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Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/14/2009 11:25 AM (GMT -6)   
  Here is a link re. a new Lyme film entitled "Under the Eightball." 
 

JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 10/17/2009 12:50 PM (GMT -6)   
interesting. are they saying this disease is manmade?

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/17/2009 5:08 PM (GMT -6)   
I'm not sure. As if it wasn't controversial enough with the yes/no chronic lyme debate and corresponding treatments, here comes a film that acknowledges lyme but, at least in the trailer, implies that it may be a function of biological warfare. At least I think that's what they're saying. It is difficult to envision the US dropping a bunch of ticks on the enemy; it seems that pretty much any other avenue of infection would be a better choice (gas, food-borne, chemicals, ebola spray). On the other hand, based on my own experience, infecting the enemy with Lyme would, over time, be pretty incompacitating. If their immune systems aren't terrific. If it isn't too dry an environment for the ticks to survive. If birds don't scoop them up before they become entrenched in their new land. It seems really impractical. One thing is certain, I want to watch this just to find out what they really are saying.

Rose
I have Lyme; it doesn't have me.


JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 10/17/2009 6:37 PM (GMT -6)   
It is so overwhelming isn't it? I was just diagnosed in August and I've read so much, talked to so many people, and went from treating everything with herbs and homeopathy to taking these stupid antibiotics, going on 7 weeks now.

I do believe that the docs really don't have a clue. Even the LLMD. Because I know I'm going to my 2nd appt with my LLMD on Tuesday and I'm going to ask... why am I getting worse? and if it's because it's dying off, then how much longer will I feel worse? and how much worse will I get? I'm a single mom and my mom lives in FL and i'm in PA and I need to know if I have to move to FL to have support. I know his answer will be either, it's hard to say, we don't know, or everyone is different.

i'm terrified that I am going to wake up one day and not be able to walk. Who will take care of my toddler? I feel like I can't wait for that day to happen. I can't get up out of bed on my own now. I have to hold on to my baby's crib thats next to me and pull myself up and lean on it. Blah... Sorry to be a Debbie Downer! lol

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/17/2009 7:57 PM (GMT -6)   
Jenn, it's heartwrenching to hear your story. It's difficult enough to face this disease; doing it while caring for a young child is a daunting undertaking. Is it possible for your mom to come stay with you in PA? I don't know your situation, but a consideration could also be which place has a better LLMD near it.

We seem to be on a smiliar journey. I, too, was diagnosed in August with Lyme and then in September with coinfections. Also, like you, I'm into natural foods and natural healing; that's worked for me most of my life. But now I'm on antibiotics, and adding in natural things slowly. My LLMD is a holistic doctor and he's an advocate of natural healing, but he recommended, and I agree, that for me as sick as I am antibiotics is what I need right now. Maybe later when I get more of a foothold I'll switch to a natural treatment plan.

I know it sounds awful, but maybe the way you are feeling is because of die-off (herx). It stinks to feel worse, but that also could be a good sign. I feel better than I did before I got on antibiotics and that scares me because I think maybe they aren't working.

I believe in 20 or 30 years all of this crazy Lyme controversy will be over and there will be a much better diagnostic and treatment protocol. For now we have the added burden (to feeling terrible and knowing we are infected) of weeding our way through the various theories and treatments, not having any idea if we will be one of the lucky ones to respond well and quickly, or one of the ones who will have to struggle for longer to get well.

I'll be thinking of you on Tuesday and hoping that you get some useful information from your LLMD.

Take care,

Rose
I have Lyme; it doesn't have me.


JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 10/18/2009 11:00 AM (GMT -6)   
Thanks Rose. One day at a time I guess. I haven't been tested for co infections, so I'm assuming my Doc will want to do that on Tuesday.

PSR1
Regular Member


Date Joined Sep 2009
Total Posts : 67
   Posted 10/18/2009 11:31 AM (GMT -6)   
JennInPA:
I am in the same boat as you and Willowrose. Diagnosed late July, on abx since then, LLD in September, just seem to be getting weaker and sicker, with only minor symptoms seeming to resolve. How long do you think you were infected?

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 10/18/2009 12:17 PM (GMT -6)   
I don't know what this film seems to be implying. However, from what others have said to me, or posted on here, the implication might not be that the gov't created LYme. This disease dates back too far. But I think some implications are that the gov't experimented w/ the Bb virus, mainly w/ the intention of wiping out a country's food animals. And that the virus somehow got out.

