How many out there have been sent to the pychiatrist for Lyme Disease?

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sunshine4ere
New Member


Date Joined Oct 2009
Total Posts : 17
   Posted 10/9/2009 11:53 AM (GMT -6)   
It had been suggested when all my neurological tests came back negative and I am still undiagnosed as of yet that I should see a pychiatrist. Well now the suggestion is not a suggestion and an appointment has been made for me, makes me chuckle to myself. Of course I don't blame them, I mean living in Canada and all and we don't have Lyme Disease here right. Thing is they don't know is that I really don't mind what they call it, it won't make me walk any better or stop the jerks or tremors. God has still got hold of me and has my back, and all the rest of me tongue . Maybe it will do me good.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/9/2009 12:17 PM (GMT -6)   
Hi Sunshine,

Welcome to the forum! Do you not have any Lyme Literate Medical Doctors there?

Here is a site that may help you find one:

www.canlyme.com


Hang in there and don't give up!
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 10/9/2009 2:19 PM (GMT -6)   
Hi Sunshine!

I was never sent to a psychiatrist, but the naturopath I saw said many of her patients were referred to her from psychiatrists. Dr,'s would send them to see a psychiatrist, but the psychiatrist would realize it was a physical problem (not a mental one) and send them to her.

I'm from Canada as well. You're going to have a tough time finding a lyme-literate Dr. I think the best you could hope for is a non-lyme literate dr who is willing to consider ILADs treatment guidelines. However, you might be able to find a lyme-literate naturopath. The people at Canlyme are very helpful- if you go to the regional support section, you can email someone from your province, who will have more information. If you like, you could email me as well (click on the email icon below my name on this post).

Another good site for information is Dr Murikami's site. I can't remember the url, but it's the first one that comes up on google. He was a lyme-literate BC physician who was forced to retire a couple of years ago. He's still very involved in activism and awareness, and offers people advice through his site. Unfortunately, he can't treat people anymore.

Anyway- if you see a good psychiatrist, this could be good. Seeing a psychiatrist doesn't automatically mean you will be designated as crazy. The Dr's might think so, but hopefully the psychiatrist will know better.

Good luck!

Nicky

saxmar
Veteran Member


Date Joined Feb 2007
Total Posts : 670
   Posted 10/9/2009 4:25 PM (GMT -6)   
Sunshine

The first LLMD I saw was a psychiatrist who also had Lyme.

Are you having problems thinking, getting lost, Feeling like you are in a fog.

If so tell the psychiatrist that you are seeing that you are having cognizance problems and you suspect it is from Lyme disease.

Ask the psychiatrist if they can help you get tested for Neuroborelliosis. That is a fancy name for Lyme Disease effecting your brain.

I had a SPECT scan done of my brain that was ordered by the psychiatrist. It showed Lyme was indeed effecting my brain function.

The psychiatrst said I should go back to the doctors who said it was all in my head, show them my SPECT scan and tell them they were right.

The psychiatrist may be the one who opens the door for you to get treated properly.

Good Luck

saxmar

sunshine4ere
New Member


Date Joined Oct 2009
Total Posts : 17
   Posted 10/9/2009 5:02 PM (GMT -6)   
Thank you Cajungirl for the information. I have read CanLyme and have actually met a professor who is involved with it. She is also from Canada and suffered for four years before being tested from Igenex and being treated in the states. She  now has here life back and is helping others. Thank you so much for your response to me. People really do pay it forward..... tongue

sunshine4ere
New Member


Date Joined Oct 2009
Total Posts : 17
   Posted 10/9/2009 5:07 PM (GMT -6)   
Hi Nicky, thanks for your response. I am looking forward to seeing this psychiatrist, it can't hurt right. I love the interaction between all of the people on this site. Each one is so willing to help and reach out. Being new here I so appreciate all the information. tongue

sunshine4ere
New Member


Date Joined Oct 2009
Total Posts : 17
   Posted 10/9/2009 5:10 PM (GMT -6)   
Ps Nicky tongue Glad to also talk to another Canadian. I am blessed so far to have a GP who is trying even though he's not Lyme Literate. He's had me on Doxy for the past seven weeks and I think my next step is to have tests done from Igenex. Thanks again, Sunshine

sunshine4ere
New Member


Date Joined Oct 2009
Total Posts : 17
   Posted 10/9/2009 5:12 PM (GMT -6)   
Hi Saxmar, that is just about the coolest story, your LLMD being a psychiatrist and having Lyme. OMG! Wonderful information that really is so helpful. Thankyou so much, Sunshine

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 10/9/2009 10:00 PM (GMT -6)   
It was suggested I see a psychiatrist when I still had problems during my first year of illness, before I was diagnosed. I decided to go back to the woman I had seen years before when I hit a rough patch during my divorce. It worked out well because she remembered me from my previous visits and could compare the changes.

