another recent Lyme's victim

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bikecm
New Member


Date Joined Nov 2009
Total Posts : 1
   Posted 11/9/2009 10:44 AM (GMT -6)   
Greetings folks: I am currently researching this dreadful disease and my heart goes out to all of those severely afflicted by it. I have a few friends that have had life changing symptoms caused by Lyme’s. I too am experiencing some of these problems with Lyme’s and am seeking your assistance.
This summer I experience an insect bite resulting in a mis-shapenned bull’s eye. I thought it might cellulitis from the insect bite. Started to fade in color but grow in size. Then out of nowhere I got very fatigued and had sharp arthritic wrist pain. ( I broke the wrist a few years ago). Never had the flu-like symptoms. I went to my Dr and he thought either cellulitis or Lyme’s. Treated me w/ 21 days doxycycline(sp??). I took it religiously. Symptoms abated, energy returned. I thought I was cured and carried on with normal activities. I am a climber and bicyclist so continued to play my sports and felt fine for 1 month.
My daughter was recently diagnosed with H1N1 and came home from college very sick. We nursed her back to health and she returned to school healthy. A few days after she left for school I started experiencing flu-like symptoms. All of them low grade, headache, muscle pain, low fever, fatigue. I did not miss work as they never were “strong”. These symptoms left my body (I thought I had beat the swine flu) BUT I came down with migrating arthritis. Don’t know what else to call it. Each day a different joint would ache(a lot) with some with swelling. After a few days I called into the Dr for another visit. I said I think I still have Lyme/s. He said “no, you were treated and are cured” Anyway he ran lots and lots of blood test last week. The only thing showing was Lyme AB. He offered to write a script for an RA Dr. Even though the test for RA is negative he said this is not always correct. He also agreed that Lyme’s may still be a possibility. We decided to see how I felt. Since then (last week) my joints feel much better only slightly sore. Energy however is not so good. I rode my bike with some friends this weekend. I was not able to keep up and ride my typical miles.
So: I’m thinking I still have Lyme’s. Thoughts?? Does Lyme’s joint pain come and go? Is it chronic? Can someone send me a list of local (Baltimore Md.) LLMD. Feel free to contact me off or on list. Thanks and my thoughts are with those severely afflicted.

Best, bikecm
PS Sorry this is so long

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35707
   Posted 11/11/2009 10:00 AM (GMT -6)   
Hi Bikecm!!
I noticed that no one has answered your post yet - just so that you know, that doesn't normally happen! We are here for those who are searching for answers, to help direct them to a doc, or to just talk.

IMHO- 21 days of Doxy is not enough. Do you remember how many mg's you were taking? Do you have a copy of your Lyme test? Those numbers would help us to understand better. It can be incredibly important to see a doc who understands the dangers & knows how to read those results.

Lots of docs still don't recognize the dangers of not treating tick-borne illnesses as serious as they truly are. The migrating joint pain is a symptom that a lot of Lymies deal with.

There are many different treatments for Lyme & tick-borne illnesses. Some docs will use antibiotics only, some will use both abx & homeopathic medicine & herbs & some will just use homeo & herbs. A lot of this will depend on how you feel about each.

Have you read the thread; Newbies start here? - It's full of all kinds a really good info. Ticker - a long time member, is who you need to contact for any info about a LLMD (Lyme-Literate Med. Doc.) for the list that HW has available. There are also other Lyme Disease sites that you can contact for more listiings.

I hope this info helps some, as I know how frustrating and even scary it can be to not know what is going on with your body.
May you find not only healing, but peace on your journey.
~Trav
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 11/11/2009 5:38 PM (GMT -6)   
migrating joint pain is a key symptom- i get little pains that come and go all the time. my ankle hurt yesterday...today its my hip. :) You're on the right track just make sure you get treatment.
I refuse to stay sick! Period. 
 
 

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