Remaining symptoms...anyone have any ideas what infection?

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mich2604
Regular Member


Date Joined Jul 2006
Total Posts : 319
   Posted 10/25/2009 7:06 PM (GMT -6)   
I posted this on LN a month ago but didnt get many replies...thought I might try over here.

I have had the below symptoms that vary in intensity throughout the month...i flare more when estrogen is high during my cycle(ovulation)

It has been the same symptom set for atleast a year or more

I have been on an abx break as well

*Tight pelvic muscles...that tighten with walking and sitting for long periods. (pelvic floor physical therapy has helped the most with this symptom)

this is now mostly on the right side...where a few years ago it was more on the left.


*weight loss- sometimes i am very hungry other times I have no desire to eat.


I am on a strict no gluten , sugar, low carb diet. Cant seem to maintain weight and have muscle wasting again. I can eat a lb of bacon and still be starved


*Interstitial cystitis...doesnt flare as much ..some frequency here and there along with urgency.

*vulvodynia- varies throughout the month...diet helps with this as dose physical therapy.

*dry mouth

*some hair loss more so now that im off thyroid meds.

*green stools- i do eat a lot of green veggies, but heard this could be liver or bacterial related

*some heart fluttering or twitching that happens a few times a month

*Never tired

on and off day time underarm sweats

Recent labs have shown elevated ANA with speckled patter and an antibody to sojgrens

High reverse T3- cytomel the T3 med made me deathly ill. only one dr so far said I should be on thyroid med...most said due to my weight loss I shouldnt be on one.

Slight antibodies to candida via blood test

Low Ferritin

I test postive for lyme, fry bug,and babesia via the fish test. Mycopneumoniae IGG. High Strep ASO

Any thoughts?

THanks in advance

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/25/2009 7:42 PM (GMT -6)   
Hi Mich,

Lyme Disease can cause weight loss but so can thyroid problems. Has anyone ever mentioned Hashimotos Thyroiditis? This is an auto immune disease that causes your thyroid to go low and high. I lost weight for a whole year without even trying.

You may also want to look into being checked for parasites. I've heard a few people have parasites with Lyme.

If you do indeed have sjogren's, that definitely needs to be taken care of.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


mich2604
Regular Member


Date Joined Jul 2006
Total Posts : 319
   Posted 10/25/2009 7:55 PM (GMT -6)   
Thanks Cajungrl.... I will make a new thread for my thyroid results so it wont get burried.

I have negative thyroid antibodies- been tested 10 times so far

The Sjogrens- the reumatologist I saw said he was taught not to treat it...I dont have the symptoms of it and I dont fit into anything he treats...dont have fibro symptoms....he prescribed Plaquenil and I decide whether i want to try it, but he bets it wont help my current symptoms at all.

the odd thing is back in 2006- i had taken Valtrex(for high EBV titre) i was on armour thryoid for a few months...on prometrium(to enduce the period i lost) and amoxicillin. And i gained 10lbs and maintained it for about a year...then lost it March 08 with a bought of extreme hunger...and havent been able to gain it back. It remains a mystery.

I am looking into treating parasites too...just puzzling i gained the weight back without treating for them.

thyroid results to come on a new post

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 10/26/2009 8:09 PM (GMT -6)   
Just want to say I read your post and I don't have a clue. I hope you find out what is causing it.

mich2604
Regular Member


Date Joined Jul 2006
Total Posts : 319
   Posted 10/26/2009 8:28 PM (GMT -6)   
thanks nefferdun... I hope I do too. for now I will remain a medical mystery.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 10/26/2009 9:43 PM (GMT -6)   
Things to consider & discuss with your doctor:

Parasites, leaky gut (L-glutamine may help), essential fatty acids supplements (Omega 3, 6, 9 ~ flaxseed meal and fish oil are best sources), digestive enzymes, inflammation in the bowel secondary to Lyme/coinfections, other food allergies/intolerances, NutriGenomics, Adrenal and Thyroid hormone anomalies (possibly even subclinical hyperthyroid), Diabetes (can cause weight loss)...

Also, if you are eating a ketogenic diet (ketones can be seen in urine if this is happening), your body may be devouring your muscle tissue for sugar. Might need to include some complex carbs if you can to help offset this.

Could also be another metabolic issue; organic acids urine test, stool study (Genova has a good comprehensive study), and/or nutrigenomics test (genetic variant expression affecting methylation & related metabolic enzyme cycles in the liver/mitochondria) may yield additional good info.

I hope this helps - good luck,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, Ailanthus, homeopathy.


mich2604
Regular Member


Date Joined Jul 2006
Total Posts : 319
   Posted 10/27/2009 11:27 AM (GMT -6)   
Razzle that is interesting about adding complex carbs.........I dont eat many carbs and wonder if that is what is going on here. I eat green beans, brown rice and peas...but not much else.

Would a GI dr test for the metabilic enzyme cycles????......... I really dont have a good dr...keep searching, but cant seem to find one.
Diabets was ruled out. I didnt have many food allergies show up on the test...and the only food that did show up that I eat is Zucchini. The dr was stunned a few years ago when I saw him.

Somehow recently my stools are now normal...not green ..normal form and color...not sure what to make of it. I have been off Gluten for almost three months now.

these are all good ideas to think about...and the dr I saw a few weeks ago wants me to take some herbs for parasites for two weeks to see if I see improvement...thing is my bladder doesnt tolerate much

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 10/27/2009 11:37 PM (GMT -6)   
I think you might find more success actually getting these tests done from a Naturopathic or Integrative physician than a traditional family doctor or Gastroenterologist/other specialist.

I would encourage you to avoid zucchini as well, since you did test allergic to it. You may do ok with cooked zucchini once your weight stabilizes and symptoms are better under control.

IC is challenging to live with - I know of others with IC who thought Rooibos tea was helpful, but I'm not sure if that would work for you or not.

Good luck,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, Ailanthus, homeopathy.

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