She wrote a letter to my doc explaining that I was not depressed and did not have any psychological issues that would cause all the physical problems. She believed that something was medically wrong with me. She said she'd work with me on any issues pertaining to living with an undiagnosed chronic illness if I wanted to but she suggested that they put their energy into finding out what was wrong with me.

This letter was a lifesaver. Over the next four years, whenever a doc suggested it was in my head (and it was, I had neuroborreliosis) I would pop in for a visit, we'd talk a bit, and she'd write a letter and the docs would take me seriously.

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 10/10/2009 12:55 AM (GMT -6)   
Wow saxmar what a great way to get a spect! I have been trieing to find a way to get one done, to no avail.

And I was insulted about being told to seek mental help by an infectious disease doc, but i ended up going later on to try ADD meds and u have to do counseling also and it actually helps. Especially if you dont have people around u who support your situation.

Or in other words who believe you! Oh what a world we live in at least we have each other here as a starting point.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 10/10/2009 6:09 AM (GMT -6)   
Yeah, been sent to pshrinks a few times (usually at the recommendation of an incompetant MD who is more interested in getting rid of me than in actually figuring out what's going on with my body), who seem more interested in pushing antidepressants than in actually figuring out if I have a mental condition that warrants such meds... So I've learned to suppress talking about certain types of symptoms. And unfortunately, even my dysfunctional stomach was initally thought to be "somatoform" and that is what is in my record despite proof that I really do have a motility disorder (gastroparesis), so every doc after that instantly re-diagnoses somatoform instead of taking me seriously. I've had them do tests then tell me, nobody can fake those wacky test results, but then turn around and treat me like a nutcase anyway. Wish I could burn those darn records and start over sometimes, but every new doc I go to insists on getting records from where I've been, and I haven't been able to figure out how to get around that without lying about surgery or about other procedures done that did point to a real physical problem. They should teach doctors to take their patients more seriously, because usually the patient really does have a clue about their own body... Sigh...
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, homeopathy.


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/10/2009 11:09 PM (GMT -6)   
Yeah! Razzle, it's like your words were ripped right out of my brain. My only addition would be to wonder if it's "patients" who aren't taken seriously, or mostly female patients who aren't taken serioiusly.

Rose
I have Lyme; it doesn't have me.


sunshine4ere
New Member


Date Joined Oct 2009
Total Posts : 17
   Posted 10/11/2009 11:36 AM (GMT -6)   
Hi to both Razzle and Willowrose, talk about not being taken seriously, it's not just in illness but in business and
  
 
many more things and Rose hit the nail right on the head.....female hysteria....female problems...blah blah blah

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 10/11/2009 2:04 PM (GMT -6)   

Hey Razz -- when/if you ever feel like 'starting over' (it would have to be almost completely), just call a Dr and say you need a new PCP.  Tell them that you haven't been to a regular Dr for many years.

That was my truth when I called the first PCP who ordered a WB, even tho it was from Quest.  I had not been to a regular Dr in over 8 yrs.  Yes, I am bad. I requested a consult about some issues that were bothering me when I made the appt.

btw, at my last psychiatrist visit (he only prescribes antidepressant and anxiety meds) indicated that he did believe in lyme. I saw him make a note in my file, but he has twice stated that he doesn't know anything about it and can't treat me.  I asked him to please look into this for the sake of his patients and he did seem interested. At least he didn't call me crazy.

Anyway Sunshine, Sax, and others: how big a deal is getting a spect scan?  What is it like?

I am actually on the verge of finding a new Dr -- the Lyme Ass of Greater KC has sent me a list of GPs that are learning about and treating lyme here! So I guess I can ask a new Dr about this scan, but want to know what others think about it and if it's a big ordeal.

 

 

 

 


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


sunshine4ere
New Member


Date Joined Oct 2009
Total Posts : 17
   Posted 10/11/2009 2:13 PM (GMT -6)   
I'm so new at this I'd never heard of spec scan til ystrday. Right now I'm a little scared to suggest anything to my gp or he may suggest putting me away tongue ! I see a psychiatrist on Oct 28th set up by my insurance, smilewinkgrin , have to see what he says first. We have no LLMD's in the whole area. Been on CanLyme but haven't found anything. I have been so fortunate to have a gp who after 19 months has finally put me on abx for nine weeks, but that will be it, I just know it. I have had herxs and the whole bit but nothing has helped my walking. I still look like a drunk. Sorry, here  I am rambling on your site. Good luck, sunshine
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