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blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 10/4/2009 7:11 PM (GMT -6)   
I get this along with other bone popping- is this a bad sign that my face might become paralyzed? I read something about lyme people sometimes getting facial paralysis.  How long do i have to work on this??? anything natural i can do to help the bone popping issue? THANK YOU!

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 10/4/2009 7:47 PM (GMT -6)   
TMJ.. i've had this for prolly 10 years.. its annoying, but it won't cause bells palsy.

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 10/4/2009 7:51 PM (GMT -6)   
I also diagnose TMJ. It happens to just about everyone sooner or later and it is annoying but is not bells palsy, which is caused by inflammation I think around some cranial nerve.

TMJ is aggravated by grinding the teeth, stiff neck, tension and stress. You could try a night guard for your teeth and see if the popping subsides.

The joint and ligament popping, while prevalent among those with Lyme, is very common in the general population. At least that's what they told me including a LLMD.

You can try a good pure fish oil and drink tons of water. It takes a lot of water to get to those joints. As the song goes, dem bones, dem bones, dem dry bones!
Bit June 08.


Cheezhead
Veteran Member


Date Joined May 2007
Total Posts : 517
   Posted 10/4/2009 7:52 PM (GMT -6)   
I also had TMJ early on in my infection. I was fortunate to have mine go away after starting ABX treatment.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 10/4/2009 8:56 PM (GMT -6)   
If you are having trouble with jaw tension, you might want to try a little peppermint oil - the kind you can buy in any grocery store works.

I use this regularly, as the stress & tension builds in my jaw sometimes. It's almost too simple!
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/4/2009 9:07 PM (GMT -6)   
I've had tmj for years; had surgery for it in 1992. It's painful, but in my experience not dangerous. I am HAPPY to read a post about the joint popping. That's one of the more annoying symptoms I have. Before June, nothing popped. Since then, slowly, it's spread to pretty much every joint in my body. I was drinking a vegetarian glucosamine drink for awhile that made it significantly better (but didn't eradicate it by any means) but now that I'm on antibiotics I can't drink the drink anymore because of the sucralose. I can't swallow pills very well and haven't found a vegetarian glucosamine supplement in a small enough pill to replace the drink that was working for me. I will try drinking more water and see if that helps (though I already drink a lot to help wash toxins out and to support my low blood pressure). At least it is a comfort to know this isn't really abnormal and that other people have it too without dire consequences.

Rose

blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 10/4/2009 10:15 PM (GMT -6)   
Glad to get all the responses! Okay so i'm most likely creating more problems with my stress? isn't that funny how that happens? Actually it sucks, but anyway, I will try ALL of those things-very good tips! THANK YOU. As for joint and bone popping- mine started up about 1 1/2 weeks ago- and i've been "noticably sick" for 2 months now. So is it bad that this has occured so soon? Am i vit D deficient? I mean i get muscle spasms too but the popping freaks me out more. It's good to know most people have this- but i also feel as if my tendons or ligaments are popping too. It's like everyday i'm wondering what's going to happen next in this strange process-it's sad to me that some of the stuff i've already grown accustomed to in just 2 months- cold hands and feet, occasional numbness which has gotten better with cayanne pepper. did i spell that right? I guess it's a comfort to know that the body apparently keeps on ticking even with all this mess.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 10/5/2009 4:19 AM (GMT -6)   
I was told by a Naturopath that the joint popping was a symptom of mild inflammation in the joints.

My Husband takes a vegetarian glucosamine & MSM supplement made by Blue Bonnet, and also another MSM supplement (to get lots of MSM). If swallowing the capsules is a problem, the powder from the capsules could be mixed with a bite of food, such as apple sauce, to make it easier to get it all down. Anyway, my Husband had very bad joint pain prior to taking the MSM/glucosamine (he has tendon damage & joint degeneration from long-term Prednisone use), but since starting the supplements, he has not had nearly the pain. He was becoming disabled from the pain before, but now he goes hiking in the mountains on weekends without any difficulty.

