection cause inflammation, and inflammation in the gut causes leaky gut. Leaky gut means it is easier for the immune system to be exposed to food particles that wouldn't normally be absorbed into the bloodstream, thus the allergy creation.

I have the 2nd Edition - I think this is the latest edition of Dr. Jernigen's book.

Thanks & take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, intermittant pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, homeopathy.


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/28/2009 9:10 PM (GMT -6)   
Razzle, I sincerely appreciate you taking the time to answer each of my questions about you. I am also sincerely sorry about your struggle. I dont' believe I would have the guts (no pun intended!) to go thru all that you go thru. You will be formost in my thoughts and prayers. I will also pray for you to find the Dr that will be able to successfully treat you!

ps: obviously, all of your answers are significant and appropriate for ALL of us!
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4282
   Posted 9/29/2009 6:32 AM (GMT -6)   
Razzle,
 
I need to do some deep thinking about what you wrote as well as some research..  In my spare time I do enjoy researching and learning...  
 
I think I will start with Immune Deficiencies.... Give me time as I do have lots on my plate...  Researching is my "toy"...  smilewinkgrin    I must be a strange duck to enjoy it so much! smhair
 
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 

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