My son tested positive.

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momtomonsters
Regular Member


Date Joined Aug 2009
Total Posts : 89
   Posted 10/28/2009 6:33 AM (GMT -6)   
I tested positive in late June. Still on doxy and had a positive retest a couple of weeks ago.
 
I took my son to the doctor the other day. He has caught every virus including H1N1. He is achy and pale. Lots of headaches. Honestly, everything pointed to Mono. Doc ran a ton of labs on him. I asked for the western blot to be done. Doc did it even though she said, nothing pointed to lyme.
 
Well, he is lyme positive. He is positive on more bands than I was. No LLMD here and the closest is 4 hrs away, $750 for the visit and does not take insurance. My doctor works with my son's so they will brainstorm this I know.
Here are the questions....
 
1. Can lyme stunt growth in a child? He is 16 and last weight from last year and hasn't grown at all in the past 18 months.
 
2. What amt of doxy should he be on? We are guessing we were infected almost 2 years ago. Its the virus pattern we have had that woke the lyme.
 
3. He is an honor student but has had difficulty in class this semester. Could the lyme be causing cognitive problems in him?
 
You are all so helpful. I appreciate you.
 
momtomonsters

mother natures child
Regular Member


Date Joined Oct 2009
Total Posts : 231
   Posted 10/28/2009 12:11 PM (GMT -6)   
Hey Mom.
Im a Mom too! And a Grandmom!
Your poor boy! I am not an expert as I am still waiting for diagnosis. I can tell you Lyme can cause cognitive problems. I had to give up driving because last time I drove all the other cars were driving down the wrong side of the street! Every one of them!

Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 10/28/2009 5:26 PM (GMT -6)   
Hi momtomonsters

I got Lyme when I was 18 (I'm 20 now), and I can say one of my first symptoms was increased difficulty with school. Of course, I didn't catch it at the time, but when I returned to school after being dyslexic, I went from having a nearly perfect GPA to struggling to maintain average grades. At one point, I actually told my sister I thought I'd become dyslexic. But I didn't actually realize something was wrong until things got REALLY bad- good for you for noticing, and getting him tested.

It sounds like your sons cognitive problems have started fairly recently, so hopefully once he starts treatment he'll notice improvement right away.

LymeLight
New Member


Date Joined Sep 2008
Total Posts : 4
   Posted 10/29/2009 9:51 PM (GMT -6)   
Hi, momtomonsters!
 
I am really sorry to hear that you and your son are going through this. Your son is lucky to have a mom like you who treats the lyme story seriously because, unfortunately, lyme disease is a real disease. I've had lyme for many years, since I was in elementary school and there is no doubt: lyme has clearly slowed my growth and it has made it close to impossible for me to gain weight. My first symptoms were also neurological. I had trouble in school. Teachers were noticing that I had concentration problems. I just couldn't focus. Then the symptoms starting to add as the years passed.
I thought I had Lyme but it turned out that I had Lyme and Babesia (positive tests). I never took co-infections seriously but I should have. They can lead to treatment failure if you are treating only the Lyme. It's important to remember that, as with Lyme, tests for co-infections can be unreliable. Also, some of these co-infections not only complicate treatment but can cause serious symptoms. Babesia (a parasite), for example, although not as sophisticated as the Lyme organism, can have a very brutal effect on the body. It is notorious for causing anemia, in addition to other serious symptoms (severe headaches, etc).
It''s very important to get informed. This disease doesn't give you a choice because unfortunately, most doctors either know very little or haven't got a clue.
 
I hope you and your son get help and support. Having people around you who understand that this is a real disease is essential. Sadly, it seems that pretty much the only people who are not ignorant when it comes to this disease are the ones who have it.
 
Best wishes!
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