I don't know and I don't know if all this stuff can be believed. I sure would like to learn more, but there is not much time for anymore research!
 
I will be very interested in others' responses.

Jenn (and others) -- I will hold you in my thoughts and prayers. I will pray for you to receive some relief and some guidance. I don't know how we will ever get this figured out, but we will have to. I'm scared about what may happen w/ gov't healthcare. Who will be willing to put the $$ into this research w/o getting rich for it.


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 

Post Edited (+Lyme) : 10/18/2009 12:21:04 PM (GMT-6)


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/18/2009 4:04 PM (GMT -6)   
It is unsettling to contemplate potential changes in the healthcare system. Right now it is not serving a lot of people very well and the hope is that it will become better, but I share the anxiety that maybe those of us with Lyme and coinfections, and people with other (can't remember the acronym - DUOs? - diseases of unknown origin) will have our medical support diminished if the bad guys win and the "month of meds and you're better" treatment protocol is adopted. I also heard that people with "premium plans" will be taxed on them. We have ok insurance, better than a lot I suppose, but I wouldn't call it premium by any means. However, compared to medicare and other HMOs, it will most likely be considered so by the IRS. Just what we need are more out-of-pocket medical costs. The symptoms and treatments and uncertainty are bad enough but heaped on top of the expense and lost revenue because of inability to work, it's overwhelming. To think that in addition we may now pay taxes on our medical coverage is most disturbing. I hope society is ready to support us when we retire because as it is going we will probably spend our retirement nest egg on medical bills. Remaining ill is not an option.

Rose
I have Lyme; it doesn't have me.


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 10/27/2009 10:35 AM (GMT -6)   
Society CAN'T support us when we're old. As everyone knows our SS has already been robbed. The pharaceuticals (sp?) are already out of control, but at least they are developing drugs and cures to make all that $$$. If Drs and the research community have 'caps' on their earnings, I don't see anyone putting much effort into new discoveries and cures.

It is all political. ALL of it. It has nothing to do w/ the 'common good'. If the gov't was truly interested in the 'common good', it would have begun taxing us to ensure that no child goes to bed hungry. Feeding the hungry is not in this mess at all. ONly health care. WHY? Because it's power. It has nothing to do w/ helping anyone.

When we all have the same insurance and we are also forced to insure those who can't, we will be broke and there will be no more progress. Stuff like lyme will probably be chucked out the window. When our President makes a statement like this: Maybe many will have to take pain pills instead of an operation', then we know we are in trouble.

Sorry, I know this is not a political board, but these are my fears which are quickly approaching. There already is not enough research on stuff like LDN, because it is too cheap. No one can make any money off it, so why bother learning about everything it can help.

IMO, the swine flu and breast cancer have become 'big business'. I don't even want to buy pink anymore, because it's everywhere and it means money for everyone who will use the colors. Yet there is no answer as to why this has become an epidemic. There is too much money to be make in it. Same for the swine flu, which is no more virulent than any other flu outbreak we have had. Kills far less people than some.

Gotta go, as Razz says, 'my 2 cents'.


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


Tallison
Regular Member


Date Joined Jun 2007
Total Posts : 417
   Posted 10/27/2009 7:43 PM (GMT -6)   
Hi!  Went to the Premier of Under the Eight Ball.  Whole second half of the movie outlined all the history, a job well done.  Packed with information.  Stuff that I've read in Lab 257 and more.  Good job of info gathering, also sad story - the director's sister passed away and the first half outlines / follows her struggle.  I met the folks involved with the documentary- awesome people.

strongmom
Regular Member


Date Joined Aug 2009
Total Posts : 79
   Posted 10/27/2009 9:22 PM (GMT -6)   

Wow.  I don't know if I dare see a movie like that,  I'm paranoid enough as it is with all the things I've seen already. 

Every other day I'm saying to myself,  AHHH HAAAHHH so that is why this is that and that is this and these people are in collusion with those people etc. 

Sometimes I just have to remove myself from some of this for the sake of my own sanity.  Sigh.  But it's good to see more is coming out in the open about this disease no one wants to talk about.


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 10/29/2009 10:12 PM (GMT -6)   
Yep, Strongmom, agreed!
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 

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