Odd set of symptoms - any similar stories

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Clicky
Regular Member


Date Joined May 2008
Total Posts : 166
   Posted 10/17/2009 8:24 PM (GMT -6)   
Hi all,
 
Sorry to jump in here.
 
I was curious whether anyone had the following symptoms and has been positively diagnosed with Lyme:
 
In last 14 years:
 
-Pericarditis (in hopital for it 3 times)
-Bell's Palsy X 3
-Arthritis in lower back and sometimes hands
-Severe Ulcerative Colitis with extensive bleeding and little remission
-Brain fog and jumbling up words
-Frequent mouth ulcers and swollen tongue
-psoriasis
 
Any thoughts welcome.  I am 34, female.
 
Would Lyme cause this?  I have never been tested - dont remember a bite - but have been around many ticks and have pulled many out my dogs over the years with my hands (not very clever...) I have read the symptoms - but wondered if anyone has had a simlar group of symptoms?
 
Many thanks in advance,

Clicy

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35706
   Posted 10/17/2009 11:01 PM (GMT -6)   
Hi Clicy,
I haven't welcomed you yet - so welcome!!! So sorry to hear you are going through all of this. This is a great place to find info, compassion & we even manage to cut up here!!

I don't have all the of symptoms that you described, but most likely someone here has had a similar experience.

Lyme disease is a funny critter- it is as individual as the person it infects.

Have you read the 'sticky' (at the top of the forum page), titled "new to lyme? start here" ? It's packed with all kinds of good stuff.

There are quite a few people who never see the tick that bit them & gave them this insidious disease - especially if it gets embedded in the scalp, back of the neck, at any hair line.

I hope you find the info you are searching for. Good luck, & may you find not only healing, but peace as well.

~Trav
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 10/18/2009 11:04 AM (GMT -6)   
I never saw a Tick, and tested positive for Lyme in Aug of this year. I have psoriasis, brain fog, jumbling words, stuttering, and had Bells Palsy about 10 years ago, no idea if i had Lyme back then. Low back and hand pain also, i have a ton of other things but just wanted you to know that i have lots of the symptoms you have. Also, I am 34, female! :)

Clicky
Regular Member


Date Joined May 2008
Total Posts : 166
   Posted 10/18/2009 3:33 PM (GMT -6)   
Thanks for your replies, I really appreciate it!

I have been wondering if I should get tested for Lyme's given the odd set of symptoms over the years. Maybe I will.

Thanks again,

Clicky
Diag proctitis 97
Major flare and extension to left sided colitis Aug 2006 - present - I have bled every day since Aug 2006 (I quit smoking in June 2006)
 
Imuran (Azathioprine) game me liver damage.
Pred made not difference.
Now on lots Asacol and mesalazine enemas.

Concidering surgury.  Am very fed up.


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/18/2009 4:38 PM (GMT -6)   
There is a lot of information on the New Member sticky. One of the things that helped me decide I probably had Lyme before I was officially diagnosed was Dr. Burriscano's diagnostic guidelines. It is a check-list of symptoms and then a number system to help you determine your likelihood, based on your symptoms, of having Lyme. It is on the sticky and posted by CajunGirl. It is entitled "Great Websites to Visit" or something similar. That may help you.

Rose
I have Lyme; it doesn't have me.


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/18/2009 4:43 PM (GMT -6)   
Where is my brain??? I can make this easier. Here's the website. I'm terrible at computer things so sorry it isn't blue, but maybe it will still work if you paste it on your address bar.



http://www.turnthecorner.org/documents/Lyme_Disease_Burrascano_Guidelines_2008.pdf

Rose
I have Lyme; it doesn't have me.


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 10/20/2009 9:33 AM (GMT -6)   
Clicky, I'm sure you have read this, but the test are not very reliable, so if you have a test (ask for a Western Blot, IgM,& IGg, not the Elisa) and get copies of the results, alot of doctors will tell you you are negative when you have had bands positive just not enough to be CDC positive.  Read all that you can and educate yourself, doctors are really not informed about LD or it's symptoms.  Good Luck, KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol stopped Zhang's after 6 months symptoms returned.  Started Buhner's protocol May 2009


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 10/20/2009 10:00 AM (GMT -6)   
Hi Clicky,

Welcome to the forum (I know this is a bit late, sorry!). As KO-LD said, the tests for Lyme disease aren't very accurate. The most accurate test is the Western Blot through Igenex labs. Most LLMD's (Lyme-literate dr.'s) test through Igenex, because if the test comes back positive, you have something concrete (although if it comes back negative it doesn't tell you anything, really).

Although we can tell you Lyme disease is possible, you should see a doctor and/or get tested, because we aren't Doctors, and can't actually diagnose you. Just be aware that most regular doctors will refuse to consider Lyme disease.

Best of luck!

Nicky
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