neuropathy has spread

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RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 11/6/2009 7:28 PM (GMT -6)   
went to my neuro's and now i have to wear a brase on both hands at night. he said he thinks the neuropathy in my legs is now in my arms and hands as well.
 
but he said that the spinal tap came back clear. witch i knew wasnt going to show up anything. he is old school in his thinking of lyme. said my postivite IgM didnt mean anything, if the spinal was clear. so he will not help to treat me for lyme. he was my last hope in Tx for treatment.
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 11/6/2009 9:13 PM (GMT -6)   
RD,

Keep your head up. Still waiting to hear from the person we discussed in email.

Did you get your meds filled this month?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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Co-Moderator Lyme Disease Forum


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 11/6/2009 9:57 PM (GMT -6)   
Hi RD,

I'm so sorry to hear that, but please don't give up. I know a friend-of-a-friend-of-a-friend with Lyme in US who was in the same boat. She could not get treatment, and could not afford an LLMD. Just last week, she went to an appointment with the umpteenth Rheumatologist. The Doc looked at her and said "You have Lyme disease. Why is no-one treating this?" He apparently thought it was terrible that she hadn't been treated, and was going to find her a doctor who would treat lyme within her plan. I don't know if it was an LLMD, but it was someone who was open to long-term treatment.

So there is hope- there are doctor's out there, they are just keeping their heads down! I'll be praying that one of them finds you!

Nicky

JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 11/7/2009 6:20 AM (GMT -6)   
RD - have you checked the message boards on the Yahoo Lyme Groups. There are Texas Lyme Groups then others for certain cities. I did see some postings in the HoustonTXLyme group that named some Docs.
“You must be the change you wish to see in the world.” -Gandhi


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 11/7/2009 4:42 PM (GMT -6)   
CG, yes i did get my meds, but i'm waiting to see if they will cover the braces for my hands still. wont find out till monday. only thing i am taking right now is for my cholesterol.

Nicky, i was sent to a Rheumatologist about 2 yrs ago and he told me i didnt have RA, witch i was told i had 20 yrs ago. but that all my joints felt like someone who is double jointed, witch i am not. he said i had arithitis but what kind was anyones guess.

Jenn, Huston is a long ways away from me, bout 10 to 12 hours drive. in my screch the closes LLMD i can find is over 700 miles in Co. outs of my range. as my car is 30 yrs old..LOL i sill pray 1 day the Drs here will wake up and take note of LD.
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 11/7/2009 6:46 PM (GMT -6)   
I should have been more clear. The group is called HoustonTXLyme however they name Doctors all over Texas. I also read on another board that a women's OBGYN treats her for Lyme because her OB's wife had Lyme. They were in Denton.
“You must be the change you wish to see in the world.” -Gandhi

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