Herx vs Bad Days? what's the diff?

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JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 10/12/2009 5:30 PM (GMT -6)   
I am 6 weeks into treatment via Doxy. How do you know if you are Herxing or just having a bad day or is it all in the same? I suffer from alot of joint and muscle pain. Somedays i can barely get up but other days I can get up but it still hurts just not as bad. Somedays i have alot of pain all over and some days its just my hands and legs.

I am a single mom of 2 boys, and have no help. So even on my worst days where I feel like I won't be able to get up, I have to push push push because there is no one else. So maybe I have herxed and not realized it?? Dunno... advice please?

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 10/12/2009 5:46 PM (GMT -6)   
Hi Jenn,

Wow, you are one tough lady! I don't know how you all do it when you have small children. I can barely move most days but my kids are older so they can do for themselves.

A herx usually makes everything worse. Your muscles, joints, flu-like symptoms all get a whole lot worse. This usually lasts for days, sometimes weeks. I hurt everyday too and some days are better than others but when I herx, it pretty much knocks me down ALL the way. Everything is so much worse, especially the pain. I can hardly take it.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 10/12/2009 7:40 PM (GMT -6)   
it is so confusing.  When I first started on treatment 7 months ago, I got worse and things hurt that never hurt before.  I really think it's the toxins of the bacteria dying off.  I am feeling better but after starting on a new antibiotic now, I'm again seeing a return of headaches, joint pain, etc.  It's so hard to keep your chin up and say hey maybe it just the bacteria dying and not a return of symptoms.  BUT I really believe it is.  I guess the real test is when we stop the antiobiotics, do all the symptoms return?  I'm gonna believe and if they do return, attack them again!!

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 10/12/2009 8:26 PM (GMT -6)   
Springsjean,

Sometimes when there is a change of antibiotics, the new antibiotics start killing off the bacteria that your last antibiotic couldn't get to. That is actually a good thing. You want your antibiotics to kill off all of that nasty bacteria.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 10/13/2009 2:39 AM (GMT -6)   
JennInPA, you will get your medal soon. I believe it because i too am a mom of 2. 1 boy 1 girl and they are both still infants. It is very hard to do this with kids but i would love talking with you b/c i need to learn how to push more! i'm not in half the pain i could be but just the anxiety keeps me in bed half the time w/my boy running around without me. And my baby girl in bed with me. Sad but that is why i would like it if other moms told me how they toughened up! I am not single either but sometimes it feels like it cause my husband is gone all day at work. You will get the strength you need. Do not doubt that. Someone is looking out for you whether you believe it or not- and i hope i haven't offended you by saying that. :)

bembuks
New Member


Date Joined Sep 2009
Total Posts : 15
   Posted 10/13/2009 4:09 AM (GMT -6)   
just hope it's herx, because then it would mean you are getting better!!

I fell ill while still nursing a baby (plus 2 bigger kids to care for), I know it can be tough!! I survived without toughening up - I just let myself do as much or as little as I could on each particular day without judging myself. And kids accept that readily (at least mine did). After a while (a long while:))) even my husband stopped picking at me and accepted the state of things.
Probably tick bite August 2007, while 8 months pregnant, February 2008, Dx - Reactive Arthritis,which never ended... Elisa IgM and IgG both Negative, Western Blot IgM - Negative
2nd dx April 2009 - probably seronegative Lyme disease, treatments so far 2 week abx twice, Currently no meds, but naturopathic supplements
 
 


Deejavu
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Date Joined Aug 2005
Total Posts : 4296
   Posted 10/13/2009 7:08 AM (GMT -6)   
Hi Jenn,
 
My opinion is what you are experiencing is toxins from the bacteria dying off.
 
In order not to feel so bad, I believe it would be good for you to start on a Detox Regime to get rid of the dead bacteria which in turn are called toxins that cause havoc to one's body if they stay inside..
 
Have you heard of Detox Baths using Epsom Salts and Hydrogen Peroxide?  Also, there are foot detox baths that consist of mixing cayenne pepper and dry mustard powder in hot water and you dry skin brush your feet.    When someone first mentioned detoxing to me I thought they were nuts since I had never heard of it and didn't believe at that time detoxing was beneficial until I started doing them myself.
 
Perhaps we need to bump up the Detoxing Thread. 
 
Hope you feel better,
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 


JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 10/13/2009 7:17 AM (GMT -6)   
Thanks ladies. I actually have a 14 yr old son and a toddler- 17 months. Soooo teenager.. need I say more. He doesn't always like to help, but since he watched Under our Skin with me he understands more I think.

I was on Doxy for 4 weeks the weeks I was off it I got even worse than before I started. I got into my LLMD and he wanted to do the IV but I had to go into the office 3 days a week for who knows how long and I couldn't afford the copays. ( I got laid off in May) So I opted to do Doxy again and he gave me a script for 2 months. So it's been 2 weeks since I started up again and I've felt pretty crappy. This week has been the worst with headaches and now I get stabbing pains in random spots. And its like someone stabs me with a knife really fast, it doesn't last but it's so sudden and so painful. Last night it was in my hand and I was watching tv with my son and i jerked my hand and gasped and he just looked at me like I was nuts. LOL

I guess I won't know if I am herxing or not. I've done cleanses in the past and when I herxed from them it felt like I was on my death bed. Vomiting, sweat, chills, etc... So I guess I expected the same.

finding721 - I am sooo hard to offend. lol I agree with bembuks, that some days you're going to be able to do more things than others and you can't judge yourself about it. I never ever let myself lay in bed, even if it's to move to the couch, I make myself get out of that bedroom. And unless my legs are paralyzed there is nothing that is going to keep me down, some days I have to hold on to things when I walk, but I guess I just refuse to let it win.

