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blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted Yesterday 4:41 PM (GMT -6)   
How have abx helped your recovery? How has natural treatment helped your recovery? This is not a debate post- straightforward, but friendly comments please! List what symptoms were resolved so that we can celebrate progress together! cool tongue

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted Yesterday 4:55 PM (GMT -6)   
Hi Finding!!
Well, as for me - one yr of Mino only made me worse - probably just needed to do a ton of detoxing, but couldn't even imagine trying,

since I herxed so much cognitively. I really couldn't even think straight, begun to stutter, & all that fun stuff! Once I started having a few

small seizures - it scared the bejeebers out of me - so I quit.(I need to have a little guy crying his eyes out here!!)

Now I'm ONLY detoxing - that's proving to be hard to stick with as well rolleyes , but I'm determined to get better - so will stick with it no matter what this time.

I used to treat myself with herbs soley-way back when - but that was back when I had a functioning brain!!! smhair
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted Yesterday 5:15 PM (GMT -6)   
Your brain sounds good to me Traveler! Do you ever get the acid/ammonia on the brain feeling? I hope i'm not hte only one experiencing this right now! hehee. I think doing detoxing is so great! Please share what different things you are doing and how often. I am soaking my feet in epsom salts at this moment! hehe. I do the detox baths from deejavu's post but i'd love to hear new ideas that work!

PSR1
Regular Member


Date Joined Sep 2009
Total Posts : 67
   Posted Yesterday 6:30 PM (GMT -6)   
I have only been in treatment for 3 months, and still feel wretched. Doxy for five weeks: felt some relief in the 4th and 5th week. Then started Mepron/Zithro: had shaking chills and neuralgia from hell: it passed somewhat but I never felt better. Now I am trying Cipro: it has only been a week and I am hoping that the current neuralgia & insomnia are a herx. Did Zhang herbs for the three months as well: not sure if they had any affect. I have actually bought a month of Cowden herbs, but have not started yet: want to see how the antibiotics play out. So...results just very inconclusive.

PSR1
Regular Member


Date Joined Sep 2009
Total Posts : 67
   Posted Yesterday 6:32 PM (GMT -6)   
Oops - one more thing.
I did have symptoms that have resolved. I started out with tingling from the waist to tthe toes: that is gone, as are the yellow patches and little black dots in my vision. I had a rapid heartbeat and palpitations for several weeks, and they have resolved. Also, the hyper-sensitive feeling I had on my arms and legs is getting better. I still have intense neuralgic pains - and crawling sensations and a deep and hideous tickle in my back - and profound weakness.

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted Yesterday 10:10 PM (GMT -6)   
Like PSR1, I felt better when I was taking the doxy (less fibro symptoms, much less pins & needles). When I was switched to zithro, mepron, and artisiminin some of the symptoms returned, particularly the pins & needles. Also, I have new symptoms (hot and sweaty every evening and night - feel like I might spontaneously combust). But, all that being said, I still feel tons better than I did before I started meds.

Rose
I have Lyme; it doesn't have me.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted Yesterday 11:22 PM (GMT -6)   
finding,

If you really want a good detox, you can purchase a portable infrared fir sauna. A few of us have them already and it does help. If you want more information, just let me know.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted Yesterday 11:23 PM (GMT -6)   
HI Finding!!
we are going to have to quit meeting like this- people will talk!!!

Anyway, I don't know about feeling better - but you have to understand - I have been un-treated & under treated for an eye-popping 40 yrs. Not real proud of that little detail.

At this point, I can only handle the detox baths 3 time a week (& I'm cheating, my daughter is up for the weekend, so I'm taking

a holiday until Mon!!) I did start with the mustard foot baths today though. Unfortunately, I had the same reaction as

with the detox bath - only this one is a fairly minor migraine.

I'm thinking I need to stick with just detoxing with the baths & such, for an extended period, after 40 yrs of not being

able to detox properly well, there's a lot of crap built up!! At least that's my excuse & I'm sticking to it!!!

ONce I feel I'm better able to handle it, I will then start on Dr. J's neuro antitox- CNS/PNS, as those are the sx's that are the hardest for me to get through.

I can deal with the muscle spasms easier( even though I can & do get entire back spasms & such), and have had the joint pain

for so long, it will actually be weird once I no longer have these constant buddies with me.

I am also drinking 40 - 60 oz. of water w/ lemon, 4 cups of decaf. green tea, and one cup chamomile tea at night, before bed.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted Today 1:23 AM (GMT -6)   
Traveler, Let em talk! hehehhe. It's just nice to have someone to give me the "low down" on everything. That green tea thing sounds great i will have to start- too bad the kind i have now isn't decaf- have to go buy- better write it down before i...before i...oh yea before i FORGET. LOL. List o things to buy 1. infared sauna- per helpful advice of Cajungrl and georgiagirl, 2. green tea- decaf 3. bentointe living clay for bath and to drink (SIDE NOTE TO ANYONE THINKING OF TRYING CLAY- don't use while on ANTIBIOTICS) I just lucked out cause i'm not on meds yet! heeehehee. I wonder what Dr. J has to say about clay? Lemme know if you find anything in the book traveler!

