Irreversible Brain Fog?

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hope_29
Regular Member


Date Joined Nov 2008
Total Posts : 90
   Posted 10/6/2009 3:14 AM (GMT -6)   
I've been having really bad brain fog for many years and never changed.
I started AB treatment 3 months ago, but my brain fog is same or worse.
I'm thinking about that mine is not reversible.
Is there anybody who had bad brain fog and couldn't function for years but recovered?
have lyme since 2004


violets
Veteran Member


Date Joined May 2006
Total Posts : 878
   Posted 10/6/2009 5:26 AM (GMT -6)   
Yes....I had brain fog...major bad. 
 
And it is gone.
 
Yours will go too, but if you just started treatment 3 months ago...it may get worse before gets better.
 
Brain fog with lyme and co-infections is reversible.
 
So hang in there.
 
When you are in the middle of it...it is hard to imagine that it could ever get better.  But it does.
 
 


2long4this
Regular Member


Date Joined Apr 2008
Total Posts : 37
   Posted 10/6/2009 6:07 AM (GMT -6)   
Violet..

I've been wondering about this too. Could you give more details..if for nothing else but hope?

I've had this horrible brain fog for over 2 years and I'm wondering if it will ever go away too.

I'm glad to hear yours went away!

Harleyrider
Regular Member


Date Joined Sep 2008
Total Posts : 283
   Posted 10/6/2009 9:02 AM (GMT -6)   
My brainfog was so intense i thought I was going crazy

but after 4 yrs of suffering finally got some treatment
and it has lifted, but it wasnt over night thats for sure.

Still suffering with this but it does get better for you than it is now

Only thing that worked the best for me was IV treatments

Seems like i have leveled off, meaning not getting worse but not all better

Hope this helps
 


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35707
   Posted 10/6/2009 10:18 AM (GMT -6)   
Another thought to consider-
I have had brain fog of varying degrees for over 10 yrs now. I started tx for my Hashi's 3 or 4 weeks ago & have had some improvement with the brain fog.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


Tala3
Regular Member


Date Joined Sep 2009
Total Posts : 233
   Posted 10/6/2009 8:54 PM (GMT -6)   
Traveler,
Yes, that is true about underactive thyroid - Hashimotos (auto-immune variety). I've had that for 12 years, and when my Lyme's problems started, one of my complaints was that my "usual" brain fog & some other issues were a bit worse (which of course totally confused my regular MD who thought I was dredging up old issues). Unfortunately, when you have underactive thyroid you are never quite the same as you used to be - lack of energy, brain fog, etc. It's much better if you are treated properly (TSH down to between 1 & 2 for most people). It may be harder for you to tell when your thyroid levels are off since you had Lyme's first and some of the symptoms are the same - dizziness is a huge one for me. Until I was diagnosed with Lyme's, I was certain this was all somehow thyroid related since all tests were coming back normal. You will find that for the most part doctors are equally ignorant about underactive thyroid as they are about Lyme's! They can "usually" diagnose it (took 2 years for me), but they don't have a clue that people still suffer even when they get their pill each day! They go ONLY by lab tests and sometimes the numbers are still way too high and they will say you're within the range and won't even discuss it because you're being treated. As far as they're concerned all thyroid related issues disappear once you're treated. Case closed. I've had several doctors tell me that dizziness is not a symptom of underactive thyroid - so yes, apparently I'm the only person in the world who has that symptom. Just when you thought it couldn't get worse?

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 10/6/2009 9:38 PM (GMT -6)   
My fog got a lot better but my brain never returned to normal. I can function decently but I know I'm not the same and I guess I never will be.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35707
   Posted 10/8/2009 5:38 PM (GMT -6)   
I believe with tx, a lot of sx resolve. With that said, I also believe that sometimes the damage is too severe to recover fully.

As for myself - ANY improvement would be good!!!

HI Tala!!!
I haven't welcomed you yet!! I know that you will find a ton of resources here, as well as those that DO understand!!
Fortunately I finally have a doc that is quite open-minded - even when it comes to TBI's. He was willing to start me on Thyroid meds based on my telling him that with TBI's sometimes when a person is on the low end (or high end) of 'normal', tx can still be very beneficial.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4282
   Posted 10/8/2009 7:12 PM (GMT -6)   
I believe no matter how many years one has brain fog or any type of damage, that it IS reversible.   There is a fantastic story about a lady I know that belongs to this site who was left with brain problems after being misdiagnosed with Fibro for over 30 years to find out she had lyme the entire time and what she did about it. 
 
I hope she posts again and tells her story because it's just fascinating and oh so very positive!!
 
I will say this, one can detox their body, but one can also detox their brain...  Get that ammonia out as well as toxins and watch what happens..   It's all good!
 
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 

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