One band postive?

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PSR1
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Date Joined Sep 2009
Total Posts : 67
   Posted 10/15/2009 3:16 PM (GMT -6)   
I was positive for only one band - 41 - on my WB, with elevated liver enzymes and low white blood cell count. Does this mean that I do not have Lyme? What does the low wbc indicate?

springsjean
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Date Joined Mar 2009
Total Posts : 2154
   Posted 10/15/2009 3:50 PM (GMT -6)   
If I am not mistaken, I have read that band 41 can be specific for co-infection erlichiosis. As a matter of fact, elevated liver enzymes and low white blood count are very specific to erlichiosis. I would do some research on that. I have tested positive for it with a high ratio - 1:320. What symptoms have you been battling?

PSR1
Regular Member


Date Joined Sep 2009
Total Posts : 67
   Posted 10/15/2009 3:59 PM (GMT -6)   
I have terrible neuro symptoms: tremors, pain and neuralgia in the back and hips, insomnia, and crippling weakness. I will definitely look up Ehrlichia. Why would my LLMD not have spotted this (I just got a copy of my bloodwork from his office.)
THanks

springsjean
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Date Joined Mar 2009
Total Posts : 2154
   Posted 10/15/2009 4:18 PM (GMT -6)   
Did he test for that co-infection?

PSR1
Regular Member


Date Joined Sep 2009
Total Posts : 67
   Posted 10/15/2009 4:35 PM (GMT -6)   
Yes - and it was negative, as was everything else - Babesia, Bartonella (2 strands) etc

Nicky D
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Date Joined Jun 2009
Total Posts : 361
   Posted 10/15/2009 5:19 PM (GMT -6)   
PSR1- As far as I know, most LLMD's don't test for erlicha, as many of the drugs used to treat Lyme also treat both erlicha and mycoplasma. (I think Doxycycline is the one that works best....maybe...)

As for the testing- Lyme disease is a clinical diagnosis. LLMD's do the blood test in the hopes of getting further proof, but you can have a negative blood test and still have Lyme disease. Something like 30% of people infected will test negative. It's unfortunate- because I know I was really hoping for a positive blood test, to give myself some certainty.

My test has only 41 ++ and 39 IND, so what my LLMD recommended was starting antibiotics, and re-testing in a month. If I had a significant reaction to treatment (a herx OR and improvement), or if my re-test was positive, he would feel confident it was Lyme. My re-test was identical to my first test. but I had a very strong reaction to treatment (I felt like crap for a month), so he continued treating me. If neither had happened, I don't know if he would have stopped treating me, but he would have re-evaluated more carefully. However, some LLMD's would have considered my test "positive", as band 39 is very specific to Lyme- so there is variation between Dr.'s

From what I know about band 41, it can cross-react with other things, but the two most common are gum disease and syphilis, so if you don't have either of those, than Lyme is the most likely reason for it to show up.


Also- testing for Babesia and bartonella is as unreliable as testing for Lyme, if not more so. Did your Dr get a completed list of your symptoms? If they did, they probably cross-referenced them against co-infection symptoms.

Anyway, the end point is that while a positive test means it is Lyme for sure, a negative test doesn't mean anything either way (which sucks). If I were you, I would talk to your LLMD. If might be that he is treating you for co-infections (or at least aware of them), but forgot to tell you (or just didn't think it was necessary to tell you). It would also be good to get his opinion on the test. Whe? is your next appointment?

Nicky

PSR1
Regular Member


Date Joined Sep 2009
Total Posts : 67
   Posted 10/15/2009 6:25 PM (GMT -6)   
He told me that Xithromax would treat Bartonella as well as Lyme. I took Zithro and Mepron for Lyme and babesia. I have always thought my symptoms were more Baronella - ish, but he said he thought the Zithro would deal with it. I am going to another LLMD in about a month.
Pam

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 10/15/2009 7:22 PM (GMT -6)   
Zithromax is not used to treat Bartonella. Levaquin and Rifampin are used to treat Bart. Zithromax or Biaxin is usually used in conjuction with Mepron or Malorone to treat Babesia.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 10/15/2009 7:28 PM (GMT -6)   
Co-Infection symptoms and treatment:

Thought this would be interesting to read:


Description, symptoms, and treatments of co-infections:

Babesiosis:- is a malaria-like protozoa illness that invades, infects, and kills the red blood cells.  Symptoms include fatigue, night sweats, chills, fever, shortness of breath, heart palpitations, headache, dark urine, muscle pain, joint pain, nausea, and jaundice.  Treatment is an anti-malarial combined with an antibiotic--often Mepron with Zithromax (or Biaxin or Ketek).
 
Ehrlichiosis:- is a bacterial infection that invades and infects the white blood cells.  There are two types of Ehrlichiosis:  Human Monocytic Ehrlichiosis (HME) and Human Granulocytic Ehrlichiosis (HGE).  Symptoms include malaise, fever,
sweating, nausea, dry cough, headache, muscle aches and
pain.  Treatment is most often Doxycycline.
 
Bartonella:- also known as cat-scratch fever is a bacterial infection.  Symptoms include swollen, painful lymph nodes, muscle and/or joint pain, nausea, vomiting, chills, anxiety, insomnia, red rashes.  Treatment is often Levaquin or Rifampin.
 
Mycoplasma:- is a bacterial infection.  Symptoms include fatigue, breathing problems,
headache, muscle pain and soreness, nausea, lymph node pain, and cognitive problems.  Treatment
is usually Doxycycline, Minocycline, Azithromycin, Clarithromycin, or Ciprofloxacin.
 
For more information on the co-infections, see "Everything You Need To know about Lyme Disease (2nd edition)" by Karen Vanderhoof-Forschner and Dr. Joseph Burrascano's Lyme Treatment Guidelines at:
www.ilads.org/burrascano_0905.html
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

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