Cajungrl, do you know how cute everyone must look in those things with their hands sticking out the sides? hhehehe. Don't know why the better mood today- guess it was the salad and lovely epsom salt bath- that thing is heaven.

Rose, I am glad you are doing better with your meds! You know i read one of your posts to the new guy in town- you said you do movie get togethers with other lymies- you just inspired me to join my local lyme club! I think that is SO fun and cures the isolation problem- plus i miss movie watching. :)

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted Today 6:33 AM (GMT -6)   
While I have not officially been started on Lyme treatment, there are some things that have proven helpful for some of my symptoms:

Herbs/Homeopathy/Supplements:
 
Milk Thistle - liver is a lot happier on it...liver doesn't hurt anymore, and liver enzyme tests are normal when I take the milk thistle
 
Nettles - joint pain, wandering leg pain, hand/wrist stiffness/pain all goes away on the Nettles
 
Acidophilus - helps settle my stomach & keep bowels functional
 
Acute ViroReliever (homeopathy) - helps my low lymphocyte counts come up to right around the low end of normal
 
Ailanthus - just started this one, and my energy level has been slowly improving since I started it...
 
Rescue Remedy (Bach Floral Remedy Mix) - helps with nervousness/anxiety, stress/trauma (emotional)
 
Homeopathic Causticum - helps restless legs/joints, joint pain, wandering leg pain, hand pain
 
Vitamin B12 (Methyl-B12 oral spray & injections) - cuts severity of sulfite reactions, increases sulfite tolerance threshold
 
Magnesium - reduces muscle pain and cramping, helps gut motility
 
Peppermint essential oil - motion sickness, skin itching, sometimes helps nausea
 
Homeopathic Ipecac. - helps nausea "attacks"

 
Medications:
 
Claritin - hay-fever/sinus symptoms, itchy eyes, etc.
 
Pulmicort - (sprayed up my nose) helps plugged/itchy ears, nasal inflammation & hayfever symptoms
 
Domperidone - helps my slow stomach to empty faster, helps me tolerate anything in my stomach (can't eat much without it), helps nausea
 
Zofran - works for my really bad nausea episodes
 
Benadryl - I use it for acute allergic reactions, as well as for sulfite reactions

 
Other:
 
Gluten/Corn/Dairy-free diet - gluten & corn cause migraines, gut dysmotility & monthly cramps for me, and dairy gunks up my sinuses and may contribute to gut dysmotility
 
Low protein diet - given genetic issues, I have difficulty processing certain amino acids (sulfur-based) and so have found I just feel better in general on a low protein diet
 
Heat/heating pad/electric warming blanket - reduces pain, muscle spasms, and just plain helps me feel better (as long as I don't overheat...)

I've been on abx since early this year because of multiple infections (UTI, lung, skin). When the doctor tries to take me off, I get sicker...and last time we tried to lower the dose, I spiked a fever of 103 (my normal is 96-97.5, so 103 is a pretty big deal) within 24 hours of reducing the abx dose by 50%. So my doctor is content to leave me on the abx for now. The abx I'm on is not known to be particularly effective for Lyme, but it must be helping some or I don't think I'd get sicker without being on it.


-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, homeopathy.

Post Edited (Razzle) : 10/17/2009 6:36:27 AM (GMT-6)


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted Today 7:35 AM (GMT -6)   
ABX's have helped me.... at least once since I did have a Herx reaction and thought I was cured.

All the natural remedies in the world did not work for me, in fact I blew up to 181 lbs. (from a normal of 135) and then had to get my GB out.... and then was completely ignored by the doctors rx'ing all of the "remedies". But, prior to getting sick, if I ate "natural" foods like raw spinach, squash, zuchinni, etc. I would double over. I used to joke that my body didn't know what to do with food that wasn't from McDonalds - haha!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
10/01- Igenex and CDC LD positive Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Flagyl, Hydrocodone, Glutiathione injections, Vitamin B compound, Invanz IV, LD theme song: http://www.youtube.com/watch?v=MgHioCC3yCo&feature=related
 


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4296
   Posted Today 8:51 AM (GMT -6)   
I have tried different types of natural remedies such as Nutramedix Samento, Colloidal Silver, etc. and those did nothing for me.   Dr. Jernigan's botanicals and his protocol (which includes lots of detoxing) worked for me with no herxing and it's been years that I have been in remission (symptom-free).
 
All I can say is read books, learn as much as you can and if whatever protocol you are on is not working after 6 months or so, perhaps it time to try a different one..  One can always go back to their original protocol.  I do not believe in long-term antibiotics, I feel they do more harm than good and that's just my opinion.
 
Denise


It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 


blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted Today 10:45 AM (GMT -6)   
traveler, you get that anti tox formula yet? Let me know how it works! Check your email-i'm sending you a message.
I refuse to stay sick! Period. 
 
 

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