Getting sicker: unbearable weakness

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PSR1
Regular Member


Date Joined Sep 2009
Total Posts : 67
   Posted 10/10/2009 11:19 AM (GMT -6)   
I am now on Ceftin and Xithromax: I feel I am losing ground. I am so much weaker, cannot sleep, and still have awful neuralgic pains in my back and in my legs. Is this a herx? Is it ever going to get better? I do not see how I can get back to work next week. Has anyone else had experience with this dreadful loss of strength? I honestly feel as if I am just slipping away, and neither my friends nor my Lyme doctor seem to be noticing.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/10/2009 1:03 PM (GMT -6)   
PSR,

It does sound like a herx. How long have you been on this combo? Have you told your doctor about the weakness?

I too get bad leg pains, especially when I'm herxing. Everything seems to get so much worse. Please let your doctor know even if you have to call him today. He may want to switch your meds.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


PSR1
Regular Member


Date Joined Sep 2009
Total Posts : 67
   Posted 10/11/2009 7:58 AM (GMT -6)   
I have a call into him, which I hope he will return today. I got up this morning, fed my birds, downed my abx and supplements, and am back in bed. Did a first Rife treatment yesterday: thought I did feel a bit of a herx in my back after that. Still feeling very weak - just looking for a sense of whether this is par for the Lyme course: getting sicker over months of treatment before you get better? Having to stop working and stay in bed for weeks on end? I actually also have a question about two LLMDs in NY: Dr C & Dr H. Is there anybody out there who would have had experiences with both and know which might be a better choice?
P

Traveler
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Date Joined May 2007
Total Posts : 35853
   Posted 10/11/2009 10:02 AM (GMT -6)   
Hi PSR-
Have you or would you consider detoxing? If you are experiencing a herx, this would most likely be a benefit.

Deejavu posted some great info on detoxing & there is a good post in the thread; Important Information That You Think Should Be In Our Sticky? PLEASE READ!!.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 10/11/2009 10:14 AM (GMT -6)   
I think starting this combo and rife was wayyyy to much for your body to handle.

Try to detox...lots of water with lemon as well.
Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 10/11/2009 10:27 AM (GMT -6)   
PSRI,  I am very sorry you are going thru this, because I know it is painful and scary.  How long have you been in treatment?
 
I have not been experiencing the same thing as you, but have been experiencing increased pain (esp back, neck, pelvic bones, feet and mouth) and severe psychiatric symptoms that come and go and are unbearable.
 
I  have received strong support here, AND I have been able to link the above to my Amoxicillin.  I will get really bad and then will skip a couple of days of Amox and feel better.  Then I try it again.

So this is either: Reaction to Amox, herx, or worsening of other symptoms due to a co-infection.
 
I also wrote the Lyme Association of Greater KC.  (because I was begging for a Dr!) I received a nice response from the Secretary (lending credence), telling me that severe herxing often occurs around the 8th week, which may match my issues. 
 
 It says,  ' This 8th week herx can be especially discouraging, because people expect to be feeling better by then, and they may feel worse than ever.'  She also said that insomnia can be part of this herx.
 
Well, then yahoo. I can try to stick it out.
 
When I first started researching all this,  for some reason I came to believe that a herx was just a 2-3 day type thing and not something that lasted very long or happened repeatedly.
 
So, I think w/ this disease it must be different w/ everyone. 
 
PSRI, so I hope  and will pray that what you are suffering is a productive herx and will be interested to hear what your Dr says.
 
CajunGrl, many of you remark about things that happen 'when herxing.'  How is it that one knows when it is a herx and not some type of worsening of the disease, new symptom, or adverse reaction to the drugs?
 
I have had 3 days of no Amox and 3 days w/ no depression.  Coincidence or significant?

Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/11/2009 10:48 AM (GMT -6)   
Hey Lyme,

I know it is a herx for me because I've been on most of these antibiotics....more than once. I've never had reactions to them before. I can also tell it's a herx because everything gets worse. The pain is horrible, my muscles/joints ache alot more, I get crying spells and depression and I can barely move/function. Once I stop antibiotics, it gets better for a few days. When I say better, I mean the worse of it let's up but I usually still feel bad. Just not as worse as when I was on the antibiotics. I sometimes have new symptoms and old symptoms that surface when I'm herxing and my anxiety levels are usually through the roof.

Anyway, I hope I explained this good enough.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


PSR1
Regular Member


Date Joined Sep 2009
Total Posts : 67
   Posted 10/11/2009 10:53 AM (GMT -6)   
THanks to each of you for replying. I got sick in late July - just terminal weakness and fatigue that turned into horrible neuralgia once I started Doxy (we live in a Lyme hotbed and my internist is very Lyme literate and always suspects it with these symptoms) so I think I have actually been herxing on abx since I started Taking them. Once I went to a LLMD - in early September - he started me on zithtro & Mepron: and I just kept getting sicker. He switched off the Mepron & onto Ceftin about three days ago: his PA just called me to say that it can take up to two weeks to feel any significant change from a new antibiotic, and to hang in there. I have only done one rife treatment, very brief - 5 minutes - cause we just put the machine together. So...I am drinking water, taking baths with Epsom salts, and taking the proteolitic enzymes for 'detox.' I can't do saunas because of blood pressure & heart rhythm issues. BTW I think that Lyme did influence - not cause but exacerbate - some heart rhythm issues that I've had for about 6 years. Lots of fun. Thanks for all your support. I will look up the detox suggestions.
Pam

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/11/2009 11:07 AM (GMT -6)   
Pam,

I just bumped it up for everyone. It is going to be placed at the top of the Lyme forum soon.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 10/11/2009 2:14 PM (GMT -6)   
CajunGrl, Thank you -- yes, you explained it good enough. Although I have not bee going thru treatment as long as you, you describe my misery almost to a T. I just hate it, tho! I've been off the Amox all weekend and started a new dose this morning. I only have a couple of weeks worth left, but am hoping to get into a new Dr very soon! If not, would it be really bad to wait a couple days, then start taking my leftover Doxy iin the meantime?

PSR, I wish you well very soon!

Cajun and others -- with all this herxing going on, shouldn't we be getting better SOON?? I don't think I can take it if that kind of herxing misery continues very long -- it kinda makes me want to die....
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 

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