My 2nd LLMD Appointment

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JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 10/21/2009 5:00 PM (GMT -6)   
Yesterday I had my 2nd appt with my LLMD. ( I was diagnosed in Aug by my PCP and took Doxy for 4 weeks) so I go in, and he asks how I've been since starting the doxy again and I tell him I've been worse, new symptoms etc. He says let's do bloodwork, test for co infections, come back in 2 weeks to discuss more agressive treatment.

When I ask him about herx vs bad days, he tells me it's hard to tell, but not to look on the internet that the people on there are only telling their experience and that he can only do treatment that is covered by insurance, so I should stop reading about people's stories and the alternatives (mind you I didn't say that I had read anything!). I get that, about the insurance but don't you think he should give me info about vitamins and probiotics etc? I dunno, maybe i'm expecting more from him than I should. He also said if I do go with the IV treatment that I will need help to care for my toddler. And I don't think that can happen, so I'm gonna be stuck. blah.

alone&scared
Regular Member


Date Joined Sep 2009
Total Posts : 177
   Posted 10/21/2009 6:31 PM (GMT -6)   
That is crazy! I know you can't believe everything you read, but for him to tell you not to look? That's a bit crazy! I am wondering who you see? Is it dr J in hermitage? Just wondering cause I wasn't real impressed with my appointment yesterday either!

JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 10/21/2009 7:06 PM (GMT -6)   
HE told me that at my 1st appointment too. It's Dr. S. in West Chester, PA.

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 10/21/2009 7:15 PM (GMT -6)   
Jenn,

I've had doctors tell me this before too. Some doctors do not want their patients knowing more than them or challenging them. I say, read all you can because YOU have to be your own advocate with this disease. You are the only one that knows what's going on with your body, not the doctor. And yes, you should be taking probiotics with your antibiotics. I wish I was told to take probiotics years ago. I wouldn't have an overload of yeast to be dealing with now. Yeast can give you some awful symptoms too so take your probiotics and make sure you get the refrigerated one.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


alone&scared
Regular Member


Date Joined Sep 2009
Total Posts : 177
   Posted 10/21/2009 7:54 PM (GMT -6)   
Jenn, your dr and my dr are probaby golf buddies.grrr. I def agree with cg. Read all that you can!
CG, refrigerated ones? Where do I get those?

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 10/21/2009 8:01 PM (GMT -6)   
alone,

Your local health food store should carry the refrigerated kind.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 10/21/2009 8:02 PM (GMT -6)   
I am well educated with probiotics fortunately. I've been on one for 6 months before i even knew of Lyme. My baby has taken probiotics since he was 2 months old. I have a great chiropractor that we go to that has filled me with so much info on supplements and alternative treatment.

I also did a very intense yeast cleanse (2 months long) in Jan-Feb. I've never had issues with yeast but i had read about all the nasty things yeast can do and I thought maybe it was causing my pain. Who knew 6 months later I'd be diagnosed with Lyme!

Oh and as far as the probiotic, yes the fridge ones are definitely best but there is one that is great and does not need the fridge and isn't quite as expensive. Like I said I've been using it since January and so are many of my friends who have IBS issues that are now cured from the probiotic. IT's called PB-8, and you can get it at Vitamin Shoppe. (NOT Vitamine World)

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/21/2009 8:06 PM (GMT -6)   
Jenn,

I'm glad you educated yourself on everything. That is sometimes the only way to get ourselves better. I don't like when a doctor says things like that. They sometimes make it sound like the Internet is for quacks.

I've used the PB-8 before and it seemed to have worked well.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 10/21/2009 8:12 PM (GMT -6)   
It makes me think they are just hungry for money! This Doc is very well known, and do you know when he took my blood yesterday he didn't even use gloves! I was shocked.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/21/2009 8:47 PM (GMT -6)   
Yikes! I'm a phlebotomist and that's a BIG no no! You just never know what can happen. I had a nurse draw my blood without gloves about two years ago and when she went to pull the needle out of my vein, blood came pouring out. She freaked out, ran out of the room and left me like that. I had to grab cotton balls and put pressure on it to stop the bleeding. My mom was with me and she was so mad. I bet she puts on gloves now. What a bad way to learn a lesson though.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


alone&scared
Regular Member


Date Joined Sep 2009
Total Posts : 177
   Posted 10/21/2009 9:11 PM (GMT -6)   
No gloves? That is plain creepy! That is for your protection as well as theirs....Wow, sounds like your dr might be a little too full of himself!

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/22/2009 9:50 PM (GMT -6)   
Jenn,

I'm sorry to hear you didn't have a better experience with your LLMD. I don't get along with doctors who think like that. I see my medical care as a collaboration between me and the physician. This seems equitable to me since I'm the patient, I'm the revenue source, and I pay the price for any errors that are made. S/he is the expert I am consulting to determine how I will proceed. I really don't know how it evolved in this country that so many doctors and patients see the doctors as dieties instead of consultants and the patient as puppets instead of collaborators. Maybe this is why so many people don't take responsibility for their own health; they've been socialized to believe it is someone else's job. In my opinion, a good doctor for me will welcome input from an informed and interested patient. My favorite doctor refers to himself as a lifelong learner and shares with interest the articles I bring to him. For my part, I always follow through with commitments I make for treatment or lifestyle recommendations. It's more a teamwork model than a leader/follower model and it works well for me because I feel empowered to help create my own destiny and I feel respected as a human being. I was fortunate to find a LLMD who is comfortable with this approach; I hope you can too.

Rose
I have Lyme; it doesn't have me.


Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 10/23/2009 6:39 AM (GMT -6)   
When I first saw him and he said I would have to come in every day for IV treatment, I said that would be difficult because I am an hour and 40 minutes away and hubby works. He said - exactly - "Well, you get no sympathy from me. I drive an hour and ten minutes to work every day." I was flabbergasted! Keep in mind, I have neuro symptoms and at that point, my eyes were too bad to drive AT ALL.

I have some allergies to meds and when I asked about various abx, he told me how "safe" they are. Bullsh$t! I would bring something I read up and he would just shake his head "no" back and forth and tell me what I read was wrong. Arrogance and insensitivity.

Needless to say, he is not my doc any longer.

Post Edited (Caldonia Sun) : 10/23/2009 6:42:04 AM (GMT-6)

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