Recommendations for Lyme specialist in downtown Boston!?

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rgarvey70
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Date Joined Oct 2009
Total Posts : 2
   Posted 10/19/2009 6:19 AM (GMT -6)   
Please help if you know one!  Thank you.
Ryan

Jeminij
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Date Joined Dec 2005
Total Posts : 1336
   Posted 10/19/2009 11:04 AM (GMT -6)   
Yes. Dr. D. He works in Boston on Wednesday's right off of Storrow Drive. E-mail me and I can get you all his info. He has been my Dr. and actually the only one who diagnosed me years ago. He is very knowledgable and very much a lyme specialist.
 
 

pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 10/19/2009 12:06 PM (GMT -6)   
I would recommend Dr H (newton)- she is an excellent LLMD although I also use Dr J (SC) as I am a complicated case- but Dr J works with him and is likely to become a satellite center for his research. Email me if you like for her phone number
Grew up on Cape Cod with Lyme... (TB aged 12 so did 2 yrs antibiotics as a kid). Weak immune system lifelong-self diagnosed Lyme 2003. Treated successfully with Cowden herbs until rebit 2007. Babs, Bart and Lyme treatments- currently using IV Clindamycin/Azithromycin and oral Mepron, Bactrim and Flagy- pulsed therapy.


Channing how
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Date Joined Aug 2009
Total Posts : 2
   Posted 11/1/2009 7:18 PM (GMT -6)   
I was just about to ask my LLMD if I should go see DR D in Boston. Does he have a long wait ?? Does he take normal insurance?/

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 11/1/2009 10:09 PM (GMT -6)   
Channing how,

Welcome to the forum!
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 11/2/2009 8:36 AM (GMT -6)   
I would not see him! I know many bad outcomes from him. email me and I can help you with referalls if you are in the Boston area.
Grew up on Cape Cod with Lyme... (TB aged 12 so did 2 yrs antibiotics as a kid). Weak immune system lifelong-self diagnosed Lyme 2003. Treated successfully with Cowden herbs until rebit 2007. Babs, Bart and Lyme treatments- currently using IV Clindamycin/Azithromycin and oral Mepron, Bactrim and Flagy- pulsed therapy.


Dowa
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Date Joined Sep 2008
Total Posts : 1120
   Posted 11/2/2009 12:27 PM (GMT -6)   
It is my understanding that Dr. D is one of the best on the East Coast. D

pcpc
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Date Joined Feb 2009
Total Posts : 214
   Posted 11/2/2009 12:38 PM (GMT -6)   
Many think so. I am not a fan- ask on the board I think there is someone on this forum that had a problem with him. I'm sorry I wish I had better news- Boston is not a good place for Lyme treatment in my opinion and I live here and practice medicine here!

The patients that I have personally had that used him never got better, were on constant antibiotics for years, and I think were mismanaged. Sorry to be so openly blunt. Please let me know if you find otherwise, I hope I am proved wrong- we need more good docs in this Lyme infestd state.
Grew up on Cape Cod with Lyme... (TB aged 12 so did 2 yrs antibiotics as a kid). Weak immune system lifelong-self diagnosed Lyme 2003. Treated successfully with Cowden herbs until rebit 2007. Babs, Bart and Lyme treatments- currently using IV Clindamycin/Azithromycin and oral Mepron, Bactrim and Flagy- pulsed therapy.


lymeparent
New Member


Date Joined Nov 2009
Total Posts : 1
   Posted 11/7/2009 8:40 PM (GMT -6)   
How can i get that info on Dr. H in Newton? I have been waiting to hear back from Dr. D for over a month, since getting my son's referral info to him?

Kristiana
Regular Member


Date Joined Jun 2009
Total Posts : 22
   Posted 11/7/2009 11:52 PM (GMT -6)   
Sorry, but I would NEVER NEVER suggest going to Dr. D. in Boston or his other address in Falmouth on the Cape!!!!! He see's you for 2 minutes total and says he cannot understand the brain scans too well, yet he will order one. He told me that "what you have now, can never ever get ANY worse than it is right now." Well, being on his favorite antibiotic -Tetracycline - for a year, my brain scan went from 2 areas affected in my brain, to almost all of my brain affected just 8 months later. And STILL he did not put me on IV antibiotics. His bedside manner is quite nice but as he said, this will be a turtle's pace." I was disappointed that I wasted a year there. I had to beg for IV antibiotics and he finally said ok. But he put me on it and then didn't prescribe the med that ordinarily goes with it (that prevents your gallbladder from collapsing). So my gallbladder did collapse and and weeks later, his secretary called and told me to remove the PICC line, go off the Tetracycline, see you in a month, and oh yeah, don't call back. Someone in my support group right now, see's him, and just got Bells Palsy and she is STILL waiting to hear back from him. It's been 2 months and no reply.

I now see Dr. J. (S.C.) and it is like night and day! I was tired of hearing from the patients in Dr. D's waiting room that they had been seeing him for 10 years and still not any better than the first day they saw him! Yikes! But Dr. J. (S.C.) is fantastic. Another person that might be closer is Dr. F. at Columbia's school in New York City. I don't know what his waiting list is, but he is a psychiatrist who started the Tick research there in 2005. He is highly intelligent and knows about brain scans and which areas of the brain need to be targeted to stop the inflammation in there. You can email me. I have never seen Dr. F. in NYC but read a LOT about him on the internet and my primary care doctor called and talked to him. They have a waiting list but not nearly as long as Dr. J's waiting list, which is about 6 months now. I saw Dr. J. last Thursday and he has an overwhelming 200 new patients each month - that's why the waiting list is so long for him.

Feel free to email me: KristianaS2003@yahoo.com
Kristiana

Jeminij
Veteran Member


Date Joined Dec 2005
Total Posts : 1336
   Posted 11/8/2009 10:07 AM (GMT -6)   
Dr. D saved my life. He is one of the best and without him I would never have gotten well. I can't say enough good things about going to see him and when I read others saying no, I feel like you could be missing out on great treatment. I have also referred 3 close friends to him for treatment and they are all recovered and doing very well. Maybe some have a different opinion, but do not let that stop you from going to see him and see what he can do for you. He is extremely knowledgeable as well as so kind. He has about a 3 months wait and yes, he does take normal insurance which is great. You don't have to pay out of pocket.

I did not take tetrycycline. It didn't sit well with me so he will work with you for the best combo. I did Biaxin/plaq and it worked well for me. It still took time, but it worked. My meetings with him also lasted for over an hour. I guess I have a different experience. If you ask him to do any test he will order it. I always request a new Western Blot just to see any difference. He will do whatever he can to help and that is why I liked having him as my doctor.
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