TSH thyroid question

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Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 11/12/2009 8:26 AM (GMT -6)   
Started a year ago TSH was over 6. Started synthroid, SLOWLY got it down to 1.4. All good right? A month later it was back up to almost 4. Can this happen, it fluctuating so much. Please tell me this is a Lyme thing, too.

Just when I think something is corrected, it all goes to hell. Arggggggg! It is so annoying!

Also, never had a thyroid thing...started when I got Lyme.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 11/12/2009 8:50 AM (GMT -6)   
Lovelabs,

Have you ever been checked for Hashimotos? Hashimotos Thyroiditis can cause a fluctuation in levels.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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Co-Moderator Lyme Disease Forum


Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 11/12/2009 9:59 AM (GMT -6)   
what is that I never heard of it. I had the run up through my endo he never said anything about that. Is it caused from Lyme?

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 11/12/2009 10:30 AM (GMT -6)   
Hashimotos is an auto immune disease. It is when the body attacks the thyroid thinking it is an invader. Hashimotos is a thyroid disease although some people do think that Lyme causes it.

There is an antibody test to check for it. I'm not sure what it's called though. Maybe someone else can chime in.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 11/12/2009 11:30 AM (GMT -6)   
My TSH is all over the place, goes from below 1 to 5, back and forth. I am taking no meds as the doc has no idea which way to go. I think its my hypothalamus causing the fluctuation, and it is affected by the Lyme and other things like CFS and chemical/mold exposures, infections, etc.  I am hot one minute/cold the next. I read somewhere that when the body starts to rebuild/repair itself the levels will become normal.  

Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 11/12/2009 12:45 PM (GMT -6)   
What if you've been on meds(synthroid) like me and it still fluctuates? Maybe I do have that auto immune thing. Just another thing to ad to the list.

2 years ago I was SO healthy...now thyroid, elevated lipase, GI problems(IBS), and all of my Lyme stuff. I can have 4 good days then I crash. When I have pulses abx in the past by the 2nd week off meds all symptoms for the most part were back. Starting to feel like I will never get over it.

One more thing...sick of all the pills- and thanks for all your input. Love how people here know a little bit about everything. Sad when we can diagnose Lyme better than most doctors!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 11/12/2009 1:43 PM (GMT -6)   
Lovelabs,

I totally understand. Last year, I was in college and made a 3.9 in phlebotomy and a 4.0 in EKG. Now I can barely walk or think straight most days.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum

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