Boy, does your comment about having to be your own doctor hit the nail on the head - for a lot of us!
Just an aside about your test being done by Mayo Clinic. Somehow we have all come to believe that Mayo is the end-all be-all of medicine. In reality, they are no better than any other larger medical facility as far as the latest treatments/testing. Much of their clinic is quite outdated - the marble entrance (of their main facility) is quite grand, but the appointment rooms and waiting rooms are from the 60's or 70's! Parts of the clinic are better than others, but I personally have only been in the outdated parts, and that was as of a couple years ago. Bottom line is that you want the best treatment and the appearance of the clinic shouldn't matter, but when you are sitting in the waiting room or the appointment room and you realize just how long it's been since they updated the most basic aspects of their clinic, you begin to wonder if they truly do have the best equipment to do your testing. Why, when they are bringing in millions of dollars, can't they spend a little of it on making it at least a little more appealing and confidence building - over the last 30-40 years, a few bucks could go into new flooring and cupboards in the exam rooms. Let's face it, we are human and appearances do matter. When you hear comments about just being a number, that is exactly how I felt going there. I live within traveling distance of Mayo, along with 2 other very good medical facilities - Mayo is my LAST choice & only for 2nd opinions. They don't even have a toll-free phone number and you pay for parking...they are not really all that patient-friendly compared to the other major medical facilities in this area. They get their great reputation for their research, and do you know how they get their research? By HOUNDING their patients to become part of time-consuming, long drawn out studies! I had a second opinion there and for 2 years I received multiple requests to become part of different studies. It was almost bordering on harassment and I'm not exaggerating. Once, I agreed to be part of a study because I felt it was worthwhile. When I got the 3/4 inch thick stack of forms I had to fill out and GIVE TO MY PARENTS AND SIBLINGS TO FILL OUT also, plus more that I didn't realize went along with this, it was not worth the $15 they were going to give me for my time, and I backed out! You won't get any better treatment or answers from Mayo regarding Lyme's, thyroid issues, hormone issues, or any other "controversial" health issues than you will at any other progressive mainstream health care facility.