Ohhh sooo much closer!

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1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 10/18/2009 7:09 AM (GMT -6)   
I just had to let you all know.......
 
I have been in treatment almost 3 years now.  However, since August we have been treating virals, and virals only.  Prior to August, I had been off all abx since Feb. (needed an abx break after all that time).
 
Treating virals has been pretty darn rough at times.
 
BUT
 
Yesterday we had our Club Car show... I got 4-5 hrs sleep on Friday night (this was after cleaning my house all day), then showed up at 6:30 AM to start the show.
 
Was a LUNATIC all day.  We had 242 cars registered, which I helped park.  Then it was my responsibility to sell 50/50 tickets.  Granted I did have a golf cart (thank god)...but I was on the run the whole day.

We are a very small club (8 couples) and we are non-profit and all monies raised every year from our show goes to purchasing gifts for families of the Salvation Army.  The children write Dear Santa letters, which we are given and we buy for them off of those letters, then go in as Santa and deliver to them.  Really warms your heart.
 
Anyway, the goal given to me by the President of the Club was to reach $ 1000- on the 50/50.  That is pretty darn tough in this economy...but if you knew me cool .......
 
I made the goal early afternoon...so he gave me $ 1250- now..
 
Needless to say @ 3:15 I had raised $1475-!!!! Half of which would go to the winner of the 50/50.  I actually ran out of tickets and had to stop selling.
 
The winner, an older man, donated $ 100- of his winning back to us for the kids!  I cried and gave him a big hug.

We then handed out over 80 trophies, waved goodbye to every last car, then had to start cleaning up and breaking down.  Finished at 5:30.  (I had not even had a chance to pee since 6AM, and I am not kidding!).
 
Went for dinner with everyone, then drove the 1 1/2 hrs to our home.  Got in about 8:45.  Took my meds, was in bed by 9:30.
 
My point is....1 year ago I would have NEVER been able to do this.  In fact, I did not do it.  I had to drop out of the Club for 2 years, and we joyfully were able to rejoin this past May.
 
There is hope...there is joy and there is healing...We just need to hang in there, treat all aspects of the disease and lean on one another for comfort and encouragement.
 
I hope my story has been able to encourage some of you! yeah
Hugs to all


Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain

Post Edited (1bitten2xshy) : 10/18/2009 7:12:02 AM (GMT-6)


PSR1
Regular Member


Date Joined Sep 2009
Total Posts : 67
   Posted 10/18/2009 7:23 AM (GMT -6)   
How did you treat the virals?

Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 10/18/2009 11:05 AM (GMT -6)   
Wow! That is so exciting! I'm so happy you're getting your life back!

But you do know that this means that next time you sell 50/50 tickets, they're going to expect great things from you, right? smilewinkgrin

1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 10/18/2009 12:52 PM (GMT -6)   
Hey Nicky..I know sigh! :)

I am treating with Acyclovir in high doses and a muscle relaxer at night. Sleep is so very important. I sleep, but wake up during the night because I am stiif...I change positions and go back to sleep...but the important sleep time is getting interrupted...so we are trying this and it has made a HUGE difference! I wake up feeling like I actually did sleep!
Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/18/2009 4:01 PM (GMT -6)   
Melody,

That is awesome! And what an awesome thing you all do for this kids. I'm so happy you could enjoy the day and not worry about this stupid disease. You sound so much better too! Keep kicking those viruses butts!!
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/18/2009 4:11 PM (GMT -6)   
It's wonderful to read some good news! I'm so happy for you that you are feeling better. Were you diagnosed with viral infections, or was it just assumed that you had them and needed treatment?

Rose
I have Lyme; it doesn't have me.


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 10/18/2009 4:13 PM (GMT -6)   
1Bitten,

So glad that you are able to get back to what you enjoy and helping people while you are at it! That's great! Are the virals a coinfection or separate from Lyme?

1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 10/19/2009 5:50 AM (GMT -6)   
Virals are seperate from Lyme.

Alot of LLMD believe when you treat Lyme, your virals will go back "into hiding".

Well, mine have not gone back...so we are treating them. Most LLMDs test for virals such as EBV, HHV and CMV...along with others.

I have very high EBV, HHV6 & 7, and CMV. HHV 6 & 7 are not the sexually transmitted kind that many think they are. I have a form of Roseola, variant 6A.

I have always urged all that have been in agressive treatment for an extended period of time and are either "stuck" or not seeing improvement..to make sure you are tested for virals and treated if appropriate.
Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain


1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 10/19/2009 5:53 AM (GMT -6)   
Also, my virals were tested when I first started Lyme treatment, then again this past April.

The titers had only risen as well.

EBV, is another word for a form on Mono and of course many Dr.'s out there state that we ALL have mono in our systems and always will...so not to worry.
 
There again, that is why many LLMDs feel once you treat Lyme and co's, these virals will get beat down into remission by our immune system as it gets stronger and stronger.

As Lymies we do need to worry, as our poor immune system has a hard time beating anything back down...we need some help sometimes...and this is where anti virals come into play.


Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 10/21/2009 2:55 PM (GMT -6)   
Wow! I hadn't thought of that, but it makes sense. Thanks for answering!
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