Nutritional Supplements Recommended by Dr. Burrascano

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CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 10/11/2009 11:11 PM (GMT -6)   
What a great site this is! It lists all the supplements we should be taking and what they do in the body. It also says that you can take 1cc of Methyl B-12 everyday for 3-6 months. It also states that you should see the red color in your urine. If not, then you either need more, or it is not as potent anymore(Just like Razzle said). I will have to let my doctor know.

Anyway, here is the link:

www.lymepa.org/Nutritional_Supplements.pdf

P.S.- It is in PDF format.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


strongmom
Regular Member


Date Joined Aug 2009
Total Posts : 79
   Posted 10/11/2009 11:51 PM (GMT -6)   
Wow,  thank you for the link.  I printed the document to have.  Never realized creatine is so important and also didn't know it helps with neuro problems.  I really don't like taking medications if I don't have to.  This could be a new avenue for me with the muscle spasms and neuro issues,  as the magnesium hasnt been helping.

bembuks
New Member


Date Joined Sep 2009
Total Posts : 15
   Posted 10/12/2009 1:44 AM (GMT -6)   
I printed out, too. Some of the things I was already taking and some I will add soon.

Just wondering about Vitamin D - one of my LD books - To 10 Lyme Disease treatments ( by B.Rosner, from amazon) makes a special point about the need to avoid all sources of Vitamin D. I guess this is controversial, can't really understand.


thx for the link
Probably tick bite August 2007, while 8 months pregnant
Severe Knee arthritis started February 2008, Dx - Reactive Arthritis, which subsequently took over all large joints
Elisa IgM and IgG both Negative, Western Blot IgM - Negative
2nd diagnoses April 2009 - probably seronegative Lyme disease
treatments so far unsuccessul. (2 week ab twice), Currently no meds, but naturopathic supplements
 
I still hope :)


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 10/12/2009 10:57 AM (GMT -6)   
In my opinion, Vitamin D is needed especially if you are low. Most lymies are low in Vitamin D. The symptoms for low Vitamin D can be horrible too.

Vitamin D-3 is best to take.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Willowrose
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Date Joined Oct 2009
Total Posts : 699
   Posted 10/12/2009 6:23 PM (GMT -6)   
bembuks - why do they say to avoid vitamin D? Another thread here says vitamin D3 works as an antiinflammatory. Can't imagine how that would be bad.

Rose
I have Lyme; it doesn't have me.


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 10/12/2009 9:39 PM (GMT -6)   
Okay, so here I go again~
IMHO & in NO way am I medically trained -

This is why we do need to be very careful. We each have our own unique set of issues, even though we all have TBI's.

I believe that before starting any new supplement, one should check with someone who is Lyme Literate & aware of their unique set of issues. None of us wants to hamper any progress they have made, or make ourselves worse.

We battle with uneducated doctors all of the time - we need to be very careful to educate ourselves - especially when considering changing or adding any medication or supplement.

Once again - just my humble opinion. =)
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


Cmacaran
Regular Member


Date Joined Aug 2008
Total Posts : 105
   Posted 10/12/2009 9:49 PM (GMT -6)   
In 25% of lymies have a pathway develops that converts vitamin D into an inflamatory agent.  There is a blood test to determine if you have this pathway, a good LLMD will run it for you.  Inflamation decreases the effectiveness of our immune system.  Those of us who have the vitamin D inflamation pathway, have a bad catch 22, we feel bad after taking vitamin D because some of it gets converted into inflamation and the inflammation blocks our immune system.  However, we still need to keep our vitamin D levels normal for biological function.  Therefore, we take Vitamin D if our blood levels are low but feel bad if we dose too high or get sunlight.  There is a group of people who have discovered that vitamin D makes them feel bad, those are the ones who suggest the no vitamin D diet.  Personally, I still take vitamin D even though I have the pathway because after over a year of low vitamin D I was getting bone pain (I think it was called rickets) but I eat an antiinflamatory diet (no sugar, caffine, milk, limited wheat, basically a lot of raw veggies) and hope for the best.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/12/2009 10:05 PM (GMT -6)   
Traveler,

Are you okay? Vitamin D is discussed alot amongst people with Lyme. Dr. Burrascano is a well respected doctor. Yes, one should ask their doctor first but Vitamin D is made naturally in our bodies just by sitting out in the sun.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 10/12/2009 10:15 PM (GMT -6)   
Hey CG,
about being okay? I guess that would depend on who you asked!! A lot of people think I'm pretty strange!! **wink, wink**
I know all about the sunshine thing - I burn so easily that I have trouble getting enough of it!!

But I have read so many well-known LLMD's & documented studies that suggest that some will have issues such as Cmacaran wrote.

I just think we do need to be really careful. Of course I say that as I get ready to start my own tx - but here again, due to circumstances I can't control, for me it's the only hope of getting decent tx.

I have absolutely NO desire to upset or offend anyone!!! That's why I made sure I put in that post IMHO!! Because that's all it is - my opinion.

And if you, as a Mod., believe that I may be 'speaking out of turn' so-to-speak, please let me know. blush
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.

Post Edited (Traveler) : 10/12/2009 10:18:16 PM (GMT-6)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/12/2009 10:36 PM (GMT -6)   
Traveler,

No way are you speaking out of turn! I just thought you were upset. I understand where you are coming from about Vitamin D. I put in my post to that it was just my opinion:) I guess I should have made myself more clear and say that we should get our levels tested first.

Anyway, no biggie. I was just concerned.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 10/13/2009 4:34 AM (GMT -6)   
Hey CG!! =)
Naw, I'm not upset, just concerned. Way back when (giggle) when I was a newbie to both support groups & the realization I was battling LD, I took supplements & such that I'm sure at least agitated things like my thyroid, the inflammation & such.

I do worry a bit about newbies getting all excited to hear about something that helped one person, & wanting to get back to get back their life so badly that they are ready to try most anything.

I try to err on the side of caution myself, but can still find myself in the same situation from time to time, as well.

So no biggie here either - unless you want to count my headache!! =)
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/13/2009 1:38 PM (GMT -6)   
Ugh! I hate headaches. I just had a bad one the other day. Hope it gets better for you soon.

I just want to say one more thing about these supplements. These supplements will NOT get rid of Lyme. However, it is a good idea to take Vitamins and supplements to get your immune system pumped up again. These are the standard Vitamins/supplements that LLMD's usually tell their patients to take. I am on most of these already. I'm just waiting for my tests results to come back for my Vitamin D levels.

Anyway, do ask your doctor before taking any Vitamin/Supplement.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Dealie
New Member


Date Joined Sep 2009
Total Posts : 14
   Posted 10/14/2009 11:06 AM (GMT -6)   
Thanks so much for this link! A huge help!

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 10/14/2009 12:13 PM (GMT -6)   
Hi All,
I finally got around to looking at this email I was sent a few days ago - I just kept forgetting about it!!! UGH!!!
Anyway, it's about vit. D & just how much should be taken ~

articles.mercola.com/sites/articles/archive/2009/10/10/Vitamin-D-Experts-Reveal-the-Truth.aspx
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.

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