Also, muscle twitching/cramping could be from a lack of sufficient magnesium, calcium, potassium, and/or water (i.e., dehydration and/or electrolyte imbalance). A daily multi-vitamin/mineral will not give you enough of these electrolytes to meet your body's needs, so you might want to make sure you eat foods rich in these minerals (fruits & vegetables, nuts/seeds, etc.).

I have no financial connection with Blue Bonnet... Take care,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, homeopathy.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 6:02 AM (GMT -6)   
Hi finding,

I have TMJ as well. I've had it for years. It can cause jaw popping and then get a little more problematic. I've had my entire jaw, teeth and temples hurt. I've also had severe spasming and shaking of my jaw/teeth at night. It can also cause horrible headaches. A mouth guard from your dentist can help all of this. It can be expensive though. If you can't afford it right now, you can go to your local Walmart and get a plastic piece that you melt in boiling water and mold to your teeth. I think it might be where the football supplies are.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 10/5/2009 7:06 AM (GMT -6)   
One of my worst symptoms during lyme was my tight jaw.  It would cause tooth pain, headaches, etc.  After 6 months of abx it is gone!  I went to chiro, dentist, periodontist, etc. and they all told me tmj.  It wasn't for me, just tight muscles caused by lyme and lyme anxiety.  Xanax also helped relax me and helped a little with anxiety.  My face would also be numb on right side which is same side as tight neck and shoulders.  Best of luck to you.
 
P.S.  peppermint oil - to put on jaw or pill??

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 10/5/2009 9:02 AM (GMT -6)   
You actually rub the oil on the area with the tension - it will also clear your sinuses!!!!!!

I have used this on other areas of my body with a lot of muscle tension - it seems to work best on the muscles that are near the surface, as opposed to the muscles & tendons that are 'deep'.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/5/2009 8:30 PM (GMT -6)   
Razzle - Thanks for the information about the glucosamine. Now I know what to get. I have no problem emptying capsules into food - been doing that for years. What a relief.

For people wanting to alleviate jaw and facial tension, which has been a significant problem for me for a long time, you might want to try Traumeel. It's an anti-inflammatory analgesic homeopathic medication. I got it from my chiropractor. It comes in a melt-under-your-tongue pill and in a cream. I like the cream and use it regularly on my jaw, face, and the back of my neck and across my shoulder. Good grief, I just read the ingredients and the first active ingredient is belladonna. I thought that was poison. I guess if you're interested it would be a good idea to check out the ingredients before ordering to make sure you're willing to use this stuff. I just blindly purchased it because my chiropractor told me it could help with the pain and tension, which it has.

Rose

blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 10/6/2009 1:20 AM (GMT -6)   
Hi everyone, i think i will look for that piece in walmart-good thought or maybe i should make a trip to the dentist - if you have insurance did yours pay any for the mouth piece?- my jaw is tight right now darn the luck. will also buy peppermint oil- gee i hope this doesn't get bad. someone said my jaw could lock. I get numbness too sometimes. Random question- itchy crawly head??? related to lyme or not? hmmmmm Rose, i don't know if belladonna is poision or not but if it is i would be careful with it -if you trust your chiropractor then i doubt he/she would recommend something harmful- which reminds me that i am so mad at the medical community right now for being so unhelpful to people with lyme- I mean there is NO doctor anywhere near where i live that still treats it- i will be driving or flying quite a ways to see one if i decide to try abx. eyes but i guess that's most people right?

Post Edited (finding721) : 10/6/2009 1:33:23 AM (GMT-6)


blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 10/6/2009 1:34 AM (GMT -6)   
read in nutrition guide that primrose oil helps inflammation??? anyone use that?

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/6/2009 2:06 PM (GMT -6)   
Hey Finding123 - I get itchy crawling head too. And something I call brain itch. It's difficult to explain because it is not on the outside of my head like the itchy crawly feeling. It feels like my brain is itching. Most disturbing.

