Is there anyone who can look at my test results who can read a Western Blot Test

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therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3488
   Posted 11/3/2009 3:02 PM (GMT -6)   
My doc said "your blood work suggest Chronic Lyme's, get some Cats Claw and if you don't do better with in a few days, you don't have Lyme's. So a week goes by and I said to him I don't feel that much better, so he said you don't have lyme's then. For a week he had me thinking I had Lyme's. I'm still on Cats Claw, but reading about Lyme's described my chronic inflammation in my gut/colon to a T. I'm taking Allicin by Allimed, Braggs Apple Cider Vinegar, and a antifungal b/c there was yeast in my stool. Is there anyone here who is familiar at reading test results? It should I had two types of bacteria one being Chlamydophila Pneumoniae and two bands for Lyme. My doc says no I don't have it. I would appreciate any advise you can give me. I do have a appt with a LLMD in December. THere's not a lot of docs to choose from in Michigan and his "reviews" most were bad. He does no blood work testing only goes by what you tell him. Crazy or what? The first appt is $230 b/c he doesn't do insurance coverage. He was a doctor on the Lyme website. His Name is Dr. L. Thanks

Post Edited By Moderator (CajunGrl) : 11/3/2009 7:35:33 PM (GMT-7)


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 11/3/2009 4:24 PM (GMT -6)   
Sounds like it is time for a second opinion with an MD who is a member of ILADS (ilads.org). You might try emailing Turn The Corner Foundation for physician referrals... info@turnthecorner.org

By the way, 2 bands on an IgM WesternBlot could be a CDC positive result...depending on which bands are positive.

For more info on how Lyme can affect the GI tract, check out http://thehumansideoflyme.net/viewarticle.php?aid=62

Good luck,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, Ailanthus, homeopathy.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 11/3/2009 8:39 PM (GMT -6)   
therearemiracles,

I edited out the doctors name because we don't post them here. You're new here so no biggie:)

If you'd like to post your results here, you can, and we can help you understand everything.

Like Razzle said, two bands are enough to be positive depending on which bands they are.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 11/3/2009 11:05:10 PM (GMT-7)


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 11/3/2009 9:59 PM (GMT -6)   
Hi therearemiracles,

If you post your test results, we could make suggestions, but we can't diagnose you. LLMD's are trained to be able to clinically diagnose people- whether or not they have positive blood tests. So one could look at your test, and determine if the positive bands had a lot of significance, and also look at your symptoms. Non-LLMD's will only look at the blood test.

I had only 1 ++ and 1 IND band. I wasn't very happy with it (as people here might know :) ), but my Dr considers it to be "equivocal", not negative. If I had two bands positive, he would consider the test to be positive.

Nicly

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 11/4/2009 12:22 AM (GMT -6)   
It's just as important to have the right doctor read your test results as it is to get the right test at the right lab. A regular gp ordered my Western Blot test at my request. I had the test done at IgenX and had the results sent not only to the ordering physician but also to a LLMD with whom I had an upcoming appointment. The test showed two bands positive. The regular doctor called me to say the test was negative; the LLMD called to say I needed a further test. After the further test he confirmed that I did have Lyme. Subsequent tests also revealed that I have babesiosis and bartonella. So just because this doctor says you don't have Lyme, unless he is a trained Lyme specialist (mine is ILADS affiliated) the information you get from him may not be accurate.

Rose
I have Lyme; it doesn't have me.


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3488
   Posted 11/4/2009 10:37 AM (GMT -6)   
Hi and Thanks for your help. The band that was "reactive" was 23 KD (IGM) Band and 41 KD Band "reactive and the Chlamydophila Pneumoniae shows "past infection" .
 
 Lyme Disease Antibodies, says "Non-Reactive". Antibody on Ehrlichia Chaffeensis, "Antibody not detected" please let me know what you think.
Very mild left sided (could have fooled me with the "mild")  UC. Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. Supplements: Probiotics, multi, iron,Allimed Allicin, Apple Cider Vinegar, very low yeast/sugar/wheat  No UC meds at this time.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 11/4/2009 9:07 PM (GMT -6)   
therearemiracles,

Band 23 and 41 together make you CDC positive. IGM means you have a recent infection. Band 23 is BB specific. I would find an LLMD if I were you.

If your Chlamydophila Pneumoniae titers are high enough, some doctors still treat it even if it is a past infection.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3488
   Posted 11/5/2009 8:58 AM (GMT -6)   
Thank you for the response, I do have an appt in Dec with a LLMD here in Michigan. I'm already taking a step in the right direction, eradicating yeast and also taking Allicin my Allimed, I'm feeling better each and every day. I know I need to treat the bacteria, but will wait to see my LLMD to get help with this. Thanks again!
Very mild left sided (could have fooled me with the "mild")  UC. Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. Supplements: Probiotics, multi, iron,Allimed Allicin, Apple Cider Vinegar, very low yeast/sugar/wheat  No UC meds at this time.

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