My mom is flying up next week to give me some help for a week and I am afraid I just might collapse when she gets here. LOL

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/13/2009 7:05 PM (GMT -6)   
We have our sticky in place now! Yay! If you guys need info on detoxing, look in the, "New to Lyme....Start Here!" thread.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 10/13/2009 11:03:09 PM (GMT-6)


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 10/13/2009 9:59 PM (GMT -6)   
Hi I see a LLMD in PA . I was taking doxy for a while with not much improvement also.

Then my LLMD added Clarithromycin . It really boosted the healing although it was very gradual..I def hit a wall with the doxy then the clarithromycin brought me further. So I'm taking doxy and clarithromycin.

also the jarro-dophilus for probiotic replacement.

Then the pain management is norco.

Everyone is right about detoxing . The hydrogen peroxide epsome salt baths are great.

Also My LLMD recomended an enzyme for breaking up biofilms you learned about during Under our skin.
It is called serrapeptase, and must be in enteric coated form. It has many indications and one is that it does help remove waste from the body. Waste as in dead bacteria, dead tissues, inflammation, also a pain blocking dimension.

I just started my serrapeptase and it has been so far a wonderful addition to my protocol. My fingers were swollen and they are almost normal today.

I also had pain and swelling in my knees which is reducing very well also.

Ive only been taking it for 4 days. Ive been telling people about it before i received it now that i am taking it i can actually vouch for it.

another thing that has helped me which may not apply to you is ive am taking ADD medicine. I tried Concerta first, it helped with brain function like concentration and retention, also gave me much needed energy.
Then i tried adderall which i am taking now it seems to last longer and to me is better on all the symptoms i just mentioned that the concerta helped.

It may not be ok with you to take ADD meds because people with Lyme should not take things that are neurological, but it is a sacrifice i am willing to take for the extra energy to take care of my 2 year old and my 94 year old grandmother whom i care for also.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 10/14/2009 6:37 AM (GMT -6)   
Where in PA are you? I am in Chester County. I go to my 2nd appt with my LLMD next week, so we'll see what he says. I only take medication when it's absolutely necessary. Before Lyme I treated everything with herbs, homeopathy, & my family sees a Chiropractor weekly. I hate hate taking antibiotics!!!

Im glad the new drugs are working for you! How long were you taking the Doxy before the other was added? My neuro symptoms aren't too bad. Yesterday though for the first time I was taking my Dad to his doc appointment and I couldn't remember how to get to the highway. I didn't ask my Dad, I did remember again, but it was freaky. Then on the way home I was in a neighborhood I've been in a million times and I looked around and nothing looked familiar. Now I'm scared to go anywhere. I mean I know I can just click on the GPS but it's a freaky feeling!!

That's the part of Lyme I don't get. Well I dont get any of it, but if I never had those neuro symptoms before, why now after I'm on meds? Shouldn't it be getting better????

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 10/14/2009 8:58 PM (GMT -6)   
I feel for you young mothers trying to make it with kids to take care of. You deserve a medal.
I hope you get over the worst of it soon. Quercitin is a supplement that helps reduce inflammation. you can get it at your health food store.

I think it is the toxins from the die off in your brain that are causing the neuro problems, Jenn. You almost always get worse before you get better.

JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 10/14/2009 9:04 PM (GMT -6)   
Thanks nefferdun. I will definitely look into the Quercitin. My chiro told me about one called Zyflomedd or something like that but it was wayyy out of my price range.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/14/2009 9:21 PM (GMT -6)   
Hi Jenn,

I started having worsening neuro problems after I started antibiotics. You may also want to ask your doctor about Bartonella.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 10/15/2009 5:41 AM (GMT -6)   
Reallly?? I don't understand the whole co infection thing and I know my LLMD doesn't believe they are co infections of Lyme, he says you can have those infections without having Lyme. Do they say that Lyme causes the co infections? or why is it that they show up later? I mean when I was first diagnosed a couple months ago I had memory issues, but not too bad. Sometimes I forgot words and stuttered but not too bad and not even every day. And now the neuro symptoms come and go.

My LLMD wants me to do IV treatment 3 days a week at his office (thus paying a co pay everyday) and I can't afford it. But my friend when to an Inf dis doc close by and she did the IV treatment herself at home and a nurse came to her house once a week. Do you think I should do the IV treatment? I saw alot of people on this board don't like IDDs. My friend said she had alot of chest pain with the IV treatment and now has MAJOR anxiety.

what to do what to do

Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 10/15/2009 6:44 AM (GMT -6)   
I go twice a week for IV rocephin which has not required a PICC line. My eyes and ears are getting better after eight treatments. I still have four more to go and then we re-evaluate. I have to pay out of pocket for these as my LLMD has chosen not to submit to insurance due to the hassles they give him. I seem to be ok with the abx, but I am on a rather strict diet and several probiotics and candida busters. Everyday, I pray that I can withstand the full course of abx as I've only been at it for two months.

Doc and I decided to do IV when the neuro symptoms appeared. They scared me badly and I would have done whatever was needed to try to get my vision and hearing back to where it should be.

It is a big decision; I'm sure you'll make the right one for you. All the best to you.

Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 10/15/2009 12:55 PM (GMT -6)   
I take Quercetin, and it really helps me!
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