Do you use the primrose oil externally?


Rose

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 10/6/2009 3:38 PM (GMT -6)   
Primrose oil is anti-inflammatory, so is any oil that is rich in Omega-3 fatty acids (esp. salmon oil). The usual way to take it is internally.

Belladonna is poisonous (it is more commonly known as "deadly nightshade"), but the homeopathic version is safe. Traumeel is a homeopathic preparation, thus is safe to use.

To prevent jaw lockups, consider trying homeopathic Hypericum.

Also, moist heat is best for tight muscles (a wet towel under a heating pad or hot water bottle, for example). Apply some lavender oil topically for relaxation...the heat will make the oil more effective.

Make sure you get essential oils that are 100% pure - many oils sold in stores have contaminants or are diluted with alcohol or carrier oils (such as olive oil) and won't have the same theraputic effect. Price is your biggest clue...less expensive oils tend to be more diluted and/or contaminated.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, homeopathy.


blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 10/6/2009 9:17 PM (GMT -6)   
so eat lots of salmon? Yes the crawly head feeling is nuts- and willowrose, have you done a parasite cleanse- Deejavu mentions this in her detox post- I am on one right now-supposedly many other parasites are present in those with lyme-and knocking down their numbers should help. Have to find out if i can take primrose oil with my cleanse. Thanks Razzle!

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/6/2009 9:45 PM (GMT -6)   
I will have to look up the parasite cleanse. Tonight I took my first peroxide/epsom salt cleansing bath after doing the dry body brushing. It was very relaxing. I'm guessing the parasite cleanse is something I have to ingest. Is it safe to do when taking azithromycin and mepron and artimisinin?

Rose

blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 10/7/2009 3:01 AM (GMT -6)   
Hi Rose, no i wouldn't do it while on your meds- but you can always check with the manufacturer to see if there would be any interactions. I use a less well known cleanse- Humaworm but Paragone is pretty well known. So far the humaworm is doing well-its improved some of my symptoms. Yes, the epsom salt and peroxide baths are very relaxing! Anyway, i would wait till you are not on your meds or when you take a break from them- but i might be wrong- i just think it would be safer to wait because herbs are meds too even if they are natural and you don't want anything interacting in a bad way. You could probably ask Deejavu about this too as she is probably much more familiar with this. :)

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/7/2009 10:30 AM (GMT -6)   
Finding,

Thanks for the information. I copied down the names of the things you are using and will ask my doctor about them when I see him next month. It is encouraging to hear that they are helping with your symptoms. ANYTHING I can do to feel better, if I can possibly accomplish it, I will do it.

Off the topic, but I notice both you and I joined this site in October and I'm wondering how I got to be a regular member already. Kind of like being promoted. I'm glad I'm progressing in some aspect of my life!

Rose

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 10/7/2009 4:09 PM (GMT -6)   
Hi Willow!
I got a smile out of the end of your post - feeling promoted.
I did too!!
It's all based on your total post count. =)
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/7/2009 4:16 PM (GMT -6)   
Yeah, if you ramble on like me, you become a veteran member, lol. I talk/type wayyyy too much.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 10/7/2009 4:44 PM (GMT -6)   
haha, i guess i need to up my number of posts! i've only done 18...19 now. Rose, you've done 46 already! good goin! your doctor may know about the paragone- but probably won't know about the humaworm- it's more of a "home run" company- the only reason i trust them is because of the number of friends i have using it. oh- and i don't work for either company! I think there's also something called parastroy- don't work for them either. :) I just work for my kids.

blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 10/7/2009 4:49 PM (GMT -6)   
Update on jaw popping- i got my impressions done for a night/day guard. Hopefully along with the peppermint oil this will help my chompers. Thanks so much for the tips!

Post Edited (finding721) : 10/7/2009 4:59:49 PM (GMT-6)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/7/2009 4:59 PM (GMT -6)   
The night guard will make a huge difference. Your dentist will probably make you wear it all day to start.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

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